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scottm

Saw the neuro yesterday

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Well I had a good visit with the neuro yesterday. He was pleased with my progress in general but when we got to the part about the pain I asked if he considered me a problem patient since nothing has worked or had bad side effects. He reminded me that he had warned me this is difficult to treat and some people never find a good solution. So starting tonight I'm now on Carbamazepine XR 100 mg twice a day. I'll check in with him in 4 weeks for a status update, unless I start having side effects like hepatitis which apparently this can cause. Also need t notify the cardiologist since this can mess with my INR so back to weekly blood draws for a while. So we have this to try, he said he decided that morning that he would suggest it to me. We'll see what we see.

 

Now the good part. We had a really pleasant visit and he said he enjoys when I come in because I'm always trying to improve and being successful to varying degrees. He said he has a lot of stroke syndrome patients who never really improve, but that's the nature of the beast for him. I'm apparently a rare exception who has improved a lot since I've been seeing him. I was surprised that he laughed when I mentioned that my gait was improving but I still walk like Oswald Cobblepot, he knew who the character was (the true name of the Penguin of Batman fame). There is something nice about knowing my improvements mean something to my doctors and I'm not just a manila folder.

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Scott that is awesome! I know you have been through the gammit but he is still trying and he sees you are too and seeing some success. 🙌 

 

OMG I walk like Oswald Cobblepot too! Or a duck which ever is your preference. I love the Oswald Copperpot one! 🐧

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Finally someone who appreciates you and your condition!

Hope looks good on you!

I think the trials are on!

 

I am happy for you Scott, and I know the journey to now has been hard,but the future looks life changing.

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Thanks ladies, first stumble is they have to order the drug at the pharmacy. Apparently they never get requests below 200mg and usually 300+. When I told them he wasn't sure how it would work and wanted to titrate me up they understood.

 

Maybe I should change my sig to be the penguin...🐧

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just remember penguins are really graceful once in the water. Although when I was in Antarctica (pre stroke) watching baby penguins learning to swim in 6 inches of water was hilarious.

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HANG IN THERE, Scott! Becky

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Haha 😂 be the penguin Scott 🐧

 

Heather I would have just loved that! I'll have to look and see if I can find a video. 

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Try to find some of David Attenborough's nature movies.  There is at least one about how animals raise their young, everything from baby turtles and penguins to baby lions (totally adorable) and baby eagles (not so much).  Wonderful to watch.  And some of the cutest creatures you will never get a chance to see in the wild.

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🤗 I will look for some thank you Paul. Yes... Yes I love to see baby animals. They make me child happy! That means innocently really happy. I think I relate easier to furry animals than humans now. 🤷‍♀️

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If you've got access to Netflix, you can find them there.  If not, probably BBC or PBS, a nature channel, or a library.

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Scott,  That must have been a remarkable visit you had with your specialist. One doctor I had in the past was quite unusual inasmuch as when I told him about a problem I had he said "Let's have a look at what the book says", and had a look through a reference library on his shelf before giving a diagnosis. I was very impressed with this, most doctors would not admit that there were shortages in their knowledge!

Deigh

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