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Jacquie54

Alternative Meds

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Hello!

 

Trying to find out if ANY med has helped with the tingling, numbness, heaviness and pain? Also, I can't sleep at night.  Have tried many many meds that don't work...just tired and weary.  I have been told to try other alternatives, any suggestions?

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have you considered acupuncture and/or meditation. Both helped me with sleep. Mirror pain/sensation therapy is also worth trying for the tingling etc.  Those tend to come from your brain trying to make sense of nerve signals it no longer has a place for. If you can rewire those to useful places rather than letting your brain decide they are bad(pain) you should. 

 

Meds have their place but they also come with side effects and as you have found don't necessarily give tge benefit you are looking for. 

 

Hang in there

-Heather 

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Jacquie, I don't know if any of this will help you, because every stroke is different just like every survivor is different. But just in case...

 

Tingling-My doc at the time said that it was due to my cholesterol med. But I was still on that med when the tingling stopped on its own a few years later, and I continued to take it for a few more years afterward and it never returned. So, I dunno. All I know is that it went away a few years after my stroke.

 

Numbness-I've had for the last 12 years since my stroke. A stroke therapist told me a few years ago that it doesn't go away.  I did, however, develop the ability to feel pain in my affected body parts, but still can't feel anything else.

 

Heaviness- Probably caused by tone. Baclofen has worked well for me in treating tone. Apparently, it does have several side-effects, but the only one that has affected me is that it can cause ( are you ready for this?) sleepiness. So if you take it at night before you go to sleep it may help you sleep better!  Also, it can treat pain to some extent even tho it may not be intended or prescribed for this.

 

Also, I haven't tried this, but have heard that a natural sleep remedy, called St. John's wort, works well. You can get it OTC ANYWHERE NATURAL DRUGS ARE SOLD-WHICH MAKES ME A LITTLE LEERY OF THEIR EFFECTIVENESS ONCE it's been processed into pill form. Maybe you can find it in a more natural form where they sell organic teas.

 

Research, research, research....then talk to your doc.  Becky

 

 

 

 

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On 12/2/2019 at 2:56 PM, Jacquie54 said:

Hello!

 

Trying to find out if ANY med has helped with the tingling, numbness, heaviness and pain? Also, I can't sleep at night.  Have tried many many meds that don't work...just tired and weary.  I have been told to try other alternatives, any suggestions?

Hello Jacquie, and welcome. I see that you're in the US and if I'm correct in MI you have a medical cannabis program that you can purchase through a licensed medical cannabis doctors recommendation, cannabis for accepted patient use. I'm sure that Willis may drop in on this thread seeing that he too is from Michigan and has much more information on the topic of state legalized use of the products. I live in Florida and we too have state legalized medical cannabis programs available. I can tell you from my experiences having now been almost 13yrs post stroke and dealing with being relegated to pain management for several years and prescribed round-the-clock morphine and other various opioids for severe neurological pain, I was able to manage the pain but the use of opioids side effects made it prohibitive in my case. Not to mention the absolute awful withdrawals when you stop using them. 

 

I tried so many other prescription medications for neurological pain like Cymbalta, Neurotin, Lyrica, and other various treatments for the pain without any success either. That too doesn't mean that they may not work for you but, did not in my case. In my thread about neurologic pain that started in my left eye post stroke, deteriorated to the point that it was as if the eye was on fire (for lack of better words). I tried many alternative treatments with my Opthalmologist like silicone implants in the tear ducts, artificial tear meds, courses of Restasis, etc, eventually he recommended me to his professor from the University of Miami who currently was one of the leading specialists in neuro ophthalmology at the Bask and Palmer Eye Center here in Miami. After several visits with him without success, he relegated me to pain management and as mentioned, several years of opioid treatments. 

 

Long story short. I obtained a Compassionate Use Card here to accept a licensed cannabis doctors recommendation (they cannot legally "prescribe" medical marijuana) the products selection expanded within the Florida initial legalized use in 2016, eventually allowing the use of smokable flower for the "entourage effect" of the whole plant, it worked, and almost immediately took the pain away making it manageable when it gets to the point that the pain is raging. There are no real conceivable bad side effects, and additionally it can relax you to aid in sleeping. As far as the muscle spasticity, it helps to relax the whole body thus distracting from the spasticity, but it will invariably return as always. There are others who may not tolerate medical cannabis with THC and for those the use of products with just CBD may help without the effects of the THC. I've tried both, and for my situation, the only thing I've found so far is the smokable flower with a % of THC that is effective. 

 

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Posting this topic has had me doing web searches in state legalized medical marijuana programs. I would add that some of this forum members are very fortunate to have more liberal programs and products available. I see that many here also can cultivate their own plants for personal consumption as well as wide ranges of available edible type products. Florida overwhelmingly passed by a 75% margin of voters for legalization of medical marijuana in 2016. There were initial speculation that patients that qualified would be included to cultivate a limited amount of plants for personal consumption, all kinds of rumors were being presented. However, many groups who were more opposed to voting for legalization caused the state Legislature to drag it's feet with implementation and/or controls of the products available. Basically a lot of fear mongering ie; marijuana is a gateway drug that would increase abuse and addiction, or would lead to many children being hooked on pot, on and on.

 

Our Legislature caved and put a lot of restrictions of qualifications and product availability. Gone was personal cultivation of limited amount of plants for personal use of qualified patients, no edibles, they didn't even permit the use of the smokable flower until late 2018. Having qualified for both chronic pain conditions and PTSD, I was permitted a Compassionate Use Registry Card early in 2017. I tried just about all the costly products available in the few dispensaries here for almost a year and let my card expire because the products available could not manage my neurological pain. Late in 2018 the state passed another law allowing the smokable flower so having given up on opiate use my doctor recommended trying the new smokable flower. Well Hallelujah, a product finally worked. Not only did it immediately take the pain away, it had a very relaxing over all feeling throughout my body which aided in both sleep and temporary relief from the awareness of muscle spasticity. 

 

Still Florida is in it's medical cannabis program infancy and slowly advancing in product availability and a wider range of products to include edibles plus allow personal cultivation of a limited amount of plants for medical purposes. Me. I'll just take the edibles any day. Though I'm not a real big fan of smoking the product, it works superbly for pain management imo. Those of you like KevRider and Willis and others are fortunate to have the state legal products you have available as well as personal plant cultivation if you so choose. I hope in my life time Florida stops dragging their feet and allow the qualified patients use of more wider personal choices. 

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I had trouble sleeping following my stroke. I use medical marijuana every evening and nowsleep like a log!

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At some health food stores, you can buy, OTC CBD gummies or drops. These contain little to no CBD oil. Like .05% which is legal. These gummies don't make you feel wonky but just get you relaxed. They are kinda expensive. like $50. ( at least near me) but they just cause you to relax. You may not notice but it just happens, It's bliss 

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CBDfx-Gummies-Original.jpg

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