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Stroke Survivor - male
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About PaulNash

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    Associate Mentor
  • Birthday 05/18/1958

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  • Stroke Anniversary (first stroke)
  • Stroke Anniversary (second stroke)
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  1. PaulNash

    Reading the board this evening, and especially Alan's poem, made me glad in many ways that I had my stroke. I would still rather not have had it, but I have met so many amazing people, mostly here, but also in the medical and rehab services. All of you make me realize how shallow my life was in so many ways before my stroke.
  2. PaulNash

    made me cry. Thank you, that is beautiful.
  3. PaulNash

    I guess that I was lucky. My wife pretty much camped out at my bedside for the first week, kids cams to is it after school, and my sister-in-law (doctor) made sure that the medical staff checked up regularly. What I wanted more than anything was an idea of what the next few days, weeks, months would be like. Longer than that would have been too frightening, but an idea of the process and timing of getting from the hospital bed, unable to sit up unaided until I was out of rehab, about to walk again. A realistic timeline, rather thin thinking that I'll be right as rain in 1 week or two. Telling me that I would need to take lots of regular (and unscheduled) naps for the next year, thoughts would be jumbled up, that I would be incoherent at times, unable to follow conversations at others.
  4. PaulNash

    Wow! That is an amazing story -- one of those situations where all the ducks are in a row and everything goes right. You are a lucky lucky man, and your daughter deserves a huge amount of praise for recognizing what was going on and acting so quickly. This is a great place to hang out, chat, talk to people who know what you're going through, and find solutions. Welcome.
  5. PaulNash

    Happy Anniversary, Scott. May you both have many, many more!
  6. PaulNash

    Owww! That sounds really nasty! I've cut myself often (pre- and post-stroke), but never as badly as this. I hope that it heals soon and clean.
  7. PaulNash

    Anne has a LOT of anxiety and can't be left alone for very long I also suffer from significant anxiety. I've always bee mildly anxious; since my stroke it has been overwhelming at times. I have learned a few things that help me, some straightforward like stopping, closing my eyes and breathing slow and deep, others are a bit more analytical. The breathing thing seems to work well for a range of people. It's easy. Close eyes, breathe as slowly and deeply as possible. Focus on the feeling of the air flowing in and flowing out. As simple as that. I do it for as log as it takes to feel calm (probably 2 or 3 minutes at most). The biggest hurdle is remembering to do it.
  8. PaulNash

    Hi Patty Welcome. I guess everything has been said already. My two pennies worth: 1. You need to advocate for yourself, or get someone to do it for you (my wife took this role for me, made the average rabid pit-bull look like a lapdog when faced with stone walls). Don't be afraid to ruffle feathers -- this is your life, your brain, your recovery. I don't know a lot about the US system (I'm in Canada), so I do't know how hard you can push, what strings are pullable, and so on. Having someone (friend or relative) who can advocate for you helps. Also writing down what people say as they are saying it seems to calm some of the most aggressive admin staff -- they realize that it may just backfire on them. You don't have to be overly aggressive or threatening, just make it clear that you are keeping an exact record. 2. Improvement continues over a long time. I'm in my early 60's, had my stroke 4 years ago. I saw massive improvements during the first six months, significant improvement during the first year, and have seen incremental improvements ever since. Never stop pushing yourself, you'll keep seeing changes. This is not a sprint, and not even a marathon. It's a life-long event, so don't sweat too much over short-term issues of setbacks. They can feel devastating, but you have a lot of healing and improvement ahead of you. 3. Look after yourself. I am acutely aware of my energy budget -- I can only do so much before I start to think irrationally, slow down, forget more, and so on. Look on this site for "spoon theory" and adapt it to your particular circumstances. Finally, we are all here for you. We've been though what you are going through, we understand in ways that people who haven't will never understand. We may not be able to get you in to the neurologist any faster, but we can help reassure and can sympathize.
  9. PaulNash

    What they all said. Basically, it takes time. Some improvements are sudden and drastic, some are subtle and creep up on you. However, things keep improving over time. And yes, it is a huge blow. You both have my sympathy. However, not all is lost. The good news: Improvement continues forever. The realistic bit: Improvement is not linear. It come in fits and starts, may seem to have stalled for some time and then have a sudden breakthrough. Some things can be managed (keeping notes to make up for memory issues, support bars to help with balance and getting into the wheelchair). The two of you will figure this out over time, and by seeing what other people do and how they cope. The bad news: Some things will never improve. Not everything can be managed. There will be frustrations and upsets, but they get easier to deal with over time. Don't give up on improvement, ever. It takes time and work and practice. However, be sceptical of people like Normal Doidge who write about "miraculous" recoveries. The are selling snake oil; there is no silver bullet, and things will never be the same as before, but they will not be as bad as they are now.
  10. PaulNash

    Likewise. Praying the he keeps improving.
  11. Hi Tracey; no you are NOT "just whining". These things can be a real PITA; disruptive and upsetting. I hope that you ar able to get your sleep patterns under control or figure out how to make them work for you. paul
  12. PaulNash

    I feel so happy here. That is so good to hear! Happy Holidays to you too!
  13. Hey Tracy I'll swap you! >> I get anywhere from 6 to 10 hours on average with the occasional 11-14! I I sleep somewhere around 5 or 6 hours most night. If I am really exhausted, I may sleep 7. I am continually tired, which adds to the brain fog. So if you'll give me a couple of your unwanted hours each night, we will both benefit 🙂
  14. PaulNash

    Time helps. I still have all my deficits, but I am better at managing them. My wife is a specialist vet, manages my medical situation, comes to most of my consults, and knows far more than I do about my weaknesses (that's a wife's job, right?). Even so, when things are going well she sort-of forgets about the deficits until we run into them in some major way, at which point she gets upset. So do I, come to that, but less than she does because I know that the "whole" me is just pretending. Between wishful thinking and workarounds, we are both lulled into a sense of normality. When that breaks, it comes as a shock to both of us (probably more so to Linda, because she is trying to fix me somehow). This process goes through ups and downs, depending on what else is going on, but overall it is getting easier and less traumatic. Tincture of time heals all ills (eventually)
  15. I get the blues in a big way. The early nightfall is part of it, everyone being jolly is part of it, plus the relentless marketing trying to quit us into buying more and more. I guess I'm just an Eeyore.