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ishack1956

Newbie living in Malaysia

14 posts in this topic

Hello everyone, I actually had two strokes. But I didn't realize that it was a stroke the first because the symptoms went away within 30 minutes. But I wasn't so lucky the 2nd time. I'm originally from the US, but moved to Malaysia about 3 years ago.

 

I was really stupid when I had my stroke because I was in Bali at the time, but waited until I got back Malaysia to have my wife take me to the hospital. Thus about 12 hours passed from when I had the stroke and got treatment. Luckily it was pretty minor as strokes go, however recovery has stopped after the first week. 

 

I can't write or type (teach electrical and computer engineering, so two important skills in order for me to go back to work full-time). Can't work more than 200-300 yards without being completely exhausted, actually just eating is enough to wear me out since my right hand/arm doesn't work too well. I have major issues with balance, so can't ride my Vespa. I was also advised not to drive yet (still have my license, however my wife refuses to let me drive). My walking is not good and it doesn't take much for me trip (my biggest concern), but don't require a cane most of the time.

 

The cause of the stroke was a reaction to hormone replacement therapy, I had a very high RBC making ,y blood thick and easily clotted. 

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Greetings and welcome to the exclusive club no one wants to join. I also lost my typing skills and as a network security specialist that was traumatic but as you can see, I type now if slowly. If I read your post right you had your stroke a week ago? That isn't even in the gate yet to be honest. You will have a lot of recovery coming in the next few months quite likely, it will come in spurts then plateau for a while is a common pattern we all seem to have. If you aren't already get into a stroke rehab program and let them direct you. This is a marathon, not a sprint. Some recover relatively quickly, some of us have been at it for years and still are. Each stroke is different, as is the recovery.

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8 hours ago, ishack1956 said:

recovery has stopped after the first week. 

Most recovery happens in the first 6 months.  Scott is correct, it will happen in spurts and then plateau.  Actually, recovery never completely stops.  It's dependent on how much you continue exercising the affected areas.  The brain must rewire and form new connections around the damaged area caused by your stroke. 

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I truly sorry for you having a stroke. Recovery doesn't stop after a week, recovery can continue far into the future however the changes are sometimes thing you can't see. But remember just because you can see it doesn't mean it's not getting better. You seem to be a very intelligent man and not being able to do the things you have become accustomed to is a have to now discover a new way of re wiring in the brain, You'll get there. Don't feel discouraged.. keep optimistic . I hope they have addressed the clotting going forward. Wishing yo the best of luck

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8 hours ago, ishack1956 said:

Hello everyone, I actually had two strokes. But I didn't realize that it was a stroke the first because the symptoms went away within 30 minutes. But I wasn't so lucky the 2nd time. I'm originally from the US, but moved to Malaysia about 3 years ago.

 

I was really stupid when I had my stroke because I was in Bali at the time, but waited until I got back Malaysia to have my wife take me to the hospital. Thus about 12 hours passed from when I had the stroke and got treatment. Luckily it was pretty minor as strokes go, however recovery has stopped after the first week. 

 

I can't write or type (teach electrical and computer engineering, so two important skills in order for me to go back to work full-time). Can't work more than 200-300 yards without being completely exhausted, actually just eating is enough to wear me out since my right hand/arm doesn't work too well. I have major issues with balance, so can't ride my Vespa. I was also advised not to drive yet (still have my license, however my wife refuses to let me drive). My walking is not good and it doesn't take much for me trip (my biggest concern), but don't require a cane most of the time.

 

The cause of the stroke was a reaction to hormone replacement therapy, I had a very high RBC making ,y blood thick and easily clotted. 

Hey :hi:What up, how r u!!!! 5yrs stroke, 36yrs

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Welcome! You couldn't have come to a better place for support, viewpoints, information, and the ability to "meet" a lot of great people.  :hi:

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Ishack, I add my welcome to the club. In my experience very few of my problems got fixed automatically. Everything had to be worked for and I expect you will find the same. Being a touch typist the skill to handle a computer keyboard came fairly quickly since the left hand was already trained. I must admit that I have been a bit lazy with my right hand, allowing it to do all sorts of unofficial key punches which would get me thrown out of a typing pool but since speed is not all important I allow myself to err.

Deigh

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Hi ishack,

Welcome to the marathon, as you've already been told this is a long term recovery but it does get better and the more you work at it the quicker it comes back.

 

However you do need to listen to your body, that exhaustion has a purpose.  Right now you brain is dealing with a trauma that will have created inflammation. The inflammation is supposed to facilitate healing but there's no room for it in your skull so it also creates it's own issues.  This is why most people see most recovery in those first few months, Right now you've got some things that are truly lost to dead tissue and some things that are hampered by inflammation blocking signals. you won't know which is which for a while so just work on everything. you may find that some things come back suddenly and pretty completely once the inflammation reduces. Either way rewiring is your current goal.

 

Try not to be in too much of a hurry to go back to work. The stroke fatigue will be with you for quite a while yet, and you'll probably find that it shows itself in non physical ways.

Good luck

-Heather

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Thanks everyone, I've trained for marathon (and ran a couple) when I was MUCH younger so I think I can do it. It's hard to describe how I feel at times. There's days I just want to cry and do nothing, but most of the time I pretty upbeat. Most people around me seem to point out that I am better than such and such person that had a major stroke. And I shouldbe grateful that it wasn't more serious, but there is so much that I can't do right now. I'm the type of person that has also worked at least a full time and a part time job, and can't do anything right now. Even eating a meal seems to require a nap after.

 

Sorry, just venting some of the frustration I suspect everyone goes through the first few months after a stroke. 

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ishack, Welcome to Strokenet! This is a great place to be if you've had a stroke. This site is chock full of info you can use now, and throughout your recovery.  My advice is to heed whatever your brain tells you. If you feel tired, rest a spell, or, better yet, take a nap. Stroke fatigue isn't like ordinary fatigue- you can't just push through it, promising you'll "rest later".  Your brain will not, cannot, take "no" for an answer. It's been hit by a tsunami, it's injured, and needs to rest. You can work on building up stamina later, when your brain is less vulnerable to fatigue. But, for now, when your brain is tired, all of you is tired, and you need to give in to it as much as you can. Good luck with everything- Becky

 

 

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I agree with Scott this is an exclusive Club but nobody ever wants to join and the admittance fee is really high recovery is not a Sprint it is a marathon I understand you waited 12 hours before your wife took you to the hospital I had a intracranial hemorrhagic stroke also known as an aneurysm that ruptured and I waited three days talk about stupid anyway you've made it this far you're obviously a fighter just keep fighting I am three and a half years post stroke and I'm still seeing minor improvements other people may not recognize them but I see him and I'm really the only one that matters when it comes to my improvements this is a great site when you get frustrated or something comes up and you just not sure what what to do next although some people may try to give you a medical advice I do volunteer work at a local hospital working with stroke survivors and my medical advice is always talk to your doctor be well my friend keep us posted on your mini victories we love to celebrate victories because we know how important those small victories are the big ones are great but the small ones add up keep the faith be strong

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Hi there and welcome to StrokeNet.  You've already received a number of posts emphasizing the need for your brain to get the required rest.  Many years ago, I had a hemorrhagic stroke on left side of brain, which caused an ischemic stroke on right side of brain.  Recovery is a long process, and as previously said will be noticeable at times and then appear to stop for awhile.  Don't let that concern you, recovery will be happening for many years, and being optimistic is important.  

 

Looking forward to reading your posts, 

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Welcome Ishack.

 

Looking forward to sharing your journey.

 

No question is silly, so feel free to share concerns and successes.

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you are correct that we all go through frustration and not always in the beginning either.  I can understand being upset with knowing you trained for something and now can't do that anymore. I once rode my mountain bike 20 plus miles everyday and now I'm lucky if I can do 5 miles in a month for my days aren't consistent . you aren't the first person to feel frustrated and you won't be the last. Living life, the only way you knew how, and being set in a lifestyle that was built in 60 years suddenly stops, frustrated would be the explaining that mildly. 

On 6/27/2017 at 4:33 AM, ishack1956 said:

and can't do anything right now.

I want you to read that and see that "Right Now" is important. You may not be able to do things the same as you once did but you will learn different ways .. The first year is normally the hardest..so please know you can vent anytime you need to :) 

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