sukie31

Stroke Caregiver - female
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About sukie31

Contact Methods

  • Stroke Network Email
    Yes

Shared Information

  • Stroke Anniversary (first stroke)
    03-31-2021

Registration Information

  • First Name
    Susan
  • State
    Rhode Island

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  1. Becky, thanks so much for the advice. I really appreciate it! I will definitely get him as much rehab as I can. Thank you!
  2. I like that advice - remember it's is a journey and a marathon, not a sprint and take time to celebrate the small wins. Thanks so much! Susan
  3. I am new to the board. My husband had a stroke on 3/31/21 when he was on a solo trip 200 miles away from where we live. He was brought to an area hospital on 4/1, then moved to another hospital that's about 150 miles from where we live that was more equipped to help stroke survivors. He is now in an acute inpatient rehab. His stroke was an MCA on the right side of his brain and it affected a substantial area. He has little to no movement on his left side right now. His speech has been affected, but continues to improve every day. He has some short-term memory issues and some issues with vision. For example, yesterday he said that the bottom of the bed looked like it needed to be straightened out because it was at a 90-degree angle to the rest of the bed. He is a very active person and his mood has been very up and down, admittedly mostly down which makes sense to me considering everything that has happened. His personality is very much intact which I am grateful for. I asked him if he's able to read and he said yes but that it takes a lot of concentration and is tiring. He will potentially be discharged on 5/11. My husband won't be able to be alone when he first gets discharged. I am working full-time and we need my income and insurance so I need to keep my job. My husband owns his own business in the healthcare field. He has a wonderful clinical director who is keeping things afloat, but I'm also helping her when it comes to paying the bills. He has two college-aged children who seem open to helping him out during the day while I work. My question is regarding whether I should be looking to see if he qualifies for a subacute rehab or if it is better for him to come home and for me to get rehab providers to come into the house instead. There are a lot of moving parts and I want to do what's best for him. I plan to ask the case manager as well, but I think that it would be really helpful to hear from other caregivers regarding what worked best for all of you. Thank you in advance for anything that you can share.
  4. Hello Everyone, I am new to the board. My husband had a stroke on 3/31/21 when he was on a solo trip 200 miles away from where we live. He was brought to an area hospital on 4/1, then moved to another hospital that's about 150 miles from where we live that was more equipped to help stroke survivors. He is now in an acute inpatient rehab. His stroke was an MCA on the right side of his brain and it affected a substantial area. He has little to no movement on his left side right now. His speech has been affected, but continues to improve every day. He has some short-term memory issues and some issues with vision. For example, yesterday he said that the bottom of the bed looked like it needed to be straightened out because it was at a 90-degree angle to the rest of the bed. He is a very active person and his mood has been very up and down, admittedly mostly down which makes sense to me considering everything that has happened. His personality is very much intact which I am grateful for. I'm thankful that this board exists and I have a question that I'll post in a different section. Susan