Phoenis Posted August 29, 2011 Share Posted August 29, 2011 i think for me it was driving. i was told i shouldn't be driving for another six months. but at least i have the short bus to take me to appointments and stuff. Link to comment Share on other sites More sharing options...
mcdube Posted August 29, 2011 Share Posted August 29, 2011 Hi Phoenis, For me it was and still is wearing heels. I no longer wear dresses because I cant wear heels. driving was important also but Im one of the lucky ones, I went back to driving a few months post. Don`t give up hope, you will be on the road soon. mc Link to comment Share on other sites More sharing options...
becky1 Posted August 29, 2011 Share Posted August 29, 2011 I think that,for me, it isn't any ONE thing-it's anything associated with being INDEPENDENT! Oh, to go to pee at night without waking my husband so he can help me. Need something from the store? GO GET IT. you get the picture, I think. Becky Link to comment Share on other sites More sharing options...
anna2 Posted August 29, 2011 Share Posted August 29, 2011 for me it was being the CXO of the family. Going from being the driver to passenger hasn't been easy, though I've got the most wonderful, supportive family, always loving and patient to a fault. Link to comment Share on other sites More sharing options...
smarshall Posted August 29, 2011 Share Posted August 29, 2011 I'm with Becky - anything to do with independence. Susan Link to comment Share on other sites More sharing options...
Glenn Posted August 29, 2011 Share Posted August 29, 2011 I sure do miss the use of my left hand. Have you noticed how everything is made for two handed people. Glenn Link to comment Share on other sites More sharing options...
lharrison Posted August 30, 2011 Share Posted August 30, 2011 NI PHoenis, well i miss alot of things that i can"t seem to do now like no independence bot able to drive, and of coarse not able to run so i can start training for a marathon but i still haven"t giving up on the things that i miss it just encourage mne to keep on moving forever up and better all the time all that you miss you shoukld be setting a goal to achieve just that, the more the better, all the best to you in your recovery and in reaching your goal Link to comment Share on other sites More sharing options...
fking Posted August 30, 2011 Share Posted August 30, 2011 Well, for me it was my ability to drill bowling balls and operate my Pro Shop in the bowling center. That's what I missed the most early on cause I had to sell out once I got out the hospital.Then I discovered I would not be walking no time soon! :big_grin: Fred! Link to comment Share on other sites More sharing options...
HostLinda Posted August 30, 2011 Share Posted August 30, 2011 For me it was several things. My speech/language issues along with aphasia is a BIGGIE. Then having the seizures which i decided not to drive anymore and let my roommates do the driving. I miss not driving my own Camry. And, I miss not working. hostlinda Link to comment Share on other sites More sharing options...
Pwilson18 Posted August 30, 2011 Share Posted August 30, 2011 I MISS SO MANY THINGS..... DRIVING, SANDALS, TWEE-ZING, NOT LOSING MY BALANCE, NOT HAVING DOUBLE VISION , OR NOT HAVING MY HEAD MESSED UP..... PATTY Link to comment Share on other sites More sharing options...
rbm Posted August 30, 2011 Share Posted August 30, 2011 I think I miss driving the most at least I'm stuck at home maybe thats it. Link to comment Share on other sites More sharing options...
kanderson Posted August 30, 2011 Share Posted August 30, 2011 i agree with the others, my independence. up and go when i please, working, i enjoyed my job. driving was not a big thing for me because i didn't trust my reaction time anymore. i like being chauffeured around for the most part, LOL it is what it is. taking a bath,not showers all the time. Link to comment Share on other sites More sharing options...
Julie Craig Posted August 30, 2011 Share Posted August 30, 2011 I like this topic. I'm happy in a distorted weird way to shout out how much I miss cute shoes and carrying a cute purse! This really cramps MY style..speaking of style elastic waists that are easy to pull up are NOT attractive...so add cute clothes and feeling like I look at least a little bit stylish and cute...oh add..hairstyle I can do...gosh this could go on and onnnnnnnnnnnnnnn...gosh I sound so nauseatingly vain...when vanity for me went O-U-T the door on June 17,2007....and being alive and somewhat functiong became MY normal.................. :blah_blah: :blah_blah: :blah_blah: :blah_blah: :blah_blah: :blah_blah: :blah_blah: whatevvvvvvvvvvvvver :head_hurts: Link to comment Share on other sites More sharing options...
ksmith Posted August 30, 2011 Share Posted August 30, 2011 I like this topic. I'm happy in a distorted weird way to shout out how much I miss cute shoes and carrying a cute purse! This really cramps MY style..speaking of style elastic waists that are easy to pull up are NOT attractive...so add cute clothes and feeling like I look at least a little bit stylish and cute...oh add..hairstyle I can do...gosh this could go on and onnnnnnnnnnnnnnn...gosh I sound so nauseatingly vain...when vanity for me went O-U-T the door on June 17,2007....and being alive and somewhat functiong became MY normal.................. :blah_blah: :blah_blah: :blah_blah: :blah_blah: :blah_blah: :blah_blah: :blah_blah: whatevvvvvvvvvvvvver :head_hurts: I totally agree. Mine was 2/24/09 I'm still vain regardless... ( blushes) Link to comment Share on other sites More sharing options...
Julie Craig Posted August 31, 2011 Share Posted August 31, 2011 thanx, Kelli....I feel better already...................... Link to comment Share on other sites More sharing options...
Guest Posted October 1, 2011 Share Posted October 1, 2011 Playing Piano and guitar and singing. I use to do it professionally and it was my main coping 'tool'. but while I can move my hands and arms I have no control in them and haven't lung capacity for singing. So close, but so far away. Link to comment Share on other sites More sharing options...
Guest furiawill Posted October 1, 2011 Share Posted October 1, 2011 I like this topic. I'm happy in a distorted weird way to shout out how much I miss cute shoes and carrying a cute purse! This really cramps MY style..speaking of style elastic waists that are easy to pull up are NOT attractive...so add cute clothes and feeling like I look at least a little bit stylish and cute...oh add..hairstyle I can do...gosh this could go on and onnnnnnnnnnnnnnn...gosh I sound so nauseatingly vain...when vanity for me went O-U-T the door on June 17,2007....and being alive and somewhat functiong became MY normal.................. :blah_blah: :blah_blah: :blah_blah: :blah_blah: :blah_blah: :blah_blah: :blah_blah: whatevvvvvvvvvvvvver :head_hurts: I AGREE. FOR ME, THERE IS NO VANITY IN MY FAMILY, I HAVE IT ALL. HOPE YOU ARE HAVING THE BEST OF DAYS. -WILL Link to comment Share on other sites More sharing options...
leese Posted October 3, 2011 Share Posted October 3, 2011 Singing. I lost my diaphragm muscle control. Singing was a lifetime way to comfort myself and I could really use it right now. I also miss taking walks. It's nearly 2 years post stroke and although I can walk independently, I do it neither well nor over anything but smooth surfaces. I 'll get there eventually. I also miss my arm and hand working... and everything they used to do for me. I'm not sure what of those I miss most. It's possible I miss the feeling of freedom and independence the most.. The invulnerability of good health prior to random life changing events. So, I miss my naiveté I suppose. Link to comment Share on other sites More sharing options...
leese Posted October 3, 2011 Share Posted October 3, 2011 I like this topic. I'm happy in a distorted weird way to shout out how much I miss cute shoes and carrying a cute purse! This really cramps MY style..speaking of style elastic waists that are easy to pull up are NOT attractive...so add cute clothes and feeling like I look at least a little bit stylish and cute...oh add..hairstyle I can do...gosh this could go on and onnnnnnnnnnnnnnn...gosh I sound so nauseatingly vain...when vanity for me went O-U-T the door on June 17,2007....and being alive and somewhat functiong became MY normal.................. whatevvvvvvvvvvvvver Oh, that's good to hear! I'm not alone. I always feel so shallow when I complain about my hair. I can't take care of it like I used to and it's suffered... and yes.. the stretchy pants and the shoes I love gathering dust in the closet... and how my figure has changed without the core muscle holding everything up... and yes, purses... now I use light sling, easy one hand access while the creamy leather ones sit by the shoes. Oh, and bras...and no dresses or skirts. And jewelry. I only wear the earrings I can put on myself. Strokes suck. Link to comment Share on other sites More sharing options...
doreen payne Posted October 16, 2011 Share Posted October 16, 2011 being able to walk more then a block without pain, doing my own shopping, being able to cook, there is so many more things I am grateful that Steffi my daughter (20) does lots of things for me Link to comment Share on other sites More sharing options...
beanna Posted October 16, 2011 Share Posted October 16, 2011 I hate the loss of independence and sense of self. Cannot fix hair properly, so I get really cute wigs--get lots of compliments. Love shoes and am trying out low heels with flex soles and a thicker heel. Elastic waist pants-- I got some from Soft Surroundings that are very stylish also Chicos have some with zippers that stretch enough to pull up without undoing as well as their travelers collection.I know it seems silly, but I think it's important to help us feel more ourselves. I drive around town and places nearby, but I was used to taking off by myself for a 300 mile drive to Maryland and our 2nd home-- well maybe someday. (And I wouldn't have said that a year ago.) I fasten my bra ahead of time and step into it and pull it up. I think if you want to wear a dress or skirt, do it. Put on artificial tan and/or use thigh hi's--buy one size larger than needed and they pull up well-- I like Hanes.In addition to my left hand not working properly I have dysarthria-- and I love to talk! LOL! Now it wears me out to go to lunch and eat and visit, but I do it. And of course playing the piano is out, except with one hand. But I will keep trying. I haven't given up on my left hand. My stroke was 7/9/10. I read the comment about core muscles and wondered because I noticd a difference there post stroke as well as change in my neck and under the chin, but when I asked about it I was told stroke did not cause this although it was different the hour before stroke. Any how all we can do is try our best and make adaptations as needed. Whew, that's a lot of work sometimes. Bev Link to comment Share on other sites More sharing options...
dreinke Posted October 17, 2011 Share Posted October 17, 2011 Playing the saxophone, not that I was any good at it. Spasticity really sucks. Link to comment Share on other sites More sharing options...
littlemija Posted October 19, 2011 Share Posted October 19, 2011 Just about everything about my life has changed, there are too many things I miss to list, but I'm learning to adapt. I'm really just happy to be alive & able to do what I can. Just keep trying never give up & adapt your lifestyle when needed.... Link to comment Share on other sites More sharing options...
HostBruce Posted October 21, 2011 Share Posted October 21, 2011 I drove for awhile after my first stroke. I had to get the car fixed but by then I got use to things farily well. I had to get a left pedell foot extenstion on the car, and two contact lensen on the car too. Once I got thoughs on the car I had no problem with getting my license. But then in 2010 Sept. 20th I had a auerism surgery my blood preasuer dropped and caused me to have a spinal colum stroke. So I'm parlized from the wasit down. Bruce Schwentker Link to comment Share on other sites More sharing options...
maree Posted October 22, 2011 Share Posted October 22, 2011 I sure do miss the use of my left hand. Have you noticed how everything is made for two handed people. Glenn Hi Glenn, I lost the use of my RIGHT side. Yes, most things are made for two handed people, but, EVERYTHING in life is geared toward a right handed person. I would love to be able to shake hands, normally, and therefore be given the ordinary respect reserved for the able bodied. Link to comment Share on other sites More sharing options...
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