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I just read on this board where a partner was having a hard time getting SSI. I to am unable to get on

 

it. I had help from the state through a special prgram where i had help 3 days a week,

 

but they DC that program. I had a stroke caused by a bleed in 1995. I was 46. I tried to get

 

SSI for my disability. Can't woark. I have right side all back but lower leg is still partially paralyzed. Wear a brace & walk w/ cane. Kept lady to clean once a week. She does sll hard cleaning & changes

sheets. Can drive locally in day in small town with left foot gas pedal. (don't get me near a freeeway

else I'm up a creek w/ out a padal) :uhm: Is there anyone out there that can help with this issue. My husband

finally found an insuarance that would take me but high risk program and does not cover anything

that has to do w/ prior condition. Just went up to almost $400 a month. And thats w/ high deductible.

I've accepted & given to the Lord. Don't want to trust in the system but if I can get on any

disability that would help. Problems is husband makes to much money. My bleed was in executive

part of brain so lost all organization skills, reading books, short term memory, among other things.

I am thankful for what I do have but if there's a way I can get on SSI I'll try. Thanks for your help in this matter. Have a great day! Nancy

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Hi Folks...

 

You know....this question, modified by a particular situation, is something that a survivor, maybe all survivors, is going to be faced with at one time or another...

 

I'm not even sure if it can be a single topic......maybe a lotta complexity....

 

Think this would be a great topic for the monthly newsletter....a Faq sheet ot whatever.....

 

I'll be honest....I probably am going to have apply in the near future...

 

Now....I know none of this helps Nancy out.....believe me.....if I had any kinda answer, I'd share it...

 

Thought I'd bump it up....

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Stroke survivors can share many, many stories re SSI. I was one of the lucky ones who got it the first time around. If you have any questions, be sure to post. There is someone who will have an answer or experience for you.

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Me too; one of the lucky ones. It makes me nauseated to think that survivors can't get accepted, when others - the undeserving ones - abuse the system.

 

Susan :Scratch-Head:

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Nancy: seeing as you haven't applied for SSDI yet, State programs will have trouble establishing your eligibility. I'd simultaneously apply for SSDI and apply for Washington's health insurance for the medically needy with spendown for the disabled: https://fortress.wa.gov/dshs/f2ws03esaapps/.../abdmedical.asp All they can do is say no.

 

I was in a similar position - my Husband makes good money, but we were caught off guard by the loss of my income. We just tightened our belt and have learned to live on one income.

 

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nancy,

 

the issues of both ssi and ssdi have been discussed here a number of times. i have worked with the social security agency (ssa) helping constituents due to my job in a congressional office. social security reform is desperately needed. you really should apply for ssdi as soon as you can. be sure you have a good, complete file of your medical records and work closely with your own physician(s) rather than be subjected to a medical exam by a physician of ssa's choosing. if you are not satisfied with the service from ssa, then you have the option to seek assistance from your congressional delegation.

here's the link to an ssdi issue discussed here as an example --

http://www.strokeboard.net/index.php?showtopic=9210

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Social Security Disability Insurance qualification is not related to income. It is related to disability. You should apply for SSDI if you worked prior to your stroke and are unable to go back to work. Remember that Medicare insurance will not begin until two years after your first SSDI check. At first I thought it was two years after your disabling event, but then I reread the information and realized it is two years after you have received your first benefit check.

 

If you were turned down for SSDI due to family income, you may be interested in this site:

 

http://www.social-security-disability.tv/d...rmination.shtml

 

Good luck.

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Nancy,

 

by all means contact your US congresspersons! i spent 18 mos fighting SSI, almost lost my home; I actually had one counsler state that since I wasn't blinded by the stroke I wasn't disabled & hung-up on me! my congressman had me approved in 6 wks! DO NOT go to an attorney...they will receive a large amount of your money BEFORE you receive your first check. Let your congressperson do the work..they all have specialists on staff, & they're elected to help we the citizens! Also, if you're fortunate as I was, my medicare started immediately because it had been almost 2yrs since my stroke.

 

Good luck!

 

LisaGay :)

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i will agree that going to the member of congress from your respective state does help a lot and you do get results because of the congressional inquiry but you need to show that you made an effort on your own. most federal agencies are required to respond in a timely manner.
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Thank you all for your responses....I surely thank you all!!!!!

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Hi Farrell,

 

All I can say is just be real aggressive and apply again and if you do get turned down you can appeal. Just do not let them tell you no. Go fight. Best of luck.

 

Bob Miller

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Guest DianneD

May I tag on here and ask a question about this? My stroke did not leave me paralyzed or physically disabled, except for profound weakness in my legs. What it DID do was take away my ability to care for my parents (my only employment for 8 years) and my ability to remember ANYTHING! I have to write everything down and then HOPE I think to look in the notebooks that are my lifeline at this point. Does SSDI consider those things disabilities? I haven't applied because I wasn't paid for my caregiving, so on their books, I haven't worked in 8 years.......and it looks like I want to get paid for doing nothing. Believe me, if I could remember anything, I would be back in the work force SO fast it would make your head spin. Prior to the stroke, I had two places (one a doctor's office, the other a senior center) tell me that if I ever decided to give up caregiving, they would hire me in an instant. However, post stroke, I cannot do even a basic Excel program or remember where I put a letter, and my stamina is somewhere between 1 and 2 hours and then I have to lie down and sleep. Not exactly workforce material.

 

And to Nancy......remember, you have worked and paid into this system all your life.......you are not asking for something that is unreasonable; you have been injured in a way that prevents you from supporting yourself and you need to access the system that was set up for just this kind of event. I think the suggestions here have been brilliant!!

 

Dianne

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