thephoenix

Stroke Survivor - female
  • Posts

    85
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About thephoenix

  • Birthday 12/09/1972

Shared Information

  • Stroke Anniversary (first stroke)
    04-29-2010
  • How did you find us?
    Website Link

Registration Information

  • First Name
    Oriana
  • State
    NJ

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  1. Happy Anniversary thephoenix!

  2. Happy Anniversary thephoenix!

  3. Happy Birthday thephoenix!

  4. CONGRATULATIONS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! IM SO HAPPY FOR YOU )
  5. I couldn't agree with nancy more. I'm so sorry to hear this but I think you can drop the quotes. What you're having is more than likely a seizure. A person can have a partial seizure and not lose consciousness but believe me their brain is not processing information normally. A partial seizure can then secondarily generalize, meaning the whole brain gets involved and then you'd be unconscious. Just because you recall it and didn't pass out doesn't mean you didn't have a seizure. A partial seizure can stay partial ( in one part of the brain only) of it can generalize( whole brain involved) and unconsciousness ad a result if ehole brain involvement just because some stay partial doesn't mean others won't generalize and there's no way up predict when it'll happen . I'm sorry but its not safe for you to drive. I remember the joy when you got the ability yo drive and I totally get it but seriously imagine you hit somebody... It would really destroy you,not to mention you could hurt yourself. Lease tell your neurologist and give up the keys,at leafy for now. How would you handle it if you had an episode behind the wheel and killed a kid? From what I remember of you ; you'd really be crushed. I haven't been around for a while so to refresh your memory I am a 40 year old stroke neurologist, yeah I get theinsane irony, who had a big stroke at age 37.. I've been back to work so I haven't posted here in a long long time but I got the email notification about your new blog entry so here I am. Stay safe :-)
  6. Happy Birthday thephoenix!

  7. good for you ) Im glad you're still trying new things
  8. Happy Birthday thephoenix!

  9. Katrina, my heart is absolutely broken for you I wish I knew the right things to say to make you feel better. I wis I could just make you better so you wouldnt have to go trough thi anymore. I know all too well how heavily disablity weighs on the soul. god hasn't forgotten you but Im not even going to tak about it, You have to come to that reALIZATION ON YOUR Own time I just pray that you eill and that you will not ever give up on yourself I had a revalation ne evening it was about 6 montha after the stroke and I was out later tha I planned to be I had just seen a movie with my sister. I dropped her off and thn has to head back to my place in Manhattan but the un set while we were in the movies... I was nervous because I hve serious issues driving at night. I dropped her off, committed to getting me and y car home and I ghit the highway. I squeezed the steering wheel soooo tight my knuckles hurt I prayed that God would just get me home safeky... then it hit me. I'm alive! If He wanted me he could have taken me when I first has the stroke.... and He didn't. I realized that the fact that Im still here means Im meant to be therefore nothing bad will happen to me as I dive home tonight... We're not here by accidnt... That you firsat survived the stroke, your surgery and now this car accident should only affirm that you are herew because He wants ou here. As I drove I thought" I csant work helping people the way I used to s why keep me alive at all...? Well the answer I came to is that I will find s ither way to reach out to people and help them Though I lan on returning to clinical medicine soon I've started with research for now and I know ythat he's going to make use of ny abilities or else why would my life have been spared? Its because there's something I'm yet to do.... You're going throug Hell right now but just keep going on the end of it, when you get out you'll have the bestest reward just hold tight and stay true to HIm AND YOU WILL GET THERE i KNOW YTIS BECAUSE YOU ARE ALREADY HERE. aFTER ALL YOU'VE BEEN THROUGH. iF EVER THERE WAS A PRECIOUS LIFE IT'S GOT TO BE THE ONRE THAT WAS NEARLY CONDUMED BY THE GIRE ONLY TO BE SNATCHED TO SAFETRY TIME AND AGAIN. i KNOW YOU'RE NOT LIVING THE WAY YOU WANT TO LIVE, iM NOT EITHER BUT YOU WILL AGAIN AS LONG AS YOU DON'T GIVE UP. Dont ever give up Katrina. EVER! YOU SURVIVED FOR A REASON THAT i CANNOT TELL YOU WHAT THE REASON IS DOES NOTHING TO DIMINISH THE FACT THAT THERE IS ONE. pLEASE GET HELP. i LOVE YOU FROM HERE AND i DONT WANT TO HEAR OF YOU EVER HURTING YOURSELF. i KNOW AND i GET YOUR PAIN BUT PLEASE DON'T GO FIND SOMEONE TO TALK O HECK IF YOU WANT WE CANTALK BY PHONEi'LL NOTE YOU MY CELL NUMBER YOU CA N CALL ANYTIME i GET IT. i HAD A CRAPPY DAY YESTERDAY... ITS OVER A YEAR AND i STILL GET THE SUPER SAD iVE GOT TO GET IN BED AND CRY DAYS BUT TODAY IS SOOOO MUCH BETTER. aS LONG AS WE WAK UP EACH MORNING THERES ALWAYS HOPE FOR US TO BE BETTER LET ME KNOW IF YOU WABT MY NUMBER WE CAN TALK, KICK IT OR WHATEVER YOU KNOW UNTIL YOU'RE EELING BETTER LOOK BACK TO YOUR GRADUATION AND ALL THAT YOU'VE ACCOMPLISHED WITH SO MUCH ON YOUR PLATE YOU ARE A FIGHTER DONT EVER GIVE UP PLEASE:O)
  10. I'm very glad to hear of your good news ;o0 I'm also happy to know that you're both hanging in there. It does get better, with time but of course every stroke is different still, I firmly believe in our ability to heal as long as we keep at it )
  11. you probably have some idea but I really needed thise chuckles today.
  12. I finally got around to taking a pic of the mirror therapy to show you the setup. Its a lot easier to understand in a picture so here goes... as long as I figure out how...
  13. I am soooo happy or you both ) Finding ways to keep enjoying our lives is critically important. As you know we are in a realy tough fight but happy days like you two had will remind him exacty what you both are fighting so hard for and it akes it all worth it ) Congratulations and awesome caregiving job )
  14. Brag on Asha. its definitely something to be proud of cngrats to you ,him and the rest of your family )
  15. great blog Asha thanks for writing it. ) I haven't forgotten about you and the study @ UMDNJ/NJIT( your alma mater). I go for my functoinal MRI (fMRI), which is part of the enrollment in the study, this Friday and I should have lots more contact info for you then. the test is scheduled for 3pm so expect a note from me Friday evening. till then, take cae and I look forward to your participation and meeting you in prerson since you always have such positive comments to share here ) Till later ~Ory