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SassyBetsy

Aromatherapy

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So, I've been off the board most of last week because I had the final test in one of my classes and two appointment last week and was just purely WIPED OUT!  I'm still recovering. But about the smell.  I mentioned that to the neurologist (one of the appointments last week), over sensitivity to movement, noise, smell, light...unfortunately he seemed to be pretty clueless.  He started asking me if I had migraines.  NO...(geez, I thought, you are supposed to be the smart one of the two of us).....diffuse low grade headache pretty often post-stroke but getting better 7 weeks out.... but all this new hyper sensitivity HAS to be stroke related!  After all, our perception of reality comes as electrical signals that pass through, and get interpreted by, the structure that was injured ....THE FREAKING BRAIN!!!   Why doesn't this make sense to "the smart people" with  years of medical school!

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Tarina I hope you are recovering well from your busy week.  I’m the last one to give advice on pacing yourself (I’m really bad at it) but understanding your limitations and not filling up the calendar does get easier.  It does sound like last week the calendar was full not by choice. Unfortunately that happens too.

 

 I’m with you about the learned professionals who help us on our journey...they really are learning right along with us.  My expert (hahaha) opinion is that you know your brain better than them.

 

Most things I’ve discovered about my deficits are from talking here.

 

Out of 7 neurologists that I’ve been to, only three are worth their weight in gold.

 

Speaking of smells...my son has just come in to talk to me whilst eating pasta. He used waaaay too much garlic....damn. 

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Took me a while to realize what I kept smelling until I mentioned it to a chemist friend one day. I smell trace amounts of hydrogen sulfide (rotten eggs) caused by the very slow dissipation of the zinc anodes in the hot water tank. They all have them and no one but me smells them.

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Scott, actually even before the stroke I could smell the hot water in almost every house I have lived in (A LOT!).  It really does smell like rotten eggs!  There was one house we moved into and ran the water for the first shower after moving all our junk....We almost moved right back out!  It did clear out (to tolerable)after a few days, but OMG it was so smelly!  That was on well water.  And other houses that I have had with well water and older hot water tanks also seemed to be worse than those that I have lived in within the cities.  Is there a possibility of changing out the water tank?  Even if it only helps a little?  OOOooooo what about one of those new on demand hot water tanks that don't hold water?   I bet they wouldn't accumulate the zinc...whatchamigigy mineral you were talking about.

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😂Oh Tarina, welcome to the whatchamathingy world. I'm not laughing at you but hopefully with you! That is tormentingly frustrating! Look up anomic aphasia. 

Janelle you better believe I have been through the plethora of stinkers! :holy-moly:

I have very much encountered the "uh ummm" moments with my Neuro. It doesn't help that I have a hugely rare stroke (bilateral cerebellar in the PICA region...both massive...have a syndrome from it that a lot of doctors haven't even heard of)...only -1% of all strokes. My Neuro kept me alive sort of (not diagnosed correctly for almost 2 months) and ensures that after doing every test in the book that I am lowering the manageable risks of a second. Otherwise, I depend on my Psychiatrist (it is just a lucky process I have to do because of my stroke and deficits...it literally is 85% in my brain...about 15% my body now). He has researched since the day I arrived. Realises that my deficits are unusual and need different help. After speaking to me for an hour he said "I am sure you know more about the brain than I do". I'm an enigma...fascinating for him...he is definitely a brain geek lol. He has supported me, helped me, believed in me, and truly worked very hard to help me find answers. To me he is a Saint. My Neuro was surprised when I told her who I see. She told me to never stop seeing him...he is the best she knows of and even contacted him herself to discuss my history the last time I went. I can honestly say out of all my doctors I have 0 reason to question his course of action. <---- blessed.

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BTW these overstimulation of senses IS from the stroke. Other words in this same group: Sensory overload, emotional lability, pseudobulbar affect, sensory flooding. Usually much worse in the beginning and for most gets better with time...some more than others. LOL I on the other hand am lucky! Count all of those terms in my daily life. Full PBA diagnosis which has changed here and there but not better. Trying the only FDA approved drug Nuedexta. Smell and other senses can be naturally heightened as well. I will pray yours get better 🙂.

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