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For those who are walking without assistance, when did you weak leg stop feeling heavy? I am doing well with the cane and better weekly unassisted, but the left leg is still heavy and saps my stamina. 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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Hi Alan,
My stroke was 17 years ago.  I don'y use the cane indoors,only ouside.  leg pretty much has that heavy feeling all the time.  Wishing you the best.

~Beth

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3+ years and my right leg still feels heavy. If I push it too far it can become downright painful. But As time has progressed I've increased my stamina slowly.

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Wow since I'm only 4 months in I gues s I should be happy about where I am now, 

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Just finished my third year after stroke, my leg still feels heavy and unwieldy, especially when I wake and get out of bed first thing. To me, the leg is the least of my worries, as long as I can walk unaided for two K, that is all I need to complete my exercise routine.

I am far more interested in getting my right hand to work better and also improving my communication skills. Yesterday we had a family gathering on a beach with a barbecue. I  found it very uncomfortable not being able to join in fluidly with the conversation. I pushed the envelope and occasionally managed to hold my own, but it was hard work and I ended up quite exhausted.

Deigh

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Everything is exhausting, I read that doctors now think it is brain based fatigue and rest will not help, I tend to believe that. I can do a lot but it sucks the strength out if me.

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2 hours ago, alansd said:

Everything is exhausting, I read that doctors now think it is brain based fatigue and rest will not help, I tend to believe that. I can do a lot but it sucks the strength out if me.

 

I must be feeling very negative today.  After 20+ years everything can still be exhausting for me.  I know regular exercise would help, but I have zero motivation. 

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I walk with/without cane. Mostly without and that heavy feelings hasn't gone away. I can't run/jog for my legs feel like they weight 1/2 ton each. 

38 minutes ago, smarshall said:

 

everything can still be exhausting for me.  I know regular exercise would help, but I have zero motivation. 

 yes totally agree. Nap after a shower still, almost 9 years. I tell people thinking is rough for me. Sounds like I'm kidding with them but I am not. I try to read a book, after one page, I'm done.

I have no motivation. People always tell me I would feel better if I exercise but I feel fine. Not depressed. Mentally exhausted. People don't seem to understand that.

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It does take more brain power to get that affected limb to do things and the connections do tend to be less efficient so brain fatigue happens. Also the muscles themselves are not working efficiently so you expend more energy than you did before.

 

I would not say my leg feels heavy, but it is very stubborn. The theory is that the more you use the new pathways the stronger they get. My walking patterns are slowly becoming more automatic and efficient but I still get the fatigue accumulation and the more tired I get the less efficient the walking is. I just had 2 weeks holiday the first week I was walking every day on uneven terrain (bush walking/trekking paths in the mountains) I was sticking to easy trails and only doing very short walks 2 - 4kms. I was getting a full 10 hours sleep a night but the week after I did almost nothing, and I still slept 8 hours per night plus an afternoon nap.

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11 hours ago, ksmith said:

 yes totally agree. Nap after a shower still, almost 9 years. I tell people thinking is rough for me. Sounds like I'm kidding with them but I am not. I try to read a book, after one page, I'm done.

I have no motivation. People always tell me I would feel better if I exercise but I feel fine. Not depressed. Mentally exhausted. People don't seem to understand that.

 

Thanks, Kelli, I'm feeling much better.  (It's still very early in my day, but I'll take what I can get!)

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I spend a little bit t of couch time being retired, its winter, and I can't drive. I do go to PT regularly also. I find if I get up every 30 minutes or so and do a variety of movements, it helps. I do squats holding onto a kitchen counter, lunges holding onto my cane. Stair steps ,up and down on our staircase a few times, then crunches layingon the carpet, the hardest part is getting back up. I do resistance one hand against the other and with bands to get my bicep and tricep working too.i also make my self get up and walk without the cane just to do it. Much of this is hard of course but it makes me stronger. The heavy left keg slows me down but if you are not going forward, you are going backwards, I try hard not to nap though I often want to. 

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Alan you are still very early on in this journey, if your brain wants to sleep and and you have the time you are better off listening to it. Unless it stops you sleeping at night. Much of the consolidation of new information happens while you sleep so trying to push through fatigue is generally counter productive in stroke recovery.

Otherwise your routine sounds excellent. While on the carpet try adding "bridges" ( hip extensions) and hamstring curls, which will also help with walking strength, and should reduce "heavy leg".  Also as well as squats do your "sit to stands" from a hard surface ( e.g. kitchen chair). Sit to stands are great for core strength and balance

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Well two days ago I woke and felt different, my legs hit the floor and were lighter noticeably. Yesterday I did 4 minutes on the treadmill, and today fir the third day I am walking easier. My stroke support friend says his recovery was like that, all if a sudden he could walk much better. If this us a turn of the corner I am so grateful and excited to see what is coming.

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Alan,

That is often how it works for me. As time goes on the brain learns new pathways around the damaged area. The process is much slower now 3 years later but sometimes I wake up and find something has changed even if only a little bit but it adds up.

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I am glad to feel the change, my legs seem to turning a corner in the process, next for the arm hopefully.

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I can so relate to what you guys are talking about.  Struggling to get stuff done.  I am almost 3 yrs in and still tire pretty easily.  I have taken to do the dishes every morning.  load dishwasher and hand wash the rest.  Then rest for a while.  Just got a stick dyson sweeper.  Lighter and quieter than our other one.  I can move it.  I can move around a bit and get the floor swept.  And then rest.  Take a shower, then rest.  I wish I could take a nap but that is something that I lost with the stoke.

 

I can move around the house without a roller or cane but always use one when going outside.  Balance is just not that good.

 

Today I was able to rototill a part of my small garden.  After a few minutes was totally exhausted.  Muscles very sore, and I rested for the last 7 hours.  Just too tired to do more.  But it was a great feeling that I could do that now.  Couldn't last summer.  Needed help with that.  Will finish the garden some other time.

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John

Keep up the good work, your working thru this give me hope but I totally understand small things wiping you out, it does the same to me  

Ed

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On 4/25/2018 at 11:34 AM, stockflyer said:

Today I was able to rototill a part of my small garden.  After a few minutes was totally exhausted.  Muscles very sore, and I rested for the last 7 hours.  Just too tired to do more.  But it was a great feeling that I could do that now.  Couldn't last summer.  Needed help with that.  Will finish the garden some other time.

It is such a good feeling when you realise you can do more this year than you could last year.  So progress is slow but it happens and you will get the job finished, it'll just take a bit longer than it used to.

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  I had my stroke in 2010, it took me Two years to get up, wash, dress, and do things that "normal people" do.  I was so tired, my doctor said, that my brain needed to rest, so sleep was good for me.  After getting out of my "funk", with the help of some medications just for six months, got into a center, which offered Senior Silver Sneakers. At first, I go with my cane, and look, thinking I never do that. Well after three Years, I am a walking miracle. I did Tia Chi, which helped me with my balance. Also my energy level improve, what with me eating better. After a talking from my father who was at the time years old, had two strokes lives in England, came over and told me suck it up, and if I fall down get up. it worked, I fell and got up fell again got up. So now I walk at least four to five miles a day. Go to my keep fit class Tuesday, Wednesday and Friday. Also lost so much weight. I feel good.What I have learn, that a stroke is a Marathon, listen to your body if it wants to sleep or just do nothing, that is okay, sleep is good for you. Please watch what you eat, that is so important, that we are putting the right fuel in our body. Keep positive, good things will happen. Your life has changed, and you may not do things that you could do before the stroke, that is life, and we are still here. We are Warriors!:rflol:

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follow up- I started back to the fitness club after 7 months. at first visit I could hardly get on the  bike , but i did and rode for 1 minute, found  th exhausting,

 I tried most weight machines and could barely do any. now in the third week of 3 visits per week, i am doing 6 minutes on the bike and using 10 or 11 weight machines, some one handed. hip machines and leg machines are very helpful and I have added weight to each one.I am tired after but feel good. hoping for more use of the left arm, but i can only push on the shoulder machine with any success.no real action on the arm but twitches in the fingers, and can use a flex strap to exercise the arm and shoulder. Planning a european river cruise with my wife so we are excited about that, I worry about all the walking,,but I will make it.,,, somehow.

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Please to hear you are going on a European river Cruise, enjoy. Do not worry about the walking, just pace yourself, drink lots of water. i lost so much weight going to England, the walking and eating small portions helped a lot.  God Bless

 

Yvonne 

 

 

 

 

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we booked our cruise for july, and selected only the excursions that sound like  I could handle them ....very excited.

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Cruising is now my favourite way to travel. It's not just about choosing the excursions you can handle but if possible scheduling them so you have recovery days as well.  At least on a river cruise there's always scenery to watch.  It sounds magical ENJOY.

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Now that sounds like so much fun. After my stroke I think I've learned how to better appreciate "the world". I hope you have a great time and Heather made some great points.

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Hi Alan, that's awesome dude.   I hope it all goes well.  When you get back, let us know what you did, pictures, any learnings about traveling.  I would be very grateful with what you find out.  I would like to travel again, but with my issues I can't deal with being in a rocking chair let alone a boat.  I am still working on riding long distances in a car.  Few months ago was able to go 250 miles, but it was rather painful on my brain.  Can't get to my Mom's yet, need to handle about 7 hrs in a car.  I'm hoping to get past that so I can fly again.  Still need to get my wife to Germany and other points.  Long delayed vacation.

 

Have a Great Day!

 

 

 

 

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