Jump to content
  •  

Recommended Posts

I have recently had a new physio. A boy.  Finally.  I am tall and solid, and always feel I’m going to hurt a young, small, skinny female physio.

 

So great. Hopefully wouldn’t hurt a bloke.

 

Well today I get an email saying he’s no longer my physio, he’s had a job rotation and he’ll put the new physio in touch with me.

 

My OT told me at the last appointment that she’s leaving town, that ‘someone’ will be in touch.

 

My dietitian, who is also my case manager, wants to change our appointment days from the day of the week that suits me best.

 

I know people change jobs, move on, all that...but I’m not sure if the head honchos realise how much of an upheaval it is, having to explain everything again and again. Also making a connection to your team...do you bear your soul to an OT, only to have to start all over again in a month or so?

Share this post


Link to post
Share on other sites

I agree, Janelle. The last time I had PT was where I'd had PT just a few months prior. When I went there the second time, my therapist had a new client, and couldn't see me. So, I was assigned to someone else, who currently was booked, but could see me when one of her clients completed her sessions.  In the meantime, I had PT with whichever therapist had time to see me. I had 2 sessions per week, but didn't always have the same PT  for both. Each therapist has his/her own focal points, and way of teaching things. And they come to know you, and your strengths and weaknesses. I found it trying to have different therapists all of the time. They were all good therapists as far as I could tell, but different. There was no continuity. My sessions seemed very "choppy",for lack of another word. I was relieved when I went back to having the same therapist all of the time. Becky

 

Share this post


Link to post
Share on other sites

Becky I'm so glad you are back to your normal physio.

It does make a difference. 

It would have been awful,  seeing so many different people. 

I really don't think they get it.

Share this post


Link to post
Share on other sites

It's so hard when you find that one person who makes you want to try harder.. then they leave.. The only thing we can do is to instill in ourselves to try harder.. But it still sucks 

Share this post


Link to post
Share on other sites

Kelli I do 100% agree. Although, if this yo yo kind of thing happened during my therapy I feel like it would completely derail me and my progress. Man, I feel for you guys experiencing this.  :scared:

Share this post


Link to post
Share on other sites

On top of that, my dietitian,  who is also my case manager, has emailed me to say she can no longer meet on a Thursday. 

I schedule appointments with the hospital to all be on two Thursdays a month, so I can keep some kind of routine. 

So now, I'm going to have to rearrange my life to fit hospital visits in.

The way I am emotionally at the moment,  this is actually a big deal.

I feel like giving them the flick for a while, sort my head out, then start all over again. 

Share this post


Link to post
Share on other sites

That's not a silly idea Janelle.  I'm on a break from the hospital at the moment.  As I'm using the private hospital getting back into my sessions when I'm ready should not take too long.

Just watch out if you are in public if you stop going you go back to the end of the waiting list.

 

I do get tired of the hospital assuming that they can schedule you wherever and whenever it suits them.  If the specialist says "jump" you're supposed to just ask "how high?" and get on with it.  The idea that patients have commitments other than them never crosses their minds.

Share this post


Link to post
Share on other sites

I did outpatient therapies because I was already at home for so long before diagnosing the stroke. I agree though. I had OT, PT, and ST each for 1 hour one right after the other (3 hours). This was hard enough, I would come home and barely get in the door before I crashed into the bed. I was taking an Uber 3x/week to my therapies for a good year. They always set up the times, days, etc. I was given a schedule each month to follow. So I went anywhere from 8am-11am to 2pm-5pm. It changed each month. I couldn't work so I didn't have that worry but as said many times here and this thread morning is hard.

Share this post


Link to post
Share on other sites

I met my new physio today.

She told me the staff down there rotate to different disciplines within physio therapy every four months.

She didn’t even know I had a lesion in my brain. Mmmmm.

I guess they don’t have time for handovers and note reading.

Still unsure of what I want to do.

Share this post


Link to post
Share on other sites

What's funny,Tracy, is that all of my therapies were scheduled for afternoons. And what am I? A morning person.                                                                                                                                                                                                                                                                                  

Share this post


Link to post
Share on other sites

Becky...total opposite!!

They always want 10am appointments with me...that's the middle of the night!

Share this post


Link to post
Share on other sites

I'm with you Janelle, and yes the people at work who want a 10am meeting don't know the pressure that puts on me.

Share this post


Link to post
Share on other sites

Laughing out loud...Becky and Janelle I think all of here at one time or another can't win for losing. Things would go that way wouldn't it? :lol:

Share this post


Link to post
Share on other sites

That's why I hate hospitals or most Dr's, I know hate is a harsh word but its only business to them but to us its our new life

Hope it works out for you

Ed

Share this post


Link to post
Share on other sites

In all seriousness, these things are truly destructive or at the very least affects many survivors and their timelines of recovery. Very frustrating in many different ways.

Share this post


Link to post
Share on other sites

Tracy the thing  that annoys me the most is that I’ve told them time and time again, I don’t do early.

 

Because of the constant change in staff, that message gets lost.

 

I have had two emails this week from different sections of the day therapy unit, both requested early appointments. I feel slightly selfish, as I have yet to respond.

Share this post


Link to post
Share on other sites

I can imagine your frustration Janelle. Thankfully for myself I have sorta settled into a pattern with my doctors. I do know that when I was doing therapy my input was 2nd in line.😣 My 1st year after stroke I probably looked like a disheveled zombie every time I went. It was the least of my worries. I really don't think many times what "we" need in terms of time, etc. is something they think too much about. It's another instance of not understanding the reasons behind a survivor many times. I realize that a facility keeps certain hours but I don't feel they fully understand how it may affect us. I say have them put in your general file "no appointments before ____" on the computer. That way each therapist will be aware...I'm not sure it works that way there but worth a try. Good luck!

Share this post


Link to post
Share on other sites

Janelle

Be polite and just tell them NO and that your only available at the times that suit you best.

Good luck

Ed

Share this post


Link to post
Share on other sites

Ed all public hospital appointments here come with a note saying refusing an appointment more than twice will result in being taken off the list/program.  You really don't want to go back to the end of the waiting list and the pain of getting a new referral so you put up with the difficult appointment times.

 

It's marginally better if you are going to private clinic/hospital, but the reality is still that the clinic is held on a certain date/time and you need to be able to make it fit. At least in private clinic you get an individual appointment time.

Share this post


Link to post
Share on other sites

At the moment I have the physio, OT and dietitian all trying to book appointments with me for the next couple of weeks.

 

Two appointments with my daughter today, another tomorrow.

 

They say they are understanding about the fact it’s not all about me, that I have to consider my family as well...but do they understand?

 

Heather, I’m going to have a break again I think.

 

The pressure does not help.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×