Ken1950

Stroke Survivor - male
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About Ken1950

Shared Information

  • Stroke Anniversary (first stroke)
    11-17-2008
  • Stroke Anniversary (second stroke)
    12-28-2009
  • How did you find us?
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  • First Name
    Kenneth
  • State
    NC

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  1. Happy Anniversary Ken1950!

  2. Happy Anniversary Ken1950!

  3. Happy Anniversary Ken1950!

  4. HI EVERY BODY AND THANK SO VERY MUCH FOR THE INFO. SHARED AND THE WELL WISHES. KAREN AND I WILL BE LOOKING AT DOING A LOT OF WHAT WAS PUT OUT THERE. WE LIVE IN NORTH CAROLINA AND ONE OF MY CURRENT NERO.DOCS. IS LARRY GOLDSTEIN HEAD OF DUKE STROKE. IT IS HE WHO PICKED UP A DECREASE IN COGNITIVE ABILITY. I HAD THE 10 HR TEST THERE 3 YEARS AGO WHEN THEY FIRST FOUND THE DISABILITY. HOWEVER NO MEDS FOR IT AND THREE THINGS TO DO. EXERCISE, I DO. HEART HEALTH, I AM. SOCIALIZATION I TRY AS MUCH AS I CAN. SO BEFORE GOING THROUGH ANOTHER 10 HRS. KAREN ASKED WHAT CAN YOU DO??? WE TALKED WITH A NERO. NURSE AND A PHD AT BEHAVREALHEALTH AT DUKE AND NETHER COULD SAY WHAT THEY WOULD BE ABLE TO DO. IT IS 3 HR ROUND TRIP IF IT WOULD HELP YES BUT... I AM IN TALK THERAPY AND HAVE A PSYCHIATRIS WITH THE SAM GROUP. MY GP & LOCAL NERO. WORK CLOSE AND THE UROLIGEST I STARTED SEEING FIRST FOR THE ED THEN ON WITH THE INCONTINENCE. AS FOR THE PAIN DUKE PAIN HAS A LOT TO WORK ON. I WAS PUT ON A DRUG , ONE OF THE EPILECTIC ONES, REACTED AND IT TOOK 72 HRS FOR HIM TO CALL BACK AFTER BEING PAGED AT LEAST 6 X MESSAGE LEFT AT CLINICE AND EMAIL SET FROM PSYCHIATRIS I WAS SEEING AT DUKE BEFORE HE LEFT. THEN TRYED SECOND PAIN DOC. ANY WAY OVER 5 YEARS A LEAST 15 DOTORS AND 30 DIFFERENT DRUGES I AM DOWN TO 5 DOCS. I TRUST BUT AM ON 7 DAILY RX MEDS 1 PRN MED 4 OVER THE COUNTER MED AND 3 PRN OTC MEDS. I AM SEEING TALK THERPIST TODAY AND HAVE APPT. WITH GP TOMARROW. WE WILL SEE WHAT THEY SAY. KREN HAS FOUND A WEB SITE DRUGS.COM YOU PUT IN ALL YOUR MEDS AND IT WILL PRINT OUT WHICH ONES INTERACT WHICH EAH OTHER AND HOW SEVERE REACTONS CAN BE. SO WE WILL BE INFORMED. WILL SEE WHAT CAN HAPPEN . THANK YOU ALL AGAIN PLEASE KEEP THINKING HOW THIS MIGHT BE DONE AS INPATIENT INSTEAD OF RUNNING TO ALL THESE DOCS. BY THE WAY BEFORE BEING PUTOUT TO PASTURE I WORKED AS AN OPERTING ROOM AND ER TRAUMA RADIOLOGIC TECHNOLGOIST FOR 30 YS. AT A TRAUMA 2 CENTER THE OTHER TEN AT COMMUNITY HOSPITALS AND CINICAL AND CLASS ROOM INSTRUCTING. THAT BEING SAID I AM DEEPLY SORRY MY LIFE PROFECION DOES NOT REALY KNOW HOW TO CARE FOR THOSE OF US WHO ARE SURVIVERS AND THEIR CARETAKERS LOVE TO ALL GOD BESS KEN AND KAREN
  5. HI I AM KEN 1950 EXCUSE CAPS. NOT SHOUTING HAVE TROUBLE REMEMBERING WHEN TO USE UPPER AND LOWER SO I US UPPER ONLY. IT HAS BEEN AWHILE SINCE I HAVE BEEN ON THE NET OR IN CHAT ROOM. AFTER MY 4 STROKES THAT WERE CAUSED BY PFO I HAD THE HOLD CLOSED AND SO FAR NO MORE STROKES. HOWEVER FROM THE FALLS I HAVE HAD 3-4 CONCUSSIONS. I ALSO HAD A BIG ONE WHEN I HYDROPLANED OFF ROAD AND ROLLED THE CAR PUTTING FENCE POST 6 IN FROM MY HEAD. MY ANGLE WAS AND HAS BEEN WITH ME. I DO NOT HAVE SERIOUS DISABILITIES LIKE SOME OF US BUT WHAT I HAVE HAS CHANGED MY LIFE FOREVER. I HAD SOME PROBLEMS BEFORE THE STROKES BUT THEY WERE PRETTY MUCH UNDER CONTROL. AFTER THE STROKES THOSE PROBLEMS GOT WORSE . BUT DID SEEM TO IMPROVE SOME OVER TIME. SINCE THE CONCUSSIONS THOUGH EVERY THING HAS INCREASED 50% OR MORE. THE MOOD SWINGS, MEMORY LOSS, GETTING LOST WHEN OUT , I HAVE A GPS KNOW TO FIND MY WAY HOME.THE INCONTINENCE WAS BETTER TILL I REACTED TO THE DRUG VESICARE, I WAS FOUND BY A NEIGHBOR PASSED OUT . HAD SIMILAR EPISODE 3 YEARS AGO AND IT SEEMS BOTH DRUGS HAD A FORM OF QUININE IN THEM. SO THEY TOOK ME OF THAT AND THE INCONTINENCE IS BACK SO I STAY HOME. THEY HAVE PUT ME ON SO MANY DRUGS. ADDED TO ,INCREASED, CHANGE TO SOMETHING ELSE AND NOT A THING SEEMS TO IMPROVE. NEUROPATHIC PAIN RUN 4-6 24/7 INCREASING TO PLEASE GOD CUT MY ARM OR LEG OFF. MIGRAINES ARE UP TO 4-5 A MONTH WITH MILDER ONES IN BETWEEN. THEN TO TOP OFF EVERYTHING ELSE I CAN NO LONGER PERFORM MY HUSBANDLY DUTIES. MY WIFE IS A SAINT WITH WHAT I PUT HER THROUGH. WE LIVE VERY RURAL SO SUPPORT GROUPS ARE A 30 TO 60 MIN. DRIVE EACH WAY. I GUESS I ' M ASKING IF ANY ONE HAS FELT SO LOST AND SO ALONE . IS THERE A PLACE ,REHAB. HOSPITAL OR SOME PLACE TO GO FOR A WORK UP AND GET THINGS ORDERED ALL AT ONE TIME TIL THEY WORK. IT SEEMS A HIT AND MISS AS AN OUT PATIENT. I HAVE PRIMARY WHO IS GREAT TO ME BUT THEN THERE ARE 5 OTHERS RIGHT NOW AND HAD BEEN ANOTHER5-6 THAT I FIRED. I AM JUST TIRED OF NO SLEEP, HURTING, FORGETTING, NOT KNOWING HOW TO DO SOMETHING ,FOR GETTING AT I WAS GOING TO DO AND ALWAYS SAYING I AM SORRY. SO PLEASE LET ME KNOW IF SOMEONE FOUND A WAY TO DEAL WITH ALL OF THIS OR PLACE I CAN GO. THANK YOU AND GOD BLESS YOU KEN 1950 & KAREN
  6. Hi everybody: Been a long time since I was around you all. The great doctors at DUKE decided that I needed to have a new battery of tests. It seems the medication they were giving me for the CORE pain was causing all kinds of reactions on me. Along with that, since DUKE is a research and teaching hospital some of the doctors have very poor patient care skills. I had to go into the hospital for ten days of detox from one med be for they could start a new one. Once I was on that new one it did not work so they backed me off and brought in an EXPERT ON PAIN MED :roflmao: :roflmao: :roflmao: :roflmao: His education looked great but when I had a major reaction after only three doses it took me sixty hours to get a call back. You heard me sixty hours the he said "I guess we will have to try something else. DO you think so????? On we went with a new med but a close cousin to the one I was just on. It too gave me problems and after twenty four hours I went to administrators, department chair,and patient advocates and it was still two days till he called and wanted Me to stay on the med and see if things would get better or worse:uhm: :uhm: :uhm: :uhm: I said NO and YOU ARE FIRED So I am off all pain meads and am just working thought it. I am so fed up with the lack of caring buy some of the medical staff and all the recordings to leave messages and then no call back in a timely manor. After all this I spent nine hours having a test to measure my cognitive ability which I failed to a degree and then a four hour test to see if I have ear problems that were causing me to fall. I passed that one my hearing and ear structure is just fine so it is the dead brain cells that get screwed up and I fall. You would think that with all the great minds looking and all the testing being done the health system could help us who have had strokes get some relief from our pain, depression ,and the feeling of loss that I believe we all or at least some of use have. It keeps us home and out of sight as people do not under stand us. Our CAREGIVERS GOD BLESS THEM DO but it is a great pressure on them also. Enough of my feeling sorry How are all of you doing I will try to get back to chat room soon I, have missed you all and pray some of you are making forward movement I seem to be at a stand still for right know but the fight is not over. And as I say THE GOOD LORD DOESN'T WANT ME YET AND THE DEVIL:devil: WONT HAVE ME BACK SOON Ken 1950
  7. Hi Ken,

    Welcome to Stroke Net. We're gald to have you aboard.

  8. Hi Ken,

    Welcome to Stroke Net. We're gald to have you aboard.

  9. Happy Anniversary Ken1950!

  10. Hi Lydia As asha said it is all slow motion . The LORD for what ever reason has said hay LYDIA slow down look around. There are going to be some limitations on you for know. Rest up and then look and slowly find that new path, I have set for you. I really believe this. I worked 40 years in the medical field, saw all kinds of injury and sickness. I was starting to slowly burn out but would not quit till my strokes. This forced me to reevaluate my life and what was out there for me to move on to. I think that perhaps that is what you are going through so keep your eyes open your trust in the Lord and he will guide you. On to something new and wonderful. A new trip in life if you will. Ken1950
  11. Ken1950

    pain

    thank you I will try that
  12. Ken1950

    pain

    Hi every body It is nice to see spring. I have been to see my new doc. several times and the med. changes are still going forward. I am able to use my left side but it is not what it was before the strokes. Has any one ever been told or do you now about CPSP [CORE POST STROKE PAIN ]?? Well it seems I can add that to my life style. I have always had a heaviness in my arm from the shoulder down. the leg goes from heavy to numb. About this time last year I had some like electric shocks in the lower leg and foot. We thought it was the brain doing some reconnecting. But I have started to have cramps and burning in my upper leg now that at times want me to just cut it off. the back of my shoulder is an ache all the time. That heaviness seems to stay all the time and the pain increase when ever it wants. Not to sure what to make of this ? The doc. were told but it has gotten worse over time. I will see one of them next week and ask what to do, meds stretching yoga anything. I just wanted to know if this just ME our have any of you had this happen? what have you all done if any thing that works? So far ben gay or moist heat seem to help a little. Thanks for your ear any help would be great. O yea I found cpsp on line it is every thing that I have been going through so I am pretty sure that is what it is.
  13. Hi Every Body What is he talking about ?? different and the same ?? Well I think we are we have all had big changes in our lives . Some of us are younger then others some of us have caregivers some do not some have people who understand US some of us do not . We all have different limitations but we all are limited in some way. My Karen is about ready to break out and run screaming. She has every right too . Why because I just start screaming or crying so why not her. We are all in this together. some times we the survivors need time alone as do our care givers. This week has been hard as I have needed more care then usual. It seems last Monday we were getting ready to see the CPA and find out how much the Government was going to sc---- us so Karen is upstairs ready to shower when I finish down stairs in my bathroom, got the picture, OK so I am going up the satires she is getting in the shower and two steps from the top I fall. head first on my left side [ my weak one] all the way down . Since my clothes were upstairs I was in what the good lord gave me sixty years ago. After a second loud scream who should appear at the top of the stairs in what the good lord gave her yep Karen down she comes to see if any thing is broken and sure enough. looks like my hip and ankle maybe. So what do two adult grow up people do we start laughing as hard as we can at this weird sight. So it is a few steps back and a lot of upsetting things between us but we will get through this as we have gotten through every thing that has happened before. We try not to look to long at the bad things and laugh a lot at the others. I think what I am trying to say is yes we have different problems and they hit us in different ways but if we can just laugh at those funny times the sad times wont be so bad. Just a thought. O yea after getting to the hospital and having been pocked an man handled the xrays showed no breaks just bad sprains and some real pretty bruising from the blood thinners. See you all later
  14. jUST REMIND Charlie nhe is only a petty officer you are the CAPT. you two will be fine talk and most of all listen that is from an old NAVY man There is not a thing that can not be over come Charlie knows that from his training you just have to look , listen and trust in each other GOD BLESS you both and you family and rember there is a new family forBOth of you here Ken
  15. right back at u girl when I am down it is her that I come it seeems to help knowing you are not alone with your problems your depression your not wanting to huet nother and all that stuff as the tirle goes to a great song 'WE ARE FAMILY' KEN