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bella

Stroke Survivor - female
  • Content count

    61
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  • Country

    United States

About bella

  • Rank
    Member
  • Birthday 12/29/1960

Contact Methods

  • Stroke Network Email
    Yes
  • ICQ
    0

Shared Information

  • Stroke Anniversary (first stroke)
    11-09-2000
  • Stroke Anniversary (second stroke)
    11-09-2000
  • Stroke Anniversary (third stroke)
    11-09-2000
  • Facebook URL
    https://www.facebook.com/bethe.melia
  • How did you find us?
    Google Search

Registration Information

  • First Name
    Elizabeth
  • State
    MA
  • Country
    United States

Recent Profile Visitors

5,864 profile views
  1. I wish you well with this. Hoping it helps. ~Beth
  2. This have never happened to me. It seems like a very positive sign,though. My left hand and leg have stayed pretty much the same since my stroke 18 years ago. I hope you get your function back. Sounds like you're on your way.
  3. Hi Alan, I am almost eighteen years post stroke and my walking has a long way to go. I can walk with a cane(I,too,go without some times)and an AFO(that I must wear whenever I walk). My gait is nowhere near "normal". My left leg swings out at the hip and that's what gets me from here to there. Knee and Ankle do not bend. I see other survivors walking like I did pre-stroke and I wonder why I can't. I know everyone is different. But I can't help but feel I'm missing something. Glad to hear you get to the gym. Riding sounds great. I tried,but my left leg wouldn't stay put. I have a treadmill at home. haven't been on in awhile. It actually makes my arm sore afterwards. I have to hold onto the railing so tightly with my right arm that I've caused shoulder pain there. With treatment that seems to have improved. I don't do PT any more. Was told there wasn't any further I could go at this point. I don't want to settle for where I'm at. But not much choice. I'll continue to walk whenever I can. And keep a positive attitude. If you are on Face Book there are a few groups that I'm on that off support and suggestions also. And of course StrokeNet here is great. I'm sure you'll get more replies. I would think it's a common problem with us survivors. Wishing you all the best. Beth
  4. No experience,but sure sounds like a mistake. So sorry this happened. ~Beth
  5. Thanks so much for sharing such helpful info. I think a lot more of us deal with this than anyone knows about. And I for one enjoyed your smiley even if it was an oops.
  6. Hi, I've worn one(this is probably my 4th)since day one. My stroke was 17 years ago. I've been told time after time not to walk without it. I have such ankle weakness and it turns in(left foot is never flat on the ground)that it would be dangerous. the one I have now isn't articulated. I found those too bulky and since my ankle or knee won't bend it made no sense. the one I have now has a little "give" to it and works fine. it goes up to my knee. wish you well in whatever route you go. sounds like you've come far. inspiring! ~Beth PS. if you're on Face Book there are a couple of good support pages on there. great place to get opinions on these types of things.
  7. Hi Alan, My stroke was 17 years ago. I don'y use the cane indoors,only ouside. leg pretty much has that heavy feeling all the time. Wishing you the best. ~Beth
  8. I've never heard of it. What is it used for? I'm on Flint's Survivor Support Group on Face Book. I wonder if people in the group have had experience with it. Are you in the Group? If not,I can ask for you. Let me know. I do know a lot of recovery devices are pricey. Nice to hear feedback before purchasing. Best of everything. ~Beth
  9. I have a lot of spasticy in my left arm/hand from my one and only stroke at age 39 in 2000. over the years I received Botox,but didn't have a lot of confidence in the doctors doing it. I felt no relief at all. also had some in my leg. nothing. found a very experienced doctor. had the injections yesterday for fingers(that injection was pretty painful) wrist and bicep(what a bruise!). I know it should take about a week to notice anything,but I already feel something. I have absolutely no movement in that arm/hand. never had in these past 17 years. this new doctor would prefer treating it with medication. I'm already on the highest Baclofen dose. they added Dantrolene and it may help. would be easier than traveling all that way for Botox every 3 months. I'm feeling positive,anyway. All the best. ~Beth
  10. Oh boy,not this again. There are been numerous posts on this guy. Most opinions lean towards him being a fraud. insists on money(a lot)up front won't take insurance. I'm not interested in letting a Dermatologist insert an arthritis medication into my spine and lying upside down for 15 minutes. anyone can make these videos-and clearly he has). no clinical trials done. I'd be interested if reliable sources okay it.
  11. I'm still cynical. I believe it's a scam. I've heard it costs around $8000.00 just for a visit. I would be hesitant about letting someone(not trained in neurological issues)inject me in my spine with medication used for arthritis. If there were actual clinical results and not just videos he's made I might take the chance. I do believe the Face Book stroke support page I belong to had people that actually tried it,or at least were in contact with the doctor. From what I recall he wasn't very good about getting back to patients. And I thought someone said money was due just for the consultation. I'll just wait until something proven comes along. If you try it keep us posted.
  12. Very interesting. I think when a major breakthrough appears we'll hear about it. I shared the article on Face Book. Some of the support groups on there were asking about it.
  13. Thanks,Kelli. i think a "real"(yeah,I know he's a dermatologist which is a doctor) doctor is the place to start. Don't you think if this were a real cure we'd be hearing about it from legitimate sources? If it looks too good... I don't want to discourage,just my thoughts.
  14. There have been many discussion on here and elsewhere(Face Book support groups went into it awhile ago) regarding this. Most people concluded that it's a scam and doesn't benefit anyone other than the doctor who's doing it. You might want to search the Forums. I believe people here have actually had the treatment done. Others have contacted the doctor. I've yet to see anything positive. But it may be worth a "shot". All the best! ~Beth
  15. I've heard about it,but don't know much beyond that. Try searching Forums on here using the search feature. I believe there was a discussion on it some time ago. Best, Beth
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