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Hi There,

I suffered a PICA stroke in September 2018 in the left cerebellar and the medulla. My biggest problem is dizziness 24 / 7, my physic and neurologist has prescribed gaze stabilisation exercises in the last few weeks, just wondering if anyone has done these and have they worked? And how long does it take?

 

thank you,

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Welcome Liam. I can understand about your dizziness. I, too, have that issue and for that I am  sorry.  All the gaze exercises I was told to do was not helpful for the issue is in my brain. Over the years, I'm 11 years post now, my brain has found a 'new normal'. Is it all gone? No. I have to wear a black out contact lens ( it fits like a normal contact just blacks out my eyesight) over my right eye for I have Nystagmus Nystagmus info  in both eyes but worse in the right. I can see out of both eyes but with out that lens, I see everything double.

 

let us know if the gaze therapy helps.  Also see about getting your eyes checked. Saved me. I started out wearing prisms in my glasses to a surgery to align my eyes.. I paid A LOT of money for therapy that wouldn't ever help. 😞

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Thanks Kelli, quick question how long did you do the exercises for? and how many times a day? Also did you see any improvement? I have only started 2 weeks ago, I don’t think mine is as bad as yours as I don’t have double vision and they have said it’s only when I look to the left I have nystagmus, perhaps you have some better ideas on trying to resolve the dizziness?

 

thank you

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I was doing the exercises for a few years. In therapy 3x a week and home exercises too.  Unfortunately none of them worked. That was mainly for the areas in my brain  that were effected more from the stroke. Those exercises were good for eye coordination and balance and , yes, I had eye issues but no exercises were able to fix them. I had to have surgery to realign my eyes.  Some problems are from inner ear issues. Again, mine were fine but my cerebellum, controls balance amount other functions, was damaged so none of the things I was tasked in doing would've helped.  It sounds like something I had to deal with. The muscles in my eyes weren't fully stretching to allow my eyes to remain level and focused. I used prisms to help with the gaze to keep better focused. With the nystagmus, my eyes bounce and still bounce so no matter the prisms to see one image, together, i still had issues, My neuro ophthalmologist and I had decided that I , either, wear a patch over my eye or a contact to block my sight , when wearing. I'll admit I'm vain so I chose the patch. I still have balance and dizziness problems, especially when I'm tired or bad weather. It's been over 11 years so I've come to adjust. It's not sun all the time but I can manage. I walk like I'm drunk but it is what it is 

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  • 2 weeks later...

Yes! I found these veryhelpful.when I get a bit dizzy I turn my head while fixing my eyes on my thumb held in front of my face.

Also used an iPad app of exercises.

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On 7/12/2020 at 12:39 AM, Liam said:

Thanks for the feedback Kelli, did you find any exercises that helped as my stroke has affected my cerebellum?

Sadly, no. But where the eye patch/contact helped out and in the beginning of my stroke, my  Nystagmus wasn't as profound as it is now so just having prisms in my glasses, to straighten my eye sight helped. As my nystagmus became more evident it was harder to keep my balance. As I said earlier, I still walk like I'm very drunk ( i don't drink.... anymore 😉 ) Have you had you ears checked?

What is Nystagmus?

balance exercises and traning for eyes

vestibular disorders  <------ my favorite website

 

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Just now, ksmith said:

Sadly, no. But where the eye patch/contact helped out and in the beginning of my stroke, my  Nystagmus wasn't as profound as it is now so just having prisms in my glasses, to straighten my eye sight helped. As my nystagmus became more evident it was harder to keep my balance. As I said earlier, I still walk like I'm very drunk ( i don't drink.... anymore 😉 ) Have you had you ears checked?

What is Nystagmus?

balance exercises and traning for eyes

vestibular disorders  <------ my favorite website

 

my cerebellum was also effected so I can empathize. One thing that my therapist told me during a session, I went to a renowned center for vestibular  rehabilitation in New York City,   sometimes when you have damage to your cerebellum ( and I have issues in my brain stem and other aspects of my brain due to the severity of my stroke) the balance issues may never get better. That sounded harsh.. yes... but he was being honest. Some issues do get better or more tolerable over time. 

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  • 3 weeks later...

G'day Liam!!

Welcome to the night shift!!

That's us Aussies and kiwis.

 

I'm so very sorry about your dizziness, it certainly doesn't sound fun.

 

Hope there's a solution that is right for you.

 

I'm WA, Sue is NSW, as is (I think) Banjo. Heather is Vic.

Deigh is our kiwi.

 

💚👑

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