swilkinson

Staff - Stroke Support
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Posts posted by swilkinson

  1. Hi Kelli, a few of us have been trying to keep the site going. I'm glad to see you on here. After so many years and as a widow I don't think I contribute a lot but do enjoy interacting with the rest of the people on here.

     

    Maybe we can build up the numbers again so that new people can feel they can not only get support but also make friends here as I have done.

     

    Hope you can find another good job but without the stress the last one put you through.

     

    Hugs from Sue.

  2. Deigh, other services are available here, shopping is one I had when I was recuperating from the melanoma op. I wasn't allowed to drive for eight weeks so the home aid took me with her to the shopping centre. She also allowed time for me to have a coffee too, that came under socialising. Sometimes it's nice to go for a drive or to the scenic part of town with someone to help you. Always good to check up and see if there are any extras you have been missing out on.

  3. I am stiff today as I had a fall yesterday outside my local fruit and veg shop. I was carrying a box, not sensible at my age and misstepped. Just a reminder I have some mobility problems because of the melanoma op behind my left knee and my age. Hope you are all feeling well today and enjoying life.

  4. Good to hear someone is using chat Deigh. In the late '90s it was so busy on Friday nights in the "Coffee shop", a room only used on Fridays, that the posts reeled up too fast to read . Those were the days of Host Denny who was a legend on here.

  5. Could you post a message on how to join the chat please Deigh. I know a lot of people come to a forum like this out of frustration, looking for help. I know that was the case for me and the reason I stay. We really need people to post, to chat and to blog about their post stroke life. I was a chat host for many years and that was very rewarding and I made a lot of friends who are still friends on my Facebook page.  Please Asha if you read this message can you reply too.

  6. Janelle, I didn't tackle your actual question in my first answer because I am a caregiver. From my point of view whatever Ray asked me to do I did but not always immediately. That got him frustrated. I sometimes wished I'd had a screen in my head that could have sorted out the proper priorities for me. But we are just soft shelled human beings with limited brain power and that did not compute.

     

    Looking back now I wish that I had paid for some extra help, the occasional cleaner or handyman so I could have devoted more time to him and his needs. Instead I sometimes felt the worries of the world on my shoulders and got impatient with him and the whole business of trying to keep him at home. Rant here whenever you need to and get it out in the open. I'll not always reply as I look at the situation from my own perspective. And that might not be helpful.

  7. I think we all go through this in different ways. My problems are.due to age and my wonky left leg. I store jobs up for Trev to do while he is here for six days. Then he's here and Alice wants to go here and there, Trev needs to go to shops not available in Broken Hill and I have my list. Sometimes out of a long list two things get done.  I am grateful but by the next visit the list is even longer.