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About this blog

A daughter's raw journey through her mother's stroke

Entries in this blog

Hiring 2 caregivers

This weekend the "When will Mom return home" committee (my aunt, my younger brother, and myself) met to decide the pros and cons of bringing my mother home. I had already decided that she was coming home just as soon as acute physical therapy at the rehab hospital/nursing home is terminated. My aunt thought it would be better to move her to a nursing home near home while she recuperates and gains strength. My aunt is an old-school immigrant from Vietnam and doesn't get the difference between
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My brother, the prodigal son

Entry category: Good Day   My older brother moved out of state several years ago and has expressed interest in moving back, but with his family settled and not a lot of job prospects, he hasn't done so.   He's been the classic prodigal son. He's a first born. Not the best son, not the best brother, but whenever he does one nice thing for my parents they go gah-gah, yet, my younger brother and who have always been there don't get the same recognition. The two of us are not jealous (no
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Caregiver Humor!!!!

The caregiver that I hired to stay with my mother in the nursing home in the morning is on bad terms with the nursing home staff. They called her into the office and had a chat with her. She's great with my mom and is a good advocate for her, but she puts the nursing home on the defensive and has a strong skeptical, almost rebellious nature. I'm in tough situation with this one. I see their side of it, but again, she's great with mom.   It looks like my mother's therapies will be coming t
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Kicked out of Therapy

It's been 1 month and 4 days since my mother's CVA.   Today I was told that my mother's speech therapy will be "temporarily" discontinued because she's not really even vocalizing. She has severe aphasia. She doesn't speak, but can spell and communicate using a spell board. We were offered information on puchasing a laptop computer/communication device using scanning software to spell.   I am thankful we can afford to buy this machine ourselves instead of waiting on Medicare to approve i
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Long Term Home Health Care Insurance

I had a little chuckle today thinking about how I have become obsessed with purchasing Long Term Home Health Care Insurance. It's a little different than Long Term Care Insurance, in that you would be able to hire a caregiver to help you stay in your own home.   I'm 34 yrs old and this is what I am eager to start investing in. I'm currently a stay at home mother of 3 and I think about what I will do with my salary when I return to work someday: invest it so I can take care of myself in my
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Caregiver Support Meeting

Went to a stroke survivors & caregivers support group meeting today with my younger brother. We boo-hooed our eyes out and it's been a great release. Thank God for my support group.   Starting to have feelings of dread of visiting my mom. She's so helpless, but for this moment, it's all about me. It's about how I feel about visiting, how sad and scared it makes me feel, me, me, me. I want to be there for my mom, but I've been feeling weak and vulnerable lately.   I printed som
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Emotional Rollercoaster

My mother had a stroke one month ago, and I am still very much on an emotional rollercoaster. I go up and down depending on how Mom is doing. Today was a bad day. The private nurse that I hired to be with mom is well-meaning, but inexperienced. The nursing home is very short staffed. She isn't always turned every 2 hours and it totally affects her sleep and ability to keep up physical therapy.   Mom is paralyzed and cannot speak, although she has great cognitive function. She is sooooo
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