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Stroke Survivor - male
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About jwalt

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  • Birthday 10/17/1940

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  1. jwalt

    Paul, I'm amazed, reading your item and info on a lot of other threads, how many really highly placed computer and programming people are in this stroke group. When I got involved with "computers", they were just hard wired sorters with punched paper input. I have been retired so long that I'm rusty on everything digital. Can't imagine how frustrating it must be for those of you who are staying involved in the industry; but, are working under the extra stroke related issues. You have my greatest admiration. James
  2. I have two grown daughters who have always had a problem picking a gift for my Birthday or Christmas. My stroke has solved that problem. I have told both daughters that what I need and want is help in the digital device area. I was previously pretty good at working my way through instructions for hardware or software. Post stroke I find the procedures and or instructions very complex and confusing. So now when I get hung up on a problem, I can just "dial a daughter" and get all the tech help I need. Think now I will extend this process to my grandkids then no-one will have to worry about shopping - just wait for a call from me. I keep finding stroke related problems, it's good to put something on the plus side. Stroke, the gift that keeps on giving!!!
  3. Alan, I salute your endeavor. I had a million questions that I didn't believe were important enough to take up a doctor's time. If you let the patient just talk a while, the things they want to know will probably come out. Again, what you are doing is so great. Congratulations !!! James
  4. jwalt

    Welcome Eclare, You will find a lot of very knowledgeable people here and all are helpful. You have brought up something we are all interested in. "Not having another one". James
  5. jwalt

    We have all had a life changing event. That doesn't mean the life before the event is gone. I think a lot about my life before and in fact that is a major motivator for me. I think it is only when we dwell on our "before the event" life and don't do any living in the present, that we bog down. I think often how my wife and I would dance every dance and have such a good time, and I am determined that we will dance again but within my limitations. Things like dancing are too great a joy, to not be revisited on occasion. I would think playing an instrument, painting or any beloved pastime would be equal to my dancing. I love you all for making me think about things like this and to be able to analyze my own feelings about the same. James
  6. PennGwyn, Sounds like you have a Doctor who is interested in making you the best you can be. Congrats on finding something that works. I find your motto interesting and I can identify with it as well. As I get farther along in my stroke and heart operation recovery, I'm going to have to pay more attention to my diabetes. So it is really helpful to hear of treatments that have shown such promise. James
  7. For the first few months AS I would cry at the drop of a hat. It has since become less and less frequent but even now, when it hits there is little I can do about it. Fortunately I am home retired so don't feel the need to medicate. I can't imagine the stress of dealing with it and being out in public. My hat is off to those of you who have to deal with PBS at work. James
  8. Jcourter, Welcome and how do you do? I'm still in my first year after stroke. You have made the good fight for 13 1/2 years - Congratulations! I look forward to hearing comments and advice from you. James
  9. Deigh, New Zealand sounds wonderful. Those people I have talked with and who have visited your land have raved about the beauty of the land and friendliness of the people. I have spent winter in Fairbanks, Alaska and summer in Tucson, Arizona and on the Fahrenheit scale that's about 150 degrees. Thirty below to 120 above. But that was during a time when I was sturdier than now. Probably couldn't handle either one now. Will2 spoke of heat and humidity in south Florida and I would have trouble with that as well. Guess I've just become unable to handle extremes of any kind. Thanks to all for including comments about where they are and what they are doing there. It is great! Just like life! James
  10. Will2, When I saw you had added to this thread, I went back and read the whole thing once more. It amazed me how much good info had been passed on to me by the various responders. And now you have added even more. I am hoping that my walking program will help in the area of breathing and conditioning. I have been pleasantly surprised at the improvement swallowing therapy has given me. I was getting choked nearly every meal and now it seldom happens. The main benifit for me has been just concentrating on the process of swallowing. What once was automatic now has to be focused on. But it is working and I'm pleased with that. I still tire easily and don't know whether it is heart or stroke related (or both). Well, it's time for another of those "walks". It will be a shorter one because it is over 100 f. Thanks again for the contact. James
  11. jwalt

    Scottm, I know what you mean about amiodarone. I was on it for five months. Nasty stuff! Made everything I ate taste bad. Sounds like you went back to a natural rhythm and that's great. I'm really happy when my pulse occasionally drops below 100 beats per minute. But on the other hand "it is beating and that's good". When they finished the heart surgery, it wouldn't start so now have a pacemaker. Thanks for the response. More info is always good. James
  12. I would be interested to know the frequency Afib is present following a stroke and when it is, what treatment/medication is used. I suffered Afib following my stroke and now, eight months later am on Xeralto, an anticoagulant. The medication is supposed to help prevent another stroke and help with the Afib. To get off the medicine would require another heart procedure and I don't want that. I really don't know which of my present symptoms are caused by the stroke and which by the Afib. I don't have any answers on this subject, just comments and questions?? I would appreciate any info my fellow survivors have. Thanks, James
  13. jwalt

    Will et al, I can't imagine having to deal with the continuous pain that some of you experience. Some of me is numb and some of me doesn't work the way it is supposed to; but, none of me really hurts. I salute your efforts to battle the pain while dealing with the other challenges. Good Luck to all.
  14. jwalt

    alansd, I seem to do both, celebrate and be sad, depending on my mood. I celebrate that my "challenges" are not as bad as they could be but I'm still sad that my New Normal does limit me. Guess I have to decide whether my "mood" is determined by the celebrate/sad or the "celebrate/sad" is result of my mood????? This morning I went to my speech/swallowing therapy. Some people there were really fighting some big problems and made me realize how small my problems are. Soooo good mood and I'll celebrate today. Good luck to all of Us.
  15. My stroke was about eight months ago and the first four months were spent medicating for my heart problem. That medication changed my tasting mechanism totally. Now that I'm off the medicine, I'm addressing the speech and swallowing aspects of my stroke. I have changed many things I eat but it was done because of problems with my "swallower" . This post has got me thinking, I am eating much more fruit now - don't know if it is because of taste or the moisture content (i.e.. ease of swallowing). You have me thinking and I thank you. James