amie_1

Stroke Caregiver - female
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Everything posted by amie_1

  1. Happy Anniversary amie_1!

  2. Happy Anniversary amie_1!

  3. Happy Anniversary amie_1!

  4. Keeping you and Bill in my prayers... hugs Anne
  5. amie_1

    Update on Bill

    Karen Thinking and praying for you and Bill... glad to hear he is tolerating the chemo well. Like Asha said there is no expiration date stamped on us, each day is precious and a gift from God. Sending positive thoughts, strength and grace. Hugs Anne
  6. amie_1

    HOW FAR HAVE WE COME

    You have come a long way Fred and you are such a blessing to me/us here on the stroke board. With God we can do great things Keep on trying and stay positive. We have to see our glass as half full. hugs anne
  7. amie_1

    17th of January

    Happy Birthday.. you have the best present, you have your William... have a great day. Anne
  8. amie_1

    It starts

    my prayers are with you both today, as well as strength, peace. Wisdom for the nurses and doctors. Hugs Anne
  9. Bill and you are in my prayers and heart. Sending healing thoughts and strength. Hugs Anne
  10. Sorry you had to cut your visit short. I hope Ray's foot heals without any more drama for him or you. I know how it feels to look forward to something so much and it doesn't work out... We know where our priorities are, but, as humans we still need time to get over it and "lick our wounds" (no pun intended, lol) Merry Christmas, thinking and praying for you and Ray. Hugs Anne
  11. amie_1

    Christmas Season

    The Christams season is here and I am so blessed that Dave is a survivor and with me. Dave wanted to go to the store a couple days ago to shop, which is a big deal for him, since he doesn't go to the stores anymore. We planned it out and off we went. Got him situated in his wheel chair in the store, flipped his feet rests up so he could motate under his own steam, I stopped to look at something for a minute looked up and he was gone!!! How do you lose a 200 lb man in a wheelchair?? :dribble: I found him only 5 minutes later in the shoe section, had a good laugh, but, he told his mom latter that I had dumped him, she knew he was only teasing. Like I had said, I am blessed that Dave is a survivor, about 3 weeks ago he had another ministroke, he is recovered for the most part from, but there are more memory deficits, some bathroom issues, walking takes more out of him now as well, he is not healthy enough for PT, has never been cleared and won't be cleared for pt from his open heart surgery 3 years ago today. We do what we can at home with that, I get him to walk short short distances in the house and to use the stairs to maybe build up his stamina, well at least to not lose what he has, right!! There is yet another new normal we are adjusting to, it takes some doing but if you are willing it makes the going better. Yup still days that I am frustrated and overwhelmed, but then I go and get a cup of hot chocolate, close my eyes and sip, take a deep breath of all that wonderful yummy flavour and smile. So the waist and butt don't appreciate it, but oh well... lol. Merry Christams everyone and Happy Holidays, Hugs your loved ones tightly for a minute close your eyes and remember how blessed we are. Hugs Anne
  12. amie_1

    Christmas Season

    The Christams season is here and I am so blessed that Dave is a survivor and with me. Dave wanted to go to the store a couple days ago to shop, which is a big deal for him, since he doesn't go to the stores anymore. We planned it out and off we went. Got him situated in his wheel chair in the store, flipped his feet rests up so he could motate under his own steam, I stopped to look at something for a minute looked up and he was gone!!! How do you lose a 200 lb man in a wheelchair?? :dribble: I found him only 5 minutes later in the shoe section, had a good laugh, but, he told his mom latter that I had dumped him, she knew he was only teasing. Like I had said, I am blessed that Dave is a survivor, about 3 weeks ago he had another ministroke, he is recovered for the most part from, but there are more memory deficits, some bathroom issues, walking takes more out of him now as well, he is not healthy enough for PT, has never been cleared and won't be cleared for pt from his open heart surgery 3 years ago today. We do what we can at home with that, I get him to walk short short distances in the house and to use the stairs to maybe build up his stamina, well at least to not lose what he has, right!! There is yet another new normal we are adjusting to, it takes some doing but if you are willing it makes the going better. Yup still days that I am frustrated and overwhelmed, but then I go and get a cup of hot chocolate, close my eyes and sip, take a deep breath of all that wonderful yummy flavour and smile. So the waist and butt don't appreciate it, but oh well... lol. Merry Christams everyone and Happy Holidays, Hugs your loved ones tightly for a minute close your eyes and remember how blessed we are. Hugs Anne
  13. Beautiful story.... thank you for sharing. Will keep you in my prayers. Hugs Anne
  14. Big tight hug for you.... will be praying for Bill and you and his dr's. Anne
  15. amie_1

    Murphy's Wounded And Down

    That is fantastic news.... will keep praying and having faith that all we be well. HUGS Anne
  16. I've experienced the same thing with the virus thing. What free download did you use???
  17. count me in too... you are an amazing woman.... Hugs Anne
  18. count me in too... you are an amazing woman.... Hugs Anne
  19. it was one of those, "extras"... lol anne
  20. thank you Fred..... nice way to start my monday with a positive attitude. hugs Anne
  21. Life is certainly filled with twists and turns in the road. I can only put one foot in front of the other and keep going doing the best for Dave and myself. Some days, yup, it really is tough and you wonder and get bogged down with UNpositive thoughts and hopeless overwhelming feelings. But, we have to shake those off and think of all the positive things and people that we all still have in our life Thank you for the thought provoking blog... you are a wise woman. Hugs and Prayers for you and Ray. Anne
  22. amie_1

    bad day yesterday

    Glad you have your meds again, yes it does make a difference. Hope you got a good nights sleep last nite and are feeling better, I know the heat doesn't help either. Hugs Anne
  23. I am so happy for you.... keep building strength.... it sounds like a real possibility to be dancing with your wife for your birthday... so so excited for you. Keep up the hard work. Hugs Anne
  24. amie_1

    LIFE HAS CHANGED

    HUGS You have certainly had an uphill battle, and, from all accounts you are winning. Keep up the positive attitude, surround yourself with family and friends and be peaceful and happy. You are truly and inspiration to me. Love and Hugs Anne
  25. amie_1

    A new normal?

    Good Morning, beautiful pink and purple sunrise, before the rain starts Since Dave has been home from the hospital, 2 weeks now, it seems like we have a new normal, and not really for the best. His visiting nurse has signed off on him, after his check up x-ray which showed him pneumia has gone.. YIPPEE, so is such a blessing and good news. I know that Dave has been through ALOT with the TIA and pneumia, but, I thought things would be back to normal by now.. silly me. He goes to bed at 6ish pm and I have to get him up at 9am the next morning, that is 15 hours sleep, he stays up for maybe an hour and goes back to bed till I get him up at noon for lunch and pain meds, up for another hour and back to bed till I get up up for dinner and meds, at least then he stay up till 6pm ... I know he is healing... but, he is sleep more now then EVER before. I have a baby monitor that I carry around the house with me so I can hear him. I can't vaccum or anything cause it wakes him up and he is grumpy.. lol. I don't feel like I can go outside (monitor doesn't reach out there) he is sooo tippy with his walking, falls are a real reality. He is confused and repetitive with his questions and statements. He was not like this at all last week, he was up moving and communicating like before his latest hospital stay. I don't know why he has declined in the last week, there have been no more falls or medical incidents since being home. I have talked to his nurse and related all this, she stated it might take him a bit longer to get stronger and heal. I understand this, but, something is not right. His confusion is HORRIBLE, it's not what he does, it is what he says and he walks like an old man that has had too much to drink. My heart breaks for him, and for me... it feels like all I can do is sit and wait (and do laundry, lol)for him to wake and see what he needs. He has lost about another 10 lbs since being home from the hospital, plus the 10 lbs that he lost while in the hospital. Total of 20 lbs in 3weeks... that also has me concerned. He doesn't eat as much as before, but I see what he eats at meal times and snacks, and with him not expending any energy, since all he does is sleep it doesn't make any sense to me. He does have a dr's appt, but, not till first week of July... if things progress like this, it will have to be moved up. Right now I feel like a babysitter... and I hate feeling that way, it is NOT his fault he is sick, damn damn illness, no one asked for it!!! I am usually very upbeat and positive, but, it is almost to much... I need the DAve of last week back please. I don't like the new normal of this week.... I feel useless and impatient and my butt feels like it is getting bigger sitting and waiting, hmmm I hope I don't gain the weight Dave has lost, lol. today is a new day, and I pray and hope he does and feels better.... thanks for listening to my rant.. Hugs Anne