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Julie Craig

Stroke Survivor - female
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About Julie Craig

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    Associate Member
  • Birthday 09/27/1950

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    reading on my kindle!, love my 4 dogs- they are great therapy for me =unconditional love and slobber-kisses- I like to weed, plant+water my secret garden..OOPS! now it's not a secret SHHH!...Finding peace in being a survivor
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  1. Happy Anniversary Julie Craig!

  2. Happy Anniversary Julie Craig!

  3. Julie Craig

    I wore an AFO for 4.5 yrs. I have inversion and foot drop. But my knee is ok and I kept telling my pt folks I didn't think I needed it up to my knee. Of course, they argued and blah. :blah_blah: .. Finally I convinced one of them and an ortho/brace-maker guy to try a shorter brace on me. It works great! It only goes to just above my ankle bone and under my foot. So it's for my two problems and not a generic one they make EVERYONE wear. I am hoping my calf muscle comes back cuz it has atrophied with the bigger brace....I also have numbness on inside of my leg...but NOW my knee is very happy with more freedom of movement + a feeling of usefulness it didn't have in the taller AFO. I think more pt/ortho peeps need to listen to us as individuals and stop thinking of us as a generic group. Sometimes these "fixes" cause more problems...gOD KNOWS WE DON'T NEED ANY MORE!!! they need to see and :yeahrite: treat us as individual patients...and listen to us....dang it!
  4. Julie Craig

    knowledge?=no...personal experience? = yes: I have same urinary incontinence problems. I went to urologist and after some kinda :head_hurts: icky tests...I'm just wimpy, I guess, I came home withthe drug called Enablex.Vesicare hadn't worked before Urologist trip. 4 yrs later I do much better. Far from perfect, but def. better..I kinda funtion now= Am down to 1-3 daytime oops per week. I have to wear Depends at night cuz I just cannot make it fast enuf......But during the day I do pretty good now...Plus I try my durndest to watch the clock and get myself into bathroom every 2 hours. 'spose it's about as good as I'm gonna get and i am thankful for this scenario ....hate having accidents. Especially in public.................ugh!
  5. Yes I have a Pomeranian. Most say they are a one owner pet but mine he loves everyone! I have had him a couple years and he has been so faithful especially through everything lately. He doesn't leave my side anymore, follows me from room to room and if I go with the husband to the store he has to go with haha. They are great pets :)

  6. Hi. Do you have a pomeranian? What are they like to live with? Just curious. :)

  7. Hi. Do you have a pomeranian? What are they like to live with? Just curious. :)

  8. Happy Birthday Julie Craig!

  9. lIKE SO MANY i STRUGGLE W/ BIG SOCIAL EVENTS TOO ... I go to lunch once a month with 4 fellow retired teachers/friends I worked with for 36 years. I enjoy it the first hour or hour .5 ...but then I start getting tired...Love them all, but too much talking puts me on overload. Plus when I'm in a restaurant with them I walk in like a freadAZOID cuz my foor /leg tightens up and I feel tight ALL over. I feel like they kinda watch me thinking I'll fall or to see if I'm improvimng or just out of concern....? It's out of kindness, I know, but it must make my little psychey go nutso, cuz I just can't relax and swing my leg and drop my foot naturally when I feel like they watch me walk..... It's all IN me why I do this.....don't like it..but whatever.......... ya know? ehhhhhhhhhhhhhhhhhhhhhhhhhh life post stroke. :head_hurts: :blah_blah:
  10. Julie Craig

    galpals: :hug: Ya, I work my hand/arm constantly all day long. What I was trying to say above is I'm just not going to beat myself up over my "condition" anymore. I will never "GIVE UP" . In fact I asked to part of the facebook advertised stem cell research trial.... But I was getting to the point that I was feeling guilty because "it" just wasn't happening for me. I felt like I was letting my hubby, kids, family and even myself down..like I wasn't trying hard enuf...I had good insurance and I spent real close to 4 yrs in physical therapy--2-3-4-5 times a week trying reeeeeeeeeeeeeeeeeeeeally hard. driving driving driving, went into moderate debt to try saebo going to 8-9 different places................etc, etc.......... Then late spring this 2011....I decided that I've got to accept myself.and everybody else is just gonna have to accept me like this! I'll keep trying...........but I am NOT GOING TO BEAT MYSELF UP ANYMORE, cuz darn it STROKE SUCKS and this is tough business....seemingly insurmountable odds.......I really need joy, laughter and love in my life. I'll continue to dream the impossiblr dream, but not at the expense of my self esteem and fellings of self-worth with my life. I'm not going to let it defeat me, but I'm also not going to let it make me unhappy either!
  11. Julie Craig

    I'm 4 yrs. post-stroke. I try to use my arm when I can in my daily routine. Every once in a while it seems like some ittsy-bitsy-tiny-little movement gets a little easier/stronger. I compare it to a baby learning to use his/her arm/hand/fingers. They work on that about 10-18 hours a day for two+ yrs. and then they get pretty good at it. = well over 700 hrs of constantly trying to a. program their brain b. move something that seldom responds at all.I admire the little munchkins, but I'm an adult. I figure ,heck, I'm waaaaaaaaaaaaaaaaaay NOT patient enuf for that. I'm 61 yrs. old...I gotta get on with my life. I can't waste the time I have left on this planet worrying about my arm/hand/fingers or worse being frustrated or sad or disappointed or upset.....so for me..........I'm just gonna go with the flow...it is what is it is................I'm jut sayin'! acuna matadah...... It's just O-N-E opinion, and probably not a correct one or a :nuhuh: popular one. :oops: :secret: :blush:
  12. Julie Craig

    thanx, Kelli....I feel better already......................
  13. Julie Craig

    I like this topic. I'm happy in a distorted weird way to shout out how much I miss cute shoes and carrying a cute purse! This really cramps MY style..speaking of style elastic waists that are easy to pull up are NOT attractive...so add cute clothes and feeling like I look at least a little bit stylish and cute...oh add..hairstyle I can do...gosh this could go on and onnnnnnnnnnnnnnn...gosh I sound so nauseatingly vain...when vanity for me went O-U-T the door on June 17,2007....and being alive and somewhat functiong became MY normal.................. :blah_blah: :blah_blah: :blah_blah: :blah_blah: :blah_blah: :blah_blah: :blah_blah: whatevvvvvvvvvvvvver :head_hurts:
  14. Julie Craig

    I have used both. The Saebo is NOT a brace that you wear all day. It is cumbersome and delicate to adjust to your fingertips. It is custom fit for you to wear for an hour or two at a time to ...wellllllllll???????????? I used it w/ a OT therapist who had me picking up the Saebo balls for hours a day. Then when my fingers got tired...more like exhausted I'd have about 10-20 minutes of "down"-time where i could pick uup quarters sitting in rice or little wood blocks. After 3 weeks of working with the Saebo splint for 7 hours a day 5 days a week.............................I was sick of picking up balls and did not see any relevance or improvement to my hand. Absolutely loved my therapist--he was great.but the SAEBO is no "solution" to your dilemma , in my opinionb. Wish you the best.....maybe it'll work for you? The saebo is verrry expensive + the therapy is toooooooooo... I went into debt for $5,000 to do it...not wise. I was looking for that magic fairy dust.....Saebo wasn't "it" no fairy dust there..stim thingies are about same. Good Luck...let ME know if you find any fairy dust, huh? :Clap-Hands: :forgive_me?: :laughbounce: :blah_blah:
  15. I used to show dogs. I showed and bred golden retrievers for over 16 yrs. Had kids and dabbled with shows with a beautiful dobie. How can you continue w/ shos now? I cannot use my left arm or open my hand on command. Cheers! Julie