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schuang74

when is it "too late for rehab?"

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Deigh   

Happy birthday Nancy......

Deigh:wine:

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I am at my 3 yr anniversary mark and I have regained much but I have more to work on so I continue therapy. Believe.

 

I am here today at rehab. still working because so much improved for me over these years.  keep working. it is worth the trouble. It is hope in the Do. an action can bring mood change and  abilities too.

 

 

And being at fun places.

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5 hours ago, SassyBetsy said:

I am at my 3 yr anniversary mark and I have regained much but I have more to work on so I continue therapy. Believe.

 

I am here today at rehab. still working because so much improved for me over these years.  keep working. it is worth the trouble. It is hope in the Do. an action can bring mood change and  abilities too.

 

 

And being at fun places.

 good for you.. progress whether it be slow is still progress!!

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I would say never give up on therapy or progress. I spoke to another stroke survivor while at Kessler institute who told me he regained use of his left arm several years after not being able to use it at all. 

 

It took a dire incident to make it happen. He was driving with his right hand then was distracted one day on the highway doing something with his good right hand and realized he was drifting and about to collide with a car in the shoulder and somehow grabbed the wheel with his inoperable left hand in this panic situation. After that he experienced a miraculous use of his left hand because of that incident. Again that was like 3 years post stroke so you never should give up hope or not continue to work at it.

 

Never say never as has been stated many times by others.

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Always have seen a stroke like a train track of neurons that got off track and the train got derailed.  If you do not do the rehab exercise to keep track repairs moving along as well as the muscles strength where possible, these miracles might happen more often.  When you have a sudden connection, you want the repairs to have been continuous.  Your story, ufusco, shows this loud and clear regarding your friend.  Well worth noting this body miracle and the prior repair work  for him to get that miracle.  How exciting for him.

Kelli, almost did not recognize you.  So glad you are doing well.

Fred, they lost your identity and I miss your picture and your advanced recuperation details.

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I find what I'm prepared to do rehab wise depends on my frame of mind.

 

Which depends on how messy my house is.  It depends on how many appointments I have that week.  It depends on what work shifts my husband is doing, is it school holidays or not....

 

A lot of the time my stroke takes the back seat...

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I, personally, have given up and wait to seek miracles now.  Too tired to try anymore.  Walking gets further and further odd, especially when I have to wear shoes. Just call me the barefoot contessa.    People just look at me now when I am in shoes and step asside.  I imagine they think I have leprecy.  Is that a symptom of such a disorder?  Or has a stroke become contagious?   The one thing with age is I no longer give a ****.  I no longer think the docs or specialist are really wanting to make it better if my brain is too complicated for their minds.

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Hi,  I had a stroke in the Cerebellum and I have difficulty walking and keeping balance but it is getting better.  Let me tell you the weird thing that happened to me. (rereading that sounds like that bad click bait we all hate) 

 

I walk around a small track with a bar that circles the entire track at our older persons center.  It is like 1/8 mile.  But I would hold on and practice going from doing only 1 lap in 10 minutes and being totally exausted to now a mile, 18 laps, in 20-30 min depending on my day.  I now walk with hiking poles around our neighborhood and not needing the bar like I did at beginning. 

 

I was walking around the track and tried to improve but one day it was very very loud in there.  They play basketball in center lower level.  I had brought my mp3 player but never really used it but that day I turned it on while I was walking.  I was going around my unbalanced normal way, but when a song came on with a solid beat I would start to walk better.  Was finally able to let go for a little while, not a lot yet, but my brain functions better with the extra beat hitting the ears.   I have found several songs that work for me that I put into a playlist.


Now I don't know if that will work for you, but my daughter a neuro rehab nurse tells me about the sound energy helping people out in odd ways.  Hope this gives you an idea or to try something that just seems weird and may help you.  God bless you.

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stopping and praying for a miracle reminds me of an old joke.

 

A guy prays to God and asks to win the lotto.

The drawing happens and he didn't win.

He asks God again, he didn't win again.  This goes on for a while.

 

Finally he is asking one last.   "God please let me win the lotto"

God responds - "Meet me half way, buy a ticket." :smile:

 

 

 

 

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20 hours ago, GreenQueen said:

I find what I'm prepared to do rehab wise depends on my frame of mind.

 

Which depends on how messy my house is.  It depends on how many appointments I have that week.  It depends on what work shifts my husband is doing, is it school holidays or not....

 

A lot of the time my stroke takes the back seat...

Hi GreenQueen - do what I do.  Appointments, shopping, cooking, etc - I have defined that all, ALL are part of my therapy.  I feel much better that way. 

 

In fact for me just bending over to load the dishwasher is the same thing they make me do in PT.  So it counts.  Have a great day!  And don't forget you got your PT done today.

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Very good point!!

 

I get to the stage every now and again that I stop rehab for a while. I just want no reminders of This.

 

But you are right.  Life IS rehab!!

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Such great ideas and I will take heed and hope everyone else reads  all your ideas to help with motivation.  After all, we are a special elite club with empathy to understand how to appreciate what we used to take for granted.  Guess I got a lot of rehab done today.  Just taking out a huge, heavy bag of garbage must count and the cans they make us go a block away.  Then I do ride an exercise bike at least 10 minutes or more a day, unloaded and loaded a dishwasher, make meals in a large kitchen and when I go outside I live in a three story house, so just coming down for morning is work and going outside and coming back in with all these stairs  thanks goodness for my son who put in really nice, sturdy oak handrails on all levels.  Guess it is great to make a gratitude list just by reading all your entries to each other.  Thanks for the boost!panda-lol.gif.8a61089d3b565a420f58b7fa26a3c0c3.gif

 

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7 hours ago, stockflyer said:

when a song came on with a solid beat I would start to walk better.  Was finally able to let go for a little while, not a lot yet, but my brain functions better with the extra beat hitting the ears.   I have found several songs that work for me that I put into a playlist.

 

Hi John (I just went to your profile to learn your first name)....You've given a lot of great advice, including the use of music.  Music with a fast beat does so much for me; gets rid of any sluggish feelings....it helps physically and mentally.   I Love Music Smiley Face, Emoticon

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Oliver Sacks a neurologist wrote a book about music. Musicophilia is the title. Interesting read.

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Hi Betsy, Very interesting. Checked and my library actually has it.  Will work to get it in a few days. 

John

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Did everyone get some therapy done today?

I didn't get much, very exhausted today.  Only loaded dishwasher, cleaned up a little, and did a little reading.  After that it was just vegging.  Hopefully tomorrow is better.

Yesterday was much better.  Worked in garden, did all dishes, and put away, cooked and did a few other small things.

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I got some therapy done today. Got home from holiday so unpacking and washing has been my workout. Also lots of sitting at computer catching up, which I think of as brain therapy, just as important as PT.

 

The benefit of walking with a beat is not new and "Stronger After Stroke" also recommends this.  A similar trick that my trainer uses when she wants to stop me overthinking my walking is to make me count out loud in odd patterns eg by 3s (3,6,9,12,15,...) or backwards in 4s from 100 (100,96,92,88,84,80,...). By doing this the autonomic functions have to take over the physical function as the brain is busy with the other task. It only works once you have a certain level of function so do it with caution, but I'm always surprised at how much better I walk when she does this to me.
 

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Sounds great, this counting.  I will give it a try.  I now snap my fingers but arthritis makes that harder to do lately.  I do try to have a song in my mind when in a troublesome area.  Hope you had a great vacation.  What wonderful place did you go?

 

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Hi Heathber,

 

Good job.  I too try to sit in front of my computer doing things.  I put papers out on both sides of the computer and twist back and forth getting a neuro workout. While I work at computer.  At the beginning very hard and couldn't do it for more than 5-10 min.  Now I can keep it up for about an hour.  But I am fully exhausted after that and must rest the rest of the day.  I am still finding trying to do patterns like counting very hard, even when I am sitting.  But a little progress is very rewarding. 

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Hi John, I too took a long time to get my computer stamina up. It was important as my work is nearly all computer based.  It took nearly 2 years but I got back to full time work mostly in the office with it's many distractions.  I still do one day a week from home as not having to be office presentable and not having the extra distractions makes a huge difference to how exhausted I am by the end of the week.

 

Marcia I'll do a blog about the holiday rather than hijacking this thread. ( hopefully this coming weekend) short version New York City and Bermuda via cruise ship.

-Heather

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QUICK ANSWER:  It is never too late. Take every opportunity. Progress is very slooooooooow for everyone and takes an amazing amount of patience.. Each individual is unique. Each stroke is different. There is no one size fits all. And each therapist and therapy session is different. I get frustrated when I see someone who has made more progress than me but when I looked at the MRI of my own brain and saw the size of the damaged area I thought OMG. It is a wonder I can do anything. It is only as I look back on those first weeks and months can I recognize just how far I have come.

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Pearl, this was good message.  It really does pay to see the damage in the brain so you can focus on that spot to heal and also to get a semblance of the realisty of the situation.  I can see it now an it was recently MRId and it has tno shrunk but my nerves tried to get around the area but there is still work to be done.  Our brain is remarkable as all of you know so well.  thanks, Pearls.

 

Heather, I do not know how to do a blog.  I am actually getting computer phobic so have to table even being on the computer beyond the eaiils and my work notes I have to do each week and insurane companies demansds.  I am getting obsolete by the computer changes all the time.  I am such a creature of habit.  Just paying bills on line cause not only me but those who need to correct their errors admittedly do not understand.  Just happened yesterday when a check I wrote in May just was processsed this week.  The banker could not solve how to check the old statements.  So it is not just the feeble stroke victims..haha  We need to keep this people on their toes.

 

We need to keep rehab/physical therapy even in our minds and daily life needs.  At least I do or I get slack.  I hope someay they do another MRI and my brain has expanded and reversed all defecits.   Eating right, physical movement and places like this forum helps that immensely.

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Marcia a blog is easy here's the link http://www.strokeboard.net/index.php?/blogs/  Once you get to this page select "create a new blog" which is like creating a new topic in the forums, you give it a name and define who can see it. Once you have your blog created you use the "Add new entry"  button to add a new update. And if you've allowed it people can respond to your blog like they do to the forum posts.

 

 

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