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kristina38

Stroke Survivor - male
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About kristina38

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  • Birthday 12/04/1966

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  • State
    FL
  1. Happy Anniversary kristina38!

  2. Happy Anniversary kristina38!

  3. kristina38

    Panama City, Florida (Bay County) Northwest Florida
  4. Hi Tara, welcome to the board and sorry you are having so many problems. I am also a bartender so I know how stressful the job is by itself without all the extra stress on top. Don't have much time to post write now but I'll get back to you when I get off tonight. Try to stay positive, I now it's hard, I took care of my Mom for two years after her stroke so been there done that... Kristina
  5. kristina38

    Mott, so happy that you are at peace with your decision concerning your Mom. Try to take some time for yourself and your own "healing", you deserve it. Kristina
  6. kristina38

    Therapy can be very tiring on survivors. Mom had several different bouts with it. We'd go for a couple months until she hit a "plateau" and wasn't improving enough for medicare to keep paying. We'd practice the stuff we learned in therapy for four or five months and when we saw improvement we'd call the doctor and sign up for more therapy. I found with Mom she did best if we limited it to a few months at a time then quit and let her process all that info. I think sometimes they forget the cognitive deficits that go along with the physical and try to cram too much info into someone which just creates exhaustion and confusion. Kristina
  7. kristina38

    Melissa, thank you for your lovely post. If I've learned anything from all of this, it's to live life to it's fullest. Tomorrow is never promised. I wanted to give an update on my progress. We finally made it out of probate (four weeks late) and we are hoping to close on the refinance Tuesday. I can say I will be so relieved when this is all over and I can begin living my life again. I have so many things that need to be done but I haven't been able to until we close. I've spent most of my time obsessing over whether Mom's mortgage company was going to foreclose on us. Leaky faucets, a pool that needs resurfaced, shingles that need replaced, new carpeting UGH! I still have to go through all of Mom's things but every time I go in her room withing a few minutes I find myself hugging her pillow which still has her scent on it and bawling like a baby. Hard to accomplish much like that LOL...I also need to contact medicare and find out if we own Mom's wheelchair and air release mattress or if I need to have them come get them. We had signed the paperwork after they were rented for a year to own them but I'm not terribly sure how that works. I also have a very heavy duty bed side commode, portable wheelchair ramp and various other medical supplies that I will probably donate somewhere. I've made an appointment to take all five kittens/cat to the vet for their first round of shots so that should be quite the adventure for me LOL I have a giant dog carrier I can fit them all in, I'm sure the people at the vets office are gonna love me HA! Well, that's about all that's new right now. I need to get started on planning our wedding as well but I'm trying to take one thing at a time for now. Kristina
  8. kristina38

    Hello all, things are still moving slowly. We are still waiting for the judge to sign over the title of the house so I can refinance it, the process was supposed to take two to three weeks and is now in it's fifth week. Christmas has basically been canceled at our house as without the money from the refinance buying gifts is out of the question as are most of the things I had planned on doing in memory of Mom. I also had another tragedy, my beloved Wody the Cat (the Thanksgiving runaway that triggered Mom's recovery over a year ago) passed away on December 7th while I was at work. It seems like tragedy is my closest companion this entire decade. First Mom's Mom, then Dad, then Mom and now Wody. I still have four of the six kittens that the stray Momma cat had and her as well. They are hellions but adorable and funny and one of the few things that can make me laugh anymore. I'm really trying to keep faith and pull through this but damn if life doesn't make it hard. I still miss Mom tons and now Wody as well, I find myself visiting his grave in the back yard and talking with he and Mom alot. I'm sure he's with her, she was always trying to "steal" him from me when she was alive LOL and they were pretty much inseperable most of the time. My fiance and I are trying to plan our wedding but that is on hold along with the rest of my life waiting on this one horse towns judge to decide he has a minute in his busy schedule to sign his damn name on a piece of paper. I suppose I'm just frustrated and wanting to put this all behind me and not being allowed to do so by the powers that be. It reminds me of the old joke "God grant me patience, but please HURRY! LOL Kristina
  9. Dorrie, I know how hard it is to see your Mom hurting or sad, been there done that and it's very hard. Your Mom is still the same strong person on the inside, she maybe down and not feeling as confident as before but she is still that strong woman you know. My Mom suffered horribly after her stroke and spent the first 3 months basically in a coma or close to it and then several more months of acute rehab with horrendous decubitus wounds, pneumonia, mrsa etc. I was fearful she would never have the strength to recover at ALL. She proved everyone wrong and continued to improve and somehow a little over a year post stroke was doing PT that included walking 50 ft with a walker and assisstance! She never regained her speech nor her right arm but we had many fun times together in the last year of her life and she got to know my fiance, had a wonderful Birthday, Thanksgiving, Christmas and I will always be thankful for that. I know she didn't like being in a wheelchair and she got frustrated at times not being able to care for herself but I also know she had many happy times and so will you and your Mom if you can help her to not give up. What you can do, is tell her how much you love and care for her and remind her what a strong woman she STILL is and how much you need her in your life. I can't even tell you how many times Mom and I cried together after she came home and I was her caregiver 24/7. We had happy times and we had sad times and we had angry times but most importantly we had TIME. Kristina PS I lost my Dear Mother a little over a month ago to complications after a gallbladder surgery, she was a pillar of strength to the end and I am ever so grateful to have been blessed with the ability to care for her and have that extra time...
  10. kristina38

    I'm going to agree with Jean on this one. As a caregiver, I would have given anything for a few hours of "off" time and the bonus of having someone to help me with all the cleaning chores around here. Jeans suggestion seems like a good compromise. I wouldn't worry about "being like your Mother", we've all had the moment of realization when we look in the mirror and see our parents LOL...I think I was about 30 when I noticed I was just like her, and to be honest I'm pretty happy that I am! Kimmie, not everyone that can't sit still is on drugs. I'm an extremely type A person and rarely sit still for more than ten minutes at a time and I'm not on drugs, although I probably could use some to slow me DOWN. I'm constantly finding "busy" work for myself at work and at home and I feel guilty if I just sit still and am not accomplishing anything. Kristina
  11. kristina38

    LOL Phyllis we usually pick out the best gifts for ourselves! I'm really trying to get into the spirit of the season but I just don't feel terribly motivated right now. My birthday is a week from today and I'll be 40 which isn't helping my mood any either LOL. My Mom was always big on Birthdays and Holidays and without her they just seem lackluster at best. Last year it was such a joyous occasion for us, Mom was improving steadily and even oversaw my decorating and menu choices. I made sure we had all the things she always had and my fiance built a beautiful fire in the fireplace for us to open our presents in front of. Mom really enjoyed it and I'm glad we could give her such a happy last Christmas. I'll probably put the tree up sometime this week but right now I'm procrastinating, knowing it's going to be hard emotionally for me to see all her favorite decorations and such. I will also try to do some charity work or at least make some donations in Mom's name for Christmas. Kristina
  12. kristina38

    Thanks Jean and Scooter, I still lurk and post when I get a minute and I'll probably spend more time online when I get my new computer next month. I'll be able to upgrade to cable internet instead of this very slow dial up we have now. I still enjoy this site and helping others with their issues when possible. Jean the recipe is very simple and it's done in the microwave. Simply peel the sweet potatoes, cube them in about 2 inch chunks and put them in a microwave safe dish with a half cup of water and cover with plastic wrap with vent slits. Nuke 'em for about ten to fifteen minutes til they are soft. I use about three large potatoes. Drain them and set aside. Take about 1/2 stick of butter, 1/3 cup firmly packed brown sugar, 2tbsps cinammon, 2 tbsp brandy or cognac, 1/4 tsp ground ginger, 1/2 cup chopped pecans and put them in a microwave safe bowl, nuke for a minute, stir, then for about another 30 seconds til bubbly. Toss the potatoes with the syrup and voila you have a very fast, easy and elegant side dish. Mom found it in a Woman's World weekly magazine about fifteen years ago and has been making it every since. It's one of my favorites and I can eat it for dinner or dessert LOL... Well, must take care of my "children", still have four kittens left and two cats, looks like I'll be keeping them LOL Kristina
  13. kristina38

    Hi all, just a quick update. I'm stilling waiting for the title of the house to be transfered to my name so I can finish this refinancing. I'm hoping the second week in December. I've managed to get some things done but most everything is waiting on probate at this point. The credit life insurance company did pay off Mom and I's new Nissan Murano so at least one thing has gone right and been done quickly. I'm working more but still not back to full time which I will need to do soon. I still miss Mom alot. Thanksgiving was sad without her especially since we had all her favorite foods like brandied sweet potatoes and her most favorite sage sausage stuffing LOL... I remember last year on Thanksgiving day we had a tragedy, my cat escaped the night before and I spent all night walking the neighborhood and woods searching for him. I slept for three hours, got up and searched more. Mom was so upset and sad for me she asked to get up and eat at the table with us when I finally managed to cook our "feast" in my bleary eyed state. It was the first time since she came home on June 29th that she came to the table and ate dinner! I had been spoon feeding her in her bed for the five months prior to that so it was a pretty big deal for us. She never ate another meal in bed after that until she was in the hospital again. We found our cat three days later safe and sound hiding in our woods. I still cry now and then when I think of her but I'm doing much better now. I know she's here with me in my heart and I feel her when I need her most... Kristina
  14. kristina38

    June perhaps in your case this was true but my Mom had a catheter for over a year and we managed to bladder train her again. For the last eight months of her life she used a bedside commode for all her toileting. We did wear depends in case of any leakage or accidents but she did remarkably well. I really think it depends on the actual cause of the incontinence, sometimes it's the meds or simply muscle loss that can be regained via kegel exercises. Mom used kegels to regain control and it WORKED. Kristina
  15. kristina38

    Mottm, I have inherited my Uncle it seems. He's still here but he has been actually helpful these past couple weeks. I think now that there is NO question in his mind who is the head of this household he's going to stay on good behavior. He knows I'm on a hair trigger right now as well so he's been bustling about keeping things tidy and doing just about all the grocery shopping as well. He just had open heart surgery in September but has recovered just about completely. You know they say "only the good die young" and I'm beginning to believe it... Kristina Thanks June, I'm at peace with my decisions and the care that I gave Mom. Her surgeon/wound care physician came to the funeral and we had a long talk. He told me it was a miracle I healed her wounds and made her "whole" again after the stroke and he honestly never thought we would attain that goal. I remember back in December of last year he had told me we should amputate her foot but I refused and continued to work on the wounds to her achilles and told him she needed her foot as she would be walking on it again someday, and you know what? She did walk on that foot again, in May of this year she was walking 50 feet with assistance and walker! Mom and I beat all the odds and I'm ever thankful for that time we had to "do" lunch together (a weekly thing for the past 8 months) go shopping together etc. I wish we could have had more time but everyone wishes that, I'm just glad I was able to give her the best care humanly possible and she knew it and understood the depth of my love for her. Kristina
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