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MaureenAnn

dysarthia

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i suffer from dysarthia, my left vocal chord is parralyzed and I haven't had a conversation with anyone in over 6 years. I type my words on the computer screen. I carry a pen and paper constantly. On the bright side, I'm going to a new SLP next week! I feel so lonely because of this. My stroke was ischemic and left me stuck in a powerchair. Other than being able to talk, walk, or use my left arm, life is great! At least I can write.

MaureenAnn

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Hi Maureen Ann and welcome. I'm very sorry that your stroke affected you so greatly. My stroke was less than a year ago and it only affected me physically. I have a little weakness and clumsiness on my left side, but that's about it. Well, except for the spasticity that struck my leg, arm, and chest a few months ago. But I wasn't affected cognitively and my speech wasn't affected either. I didn't realize how lucky I was until months after my stroke when I began reading posts on this site about how others have been affected. I hope that you make friends here and find some relief from your isolation. I can imagine that would be as bad as any of the other damages that a stroke can bring. I look forward to seeing you around the board.

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Welcome MaureenAnn,

 

You got a good point there! We all should be thankful we are still here to be with our loved ones and we will always find a way to get our point across!! My case it was a brain bleed but I survived and use a scooter and got my wife by my side!! I prayed in my five month stay in the hospital to God just let me live and keep my wife!!!

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welcome maurene anne ----- i'm glad to have you here- we all are!!! - i caretake for my husband who is greatley affected cognitivley and physically - his rt arm is non functional and his rt leg he walks with a quad cane..also his stomach is partially paralyzed.... I love your outlook my husband could use a good dose of your attitude... but i am not in his shoes, however when his attitude stinks i do get "kicked" by his shoes ( figurativly speaking)....keep coming back and posting love to hear from you..nancyl

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hii,Maureen, I'm Becky, and a hemorrhagic stroke survivor of 5 yrs. I, too, have dysarthria. I had to be taught to talk again. 3 speech therapists later, I am still difficult to undertand sometimes. but I will repeat if asked. People who have not seen me in awhile tell me that I'm easier to understand. Iam also ina w/c, but have recently renewed my efforts to walk. I'm not holdiing my breath, but, so far, so good. Don't ever give up; you just neever know..

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Hi MaureenAnn and welcome! You will certainly never be lonely here, as you can come and visit as often as you want and "talk" to all of us thru your writing. Sounds like you have a great attitude and that is so important to have in our recovery. I hope that the new SLP has some suggestions or tools that will help you. Good luck and look forward to seeing you on this site often! Please do let us know how your visit goes next week.

 

Dena

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Hi Maureen Ann, welcome to the site. I understand that most time it is a lot quicker to say something than to type or write it. I feel for you. At least you are still communicating and that is worth a lot. I am thinking of those survivors who are locked in and can not communicate at all. Look around you, you will always see some people who are worse off than we are. For that we are thankful. Have you seen those communication boards with pictures, you can just point at. Those are really cool and they would be a great xmas gift for you. Here is some reading to start you off on your road to recovery. All the best to you.

 

mc

 

A survivor's Bill of Rights

 

http://www.strokeboard.net/index.php?showtopic=2094

 

The Five Stages of Grief

 

http://www.strokeboard.net/index.php?showtopic=857

 

A Letter From Your Brain

 

http://www.strokeboard.net/index.php?showtopic=83

 

Classic Postings and Advice

 

http://www.strokeboard.net/index.php?showforum=23

 

misc. info

 

http://www.ehealthmd.com/library/stroke/stroke_recovery.html

 

 

Caregivers’ Bill of Rights

 

http://www.strokeboard.net/index.php?showtopic=781

 

Caregivers’ handbook

 

http://www.strokecar...rg/handbook.htm.

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Guest hostwill

Hi Maureen Ann, welcome to the site. I understand that most time it is a lot quicker to say something than to type or write it. I feel for you. At least you are still communicating and that is worth a lot. I am thinking of those survivors who are locked in and can not communicate at all. Look around you, you will always see some people who are worse off than we are. For that we are thankful. Have you seen those communication boards with pictures, you can just point at. Those are really cool and they would be a great xmas gift for you. Here is some reading to start you off on your road to recovery. All the best to you.

 

mc

 

A survivor's Bill of Rights

 

http://www.strokeboa...?showtopic=2094

 

The Five Stages of Grief

 

http://www.strokeboa...p?showtopic=857

 

A Letter From Your Brain

 

http://www.strokeboa...hp?showtopic=83

 

Classic Postings and Advice

 

http://www.strokeboa...hp?showforum=23

 

misc. info

 

http://www.ehealthmd...e_recovery.html

 

 

Caregivers’ Bill of Rights

 

http://www.strokeboa...p?showtopic=781

 

Caregivers’ handbook

 

http://www.strokecar...g/handbook.htm.

WELCOME MAUREEN I HOPE TO SEE YOU IN THE CHAT ROOMS SOMETIME. WELCOME ABOARD!

 

-hOSTwILL

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Hi there. We have a gentleman with the similar problem as you. He too can't speak . I have partial dysarthia as well as Aphasia. I, too, carry around a note pad for I have a hard time with retrieving words. I'm very glad you are able to write things down. One person I know with the same problem can't write and I couldn't imagine how upsetting that is.

I'm glad you have a great attitude with this. You're my sunny day :)

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Hi Maureen

Welcome to the world of what????

You are far from alone around here. Not only is our CEO completely dysarthic and only effectively able to communicate through a computer, I am as well, however not as severely. If there is any background noise I can't be heard. The joke at my house is that I text to the kitchen from the living room. My kids would rather attribute my never raising my voice to their being so angelic.~ like that's true.

You will have plenty of warm, friendly people to shoot the breeze with here. Daily chat is a nice way to socialize without needing to speak.

 

Hope to see you there.

 

((((((hugs))))))

 

Maria

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Hi mooreen i was is hemic also and my main problem is my speaking i couldnt imagine not to speak at all.

On here it its hard to hear who also has a speach disorder and somtimes feel isolated still.

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