ed54

Stroke Survivor - male
  • Posts

    23
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About ed54

  • Birthday 08/26/1960

Contact Methods

  • Yahoo
    edwin_klemm@yahoo.com

Shared Information

  • Stroke Anniversary (first stroke)
    04-12-1971
  • Interests
    Reading, Photography, chatting with others on my 'puter.
  • How did you find us?
    Google Search

Registration Information

  • First Name
    Edwin
  • State
    California

ed54's Achievements

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  1. Happy Anniversary ed54!

  2. Happy Anniversary ed54!

  3. Happy Birthday ed54!

  4. Good afternoon My Lady; First of all plz do not stop blogging, it's great therapy, for you and my! I hear you when you talk about sleeping. I get so tired in the early afternoon that I have to sleep. period! While my stroke happened several decades ago the scar tisseu is still a reality. The Dr. was right. My seizures didn't start until 14 years after when I was 24 but they came on like a bang. It is something I have to live with. Thank you for your comment Rose and don't give up on being a part of Stroke Network. Ed (a 44 year Survivor)
  5. Welcome Back Fred. Thats all I've had too is 1 major Stroke although I think I've had 3 TIA's since. You'd think that some of the things would get back to normal by now! lol I was so young when I had mine that my energy came back almost right away but it's now that I have to think before I DO anything, wondering if I've got the energy to do it. Hope your knee is improving.
  6. Good morning Sue, how is it there downunder? I'm looking out my two front windows on a crisp bright morning here. I can feel for Ray, I sleep almost that long but in several shifts; 8 hrs a night and then 1 or 2 hrs several times during the day. And thats a good analigy that your neurologist told you about, it makes sinse. And you know, it's funny but this only came on me in the last cpl of years, say like since I turned 50. I had plenty of get-up and go before that...ahh, it's strange how our bodies work. My best regards, your friend in CA, Ed
  7. ed54

    Miscellaneous Meanderings

    Good evening Dean, thanks for understanding. You mentioned another common problem that we share and that is our slowness of speech. At least we are slow when compared with other that we are around. I may have a million words in my mind to say but getting them out, past my tongue, is very hard indead. I'm frustrated by the fact that I can get 2 or 3 words out and other ppl (especially family) squach or talk for us because they think they know what we want to say. So I just stay quite and thats most of the time. Thank you again, take care. Ed
  8. Good to see that your back on here and I say like all the rest: Welcome Back! A knee operation can take quiet a while to heal...take it easy but I'm glad your back to being mobile again. Your friend, Ed
  9. This is so cool, thank you for bringing the clipped Burrito to all of our attention. The Dollor Store has several small clips in a package, think I'm going to get some the next time I'm there. Ed
  10. Good evening Dean, thanks for understanding. You mentioned another common problem that we share and that is our slowness of speech. At least we are slow when compared with other that we are around. I may have a million words in my mind to say but getting them out, past my tongue, is very hard indead. I'm frustrated by the fact that I can get 2 or 3 words out and other ppl (especially family) squach or talk for us because they think they know what we want to say. So I just stay quite and thats most of the time. Thank you again, take care. Ed
  11. “still [tired] after all these years…” well, it could be crazy too but… There is a Stroke handbill which says in past; “You may feel tired after a stroke for four major reasons: • You may have less energy than before because of sleeping poorly, (yep) not getting enough exercise, (yep) poor nutrition or the side effects of medicine.” (yep yep…) I don’t mean to be funny but this is s serious matter, for me at least. During every day I have to take one nap. At least one! If I don’t then I fall asleep outside or at the wheel or practically anywhere. Fortunately I just turn on the boob tube and I’m out like a light. If I had to work…I don’t know. The handbill also says; “Consult with your healthcare provider to rule out any medical conditions” And here again over the past few years both my GP and I have ‘ruled out’ or at least tried to rule out all the things that we can think of. I’ve been to a Sleep Center, that’s been ruled out. I’m 3 lb’s above my normal weight on the BMI scale. The Doc has given me D-3 and B-12 to take every day and I go in for a monthly depo-testosterone shot today. It’s been 44 years since my Stroke and for the past few years I’ve had to take a nap once a day. I know it to be a puzzler for me but I wonder what you all think. I know that by a multitude of counselors we can accomplish damn near anything. Lol I just would like to stay awake for a few hours a day that’s all. I also know that coping with frustration, anxiety, anger and sadness can be draining. Depressed feelings that are a common side effect have also played their part. As well as the feelings that the occasional iEED bring on can at times be draining. And I guess those are reasons enough to feel a little bit tired. I am trying for a solution to this problem, to not be so tired during the day. Both my GP and Ariel’s uncle, both of whom are P.A.s say that paralysis, regardless of cause, can lead to fatigue. My P.A. explained that when I was younger, I had more energy so I did not realize how much energy it took to “work around” my paralysis, but now I’m older I have less extra energy so now what energy I do have has to be used for minimal activities. If I try to do more, then my body says “Yeah, right,” and demands that I take a nap, whether I like it or not. Besides vitamins and testosterone, the other thing my GP did to help me work around the fatigue by signing off on some paperwork so Ariel could be paid by the State to be my caregiver. So that with her help I can eat right, she go shopping for me when I’m too tired and she makes it possible for me to not have to spend my precious energy on chores. If you’re new to fatigue, I hope this blog helped you to understand the stroke/fatigue connection and that it’s okay to ask for help with daily living when you need it. If anyone has some suggestions or thoughts for me about fatigue, I welcome your suggestions/comments. Your friend, Ed
  12. ed54

    Season's 'eatings

    Hay Sue, how the Holiday Season starting out for you? Ohh, lets see, do you even celibrate anything like this Downunder? Really, some years I've seen so many Pears it's unbelievable. We have a Pear Festival about 40 miles from here in a little town called Kelseyville that starts around the begining of September. It's a fantastic Festival too, ppl come from several County's. I'm sure that they make Pears into drinks but the only thing that I've tasted is Pear Butter or maybe it's some type of sause, anyway it's delicious. I've never tasted Peri before, I hear that it tastes mmmmmMMMM. lol. Where I grew up in Sacramento was right next to Apple Hill and we used to have fresh Apple Cider with pulp in it every summer. Thanks for bringing back the memories. Have a nice day Sue. Ed
  13. ed54

    A candle flame

    Good morning Sue; Hope you have a nice morning. As Carl says your reflections are more then relevant and they are touching too. We all lead different lives and have different experences for the most part but Here, on this site, we have a lot in common, whether we are survivors or not. Thank you for sharing your thoughts with us. Have a wonderful day Sue and be cheerful.
  14. ed54

    Season's 'eatings

    Good morning all; I suppose this is my second blog. I’m going to try to get these blogs out once a week or there abouts, we’ll see. At any rate, my parents visited me yesterday for about 2 hrs and that was really nice. They live about 75 miles away and were on their way to see another sister of mine as well as visiting me. My father just turned 92 the last of Oct. and physically he’s looking pretty good. My mom says that there are times when he gets kinda ‘forgetful’…and I guess that’s to be expected. I don’t like it but… My neighbor and caregiver Ariel and I took them out to donuts and coffee at a usual place where we all used to go and I’m sure that brought back some memories for dad. And mom too. Yesterday, Ariel’s mom came in from out of town and is staying until Sunday. She’ll be visiting with me, even when Ariel is with her other clients, so I suppose the week will be busy as well. Last night I had to go to a meeting of TOPS (Take Off Pounds Sensibility) where I am an officer. We talked and laughed about nothing but Thanksgiving which will be in a cpl of days. Ahh, the Turkey and Cranberries and Yams and…ohh man, I’m hungry already! Actually, Ariel will be covering for a co-worker on Thanksgiving (extra moolah for her), so Ariel, her mom and I will go to Denny’s Thanksgiving evening. Then Saturday, Ariel’s day off, we’ll have a traditional turkey meal, courtesy the food bank who furnished a 12 lb bird and most of the trimmings, even Ariel’s favorite cornbread stuffing, oh boy! Goodness, I’m going to be up to my eyeballs in my beloved leftovers. It’s just breakfast time and two more days to wait…giggle. I only have 3 more lb’s to lose too, which makes me happy. It stopped raining here in Ukiah and that’s a bummer. We’re expecting more but right now it a bright clear Sunshiny morning. The rain that we did have was refreshing indead but a little too short, I mean it didn’t last to long. The forecast is for rain to start on Friday and last for a whole week, lets keep our fingers (on our good hand) crossed. I hope this seasons a lot wetter this last winter and fills up Lake Mendocino and all the other little dams around the area. I live in the upper end of the Wine Growing area. We have a lot of Bartlett Pears around Ukiah, too which need a lot of water. It’s almost 2015, the beginning of a new year, a time for me to look at my life and see where I can make changes if I can and situation. It’s almost resolution time. I hope this finds all of you well and in good spirits. Ed
  15. ed54

    Mary Napier

    When I read your story I just couldn't stop crying. You could have been talking about me, we are sooo alike. And almost the same age for I was born on Aug. 26, 1960 so just a little younger. And I too am very glad to be alive! I tried to find your profile but was unable. I wanted to add you as a friend of mine if you would allow me to so that we could become better aquainted. Edwin L. Klemm