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Husband 14 months post ischemic stroke and with no movement/lots of tone to left hand.  Scheduled for Botox injection next week. Also using the Saebo Flex and the Saebo Stretch at night. Tried the Bioness for a month but didn’t help.  Has anyone had the Botox and did it help?

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Elle,
I'm almost 18 years post stroke.  Absolutely no function of left arm and hand.  extreme amount of tone: hand in a fist.  I've tried Botox a few times and only once did it loosen up just a bit.  effects didn't last long.  also with the expense I decided to manage the tone with a new medication.  seems to work so far.  still no movement at all.  going to see a neurosurgeon that may be able to help.  he reconnects nerves and ca get movement back even years later.  hoping it can work for me.  all the best to you.  you should be able to find many people on here that have used Botox.  it's very popular.  I know many of the Face Book stroke survivors use it.  one friend in particular.  she swears by it and along with Bioness is having good results.

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Botox only helps if you combine it with an intense exercise and stretching program.  Botox is worth doing if you are already working on keeping full range of movement and are not dealing with muscle shortening. Long term tone will shorten the muscles as they are contracted for extremely long periods of time.  Also my understanding is Botox is great for countering spactisity but not so useful for tone.  My rehab specialists check for "catching" and muscle spasms before prescribing botox.

 

Sometimes I get a good reaction to botox sometimes I don't. But I do like that when I've got botox I get the intense therapy at the same time. Therapy without the botox is much less effective for me. But I'm now 8 years post and have not had use of my hand/arm for that long so I'm also dealing with atrophy. So any work on that arm takes intense energy.

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On 6/7/2018 at 12:45 PM, EllenSeniuk said:

Husband 14 months post ischemic stroke and with no movement/lots of tone to left hand.  Scheduled for Botox injection next week. Also using the Saebo Flex and the Saebo Stretch at night. Tried the Bioness for a month but didn’t help.  Has anyone had the Botox and did it help?

Hi! I have had two series of botox injections for spasticity in my foot and it has helped; I recognized how much it helped when it started to wear off after two months. The injections are limited to every twelve weeks. There is also a process in getting insurance approval, which includes documentation of trying other options such as PT and muscle relaxants first. I go through a local pain clinic and they take care of these logistics for me. The doctor told me that normal use of the foot - walking, balance exercises and yoga that I do (sort of do!) anyway would be adequate. The procedure itself is not terribly comfortable, but for me has been well worth it. Good luck

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i had botox in my left forearm and bicep. this because my wrist was so tight my OT could not stretch the fingers without hurting me.It helped loosen it all up and now my fingers cab make a fist voluntarily,and the botox lasted 3 months, but the wrist pain never came back. I do have       shoulder pain from subluxation though.

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14 hours ago, alansd said:

I do have       shoulder pain from subluxation though.

Alan, I had that also. Horrible pain! Doc gave me script for Elavil 10mg. I take it with breakfast. Within 3 days, pain was gone, and no side effects from the med. Haven't had any pain since but I'm afraid to go off it for fear of the pain returning.

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Benni-any movement happening for you?I can pinch thumb and index finger and make a fist now,  i see guitars in my future finally,yaay!

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Yes, I can do the same. My shoulder still has some stiffness, but am working on that. Yay for you!!

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Well, we got the Botox a few days ago.  His problem was excess tone in the hand making it too difficult for me to apply the SaeboFlex for his hand exercises.  While his hand still curls into a fist, it is now a loose fist and easily uncurls with assistance. Now hopefully the Flex will help in returning some hand function.  No guarantees but “nothing ventured, nothing gained”. 

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Hope it does all that you want it to do-and, more! Becky

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There's only one way to find out with this stuff. Good luck and glad to hear you're combining botox with exercise. 

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I did not do a second round of botox, I felt I had made good progress with the first, and didnt like the dead arm feeling, or lack of feeling.

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Alan, I hadn't heard that Botox causes that kind of effect. I already have no feeling on my left side, so if I ever do Botox, guess I won't feel it. I don't think you can feel no feeling with no feeling.(LOL) Glad it went so well for you. Becky 

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