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MJS1963

Xarelto

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Hello good people,

 

I have just been placed on Xarelto as an anticoagulant for my stroke, which was probably due to, but not confirmed, Afib. The 2 days in the hospital showed no a-fib, but my PCP thinks this is the case.

 

Anyways, a 30 day script is $546.00 ! OR a 60 day supply is $880.00 !

 

What? Thats robbery! My insurance pays a small portion, not sure how much yet, but how do doctors expect us to pay for this stuff? Is my life worth $500 ? Yes, but now that I am probably unemployed, $500 is a lot of money!

 

Is anyone else taking Xarelto? Any nasty side effects?

 

Mike.

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That does sound like an exorbitant price for something you will be taking long term. I'd be asking the doc if there's a cheaper generic for it? and why this particular medication over the many other anticoagulants out there?  I only take a 100mg Asprin a day as my preventative, my doc and I agree that the more specialised ones will create more problems than they solve for me and asprin is cheap even in the enteric coated version.

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17 minutes ago, heathber said:

That does sound like an exorbitant price for something you will be taking long term. I'd be asking the doc if there's a cheaper generic for it? and why this particular medication over the many other anticoagulants out there?  I only take a 100mg Asprin a day as my preventative, my doc and I agree that the more specialised ones will create more problems than they solve for me and asprin is cheap even in the enteric coated version.

Hi Heathber,

Mr Dr. put me on this AC because of the afib. he said it was less of a hassle than Warferin, which needs INR monitoring, but has a higher risk of bleeding. But a months supply of Waferin is 5 bux, and labs would be 30 to take the INR for dosing adjustments. All ACs have bleeding risks, but supposedly drop the stroke re-occurrence rate significantly.

 

I have  free 30 day supply, but think I may want to get a second opinion. Yes, my life is worth 500 dollars, but now that i am probably unemployed, thats a cost I cannot absorb.

 

I am going to try and get in to see my Dr tomorrow and discuss other alternatives.  If I recall Aspirin, affect platelets and Xarelto is an  anticoagulant

 

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https://www.healthline.com/health/anticoagulant-and-antiplatelet-drugs

 

Hmm so Asprin stops the clots from forming while the anticoagulant drugs unbind the proteins to reduce the size of clots. But there are still 7 other anticoagulants on the list on that site. I would think that all of them will have a risk of bleeding, that is the definition of what an anticoagulant does. and the reality is that the newer ones are going to be more expensive than the older ones.

 

One approach you might want to discuss with your doctor is take the anticoagulent for 6 months or so (assuming you can get free samples for that long) to remove/reduce any existing clots then switch to antiplatalet to reduce likelihood of new clots.

 

 

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Now that I have more of an understanding of what these drugs do and why, I am going to talk to my DR and see about other treatment regimens. At the time he prescribed the medications I am taking now, I asked a couple of questions about side effects etc. and just went along with his recommendations. The more I read about AC drugs like Xarelto and others, the more i don't want to be on them.  He has yet to tell me how long I should be on them, or if this first one is temporary or what.

 

This has all happened so fast I cannot keep up. Should I take two different drugs, different types, one or two or three, another stroke vs bleeding risks, drug interactions, benefits of treatments, and the like. Its hard to hold doctors down long enough to ask the thousand questions and concerns i have before they have to be off to the next patient.

 

I know this, 500 dollars a month is more then this patient has to spend.  I know the newest and greatest medications are expensive, but come on. $20 dollars a pill?

Then again, there are drugs like Viagra for instance, that cost 500 dollars for 6 pills. Again, robbery. So I guess I am appreciative for normalcy in that arena.

 

I know it costs millions and millions of dollars to research, study, approve, and manufacture drugs today, but where is the line drawn?

 

Ok, rant over.

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Mike I think you are right. It is at the very least worth a second opinion. I also wanted to share some things that I have learned. The manufacturer of a particular medication is a great go to if you need financial help in order to afford it. The good news about newer drugs in this case is that many manufacturers have programs set up exactly for that purpose. I am a prime example. Stroke 7-5-15 and have been unable to work. Granted I also lost my insurance and have been going through the disability process for the past 3 years. (I just won BTW! 🙋 Its not something I wanted to do but had to) I take a medication for PBA (pseudobulbar affect) called Nuedexta. According to my good rx app which always gets me the best prices it is about 1200/month. 😬 I called the manufacturer and they had a few programs even if you have insurance. I applied and after 3 months I was starting my med and titrating up free of charge. The manufacturer provides me this medicine for free. Now it does have to go to my doctor first and I have to pick it up but it is for a year! I also had to do this with another medication (a daily inhaler for asthma) which was about 350/month. Same thing...free and my rescue inhaler is through the same company so I get that free as well. (These are directly mailed to my home address!) It may not always be free but can significantly reduce their prices for many medications. Just a thought.

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This is one of my "soapbox" issues, so I won't say much except that I commiserate. I DON'T UNDERSTAND HOW THEY are able to keep on doing this.Becky

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21 hours ago, tmciriani said:

Mike I think you are right. It is at the very least worth a second opinion. I also wanted to share some things that I have learned. The manufacturer of a particular medication is a great go to if you need financial help in order to afford it. The good news about newer drugs in this case is that many manufacturers have programs set up exactly for that purpose. I am a prime example. Stroke 7-5-15 and have been unable to work. Granted I also lost my insurance and have been going through the disability process for the past 3 years. (I just won BTW! 🙋 Its not something I wanted to do but had to) I take a medication for PBA (pseudobulbar affect) called Nuedexta. According to my good rx app which always gets me the best prices it is about 1200/month. 😬 I called the manufacturer and they had a few programs even if you have insurance. I applied and after 3 months I was starting my med and titrating up free of charge. The manufacturer provides me this medicine for free. Now it does have to go to my doctor first and I have to pick it up but it is for a year! I also had to do this with another medication (a daily inhaler for asthma) which was about 350/month. Same thing...free and my rescue inhaler is through the same company so I get that free as well. (These are directly mailed to my home address!) It may not always be free but can significantly reduce their prices for many medications. Just a thought.

Hi Becky,

 

I am looking onto a program that Johnson and Johnson has for the Xarelto. applied today, crossed fingers.

 

It still gets me boiling how some of these live saving these drugs are 1/4 the cost overseas. 

 

 

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1 hour ago, becky1 said:

This is one of my "soapbox" issues, so I won't say much except that I commiserate. I DON'T UNDERSTAND HOW THEY are able to keep on doing this.Becky

Hi Becky,

 

Like I said, I know it costs thee companies millions and possibly billion of dollars, to develop, test, study, get approved, and market these drugs. I don't hold it against them for wanting to make a profit. But when you see how much the cost of some of these drugs drops once they go generics, and one wonders if a drug that would sell for 800 dollars for a 30 day script, then goes generic, and that same drug drops to 40 dollars for a 30 day script, if we have getting the shaft all along.

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