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About this blog

everyday life :-)

Entries in this blog

Thanksgiving was great now onto Christmas.....

Well Mike and I had a wonderful thanksgiving....We were suppose to go to my Grandmothers on my Fathers side of the family but it turned out that Grandma wasn't able to have Thanksgiving dinner because she wasn't feeling well (she's feeling better now) so our plans changed and we went to my Moms parents house for lunch which I originally had decided that we weren't going to attempt to navigate my Grandparents small house. Well I asked Mike if he wanted to give it a try and if it was too crowded

caringfor5

caringfor5

First time on the Auto Ambulator

Today, Mike went for his first session on the Auto Ambulator. It was so wonderful to watch. It keeps his legs in the perfect position in hopes that he will learn to step more accurately and keep his body in a better position. The thought behind the process is that the brain and muscles will relearn the proper way to hold themselves in alignment from repetitive use. I hope it works because if Mike can get stronger and relearn to keep himself more balanced he could really walk a lot better.

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caringfor5

More new accomplishments

Hello to everyone,   I just wanted to list some new accomplishments over the last couple of weeks to share and also to keep track of them for myself. It seems Mike is past a plateau, he's starting to do alot of new things lately. For instance......   Put on and take off his shirt with little help from me. Pull on and Push down his own pants with little help besides balance. walking more consistently to and from the bedroom with more controlled balance. taking off his own socks. s

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caringfor5

My Movie List

Ok here it goes, mine will have no form to it either, just listing them as I think of them. I don;t know if I'll get to 50 though, but I will start with my most favorite in the last two years.......   Love Actually...I loved this movie, I was crying in the theatre, I got it as soon as it came out on DVD.   now for the rest of the list   Sleepless in Seattle The Breakfast Club City of Angels Pride and Prejudice....any of them The Wizard of Oz A Christmas Story....I can watch t

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caringfor5

Some little improvements worth mentioning

I just thought I would mention some little improvements Mike has made recently since nothing much else is going on in our lives.   Mike is now able to roll over from his back to his stomach while lying in bed. He wasn't able to do this until about two weeks ago.   His reading is getting better and better he is finally starting to scan from left to right again and looking for the beginning of the sentence. He has been able to read words since very early on but could not read sentences

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caringfor5

New approach to Mikes arms...

We had are first actual visit with Mikes new OT. He is great and it is nice to have someone who is looking at Mike for the first time and coming up with new ideas to tackle the tightness in both of Mikes arms and in his fingers on his left hand. Mike didn't have OT for a couple of months and I brought up the tone to his neurologist who referred him to another physiatrist who referred him to the OT department at the Rehab of St. Louis. They have already fitted him for new splints that we will

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caringfor5

Will she ever stop?!!!!!!

I know that it probably seems like I only ever post to complain about something, but for goodness sake is my life ever going to just calm down. It seems like its always something.   Mike and I thought we had the Social Security straightened out but on the 3rd when he didn't receive a check I started to worry. On the 4th I decided to call the local office and find out what was going on since this would have been the first month that Mike and I would receive a check here at the house. When I

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caringfor5

Our favorite season

Fall has always been our favorite season. The weather is so nice here, football is back on T.V. We can start making all those cold weather dishes like chili, homemade vegetable soup, chicken and dumplings. We can go to the local orchard and pick apples for apple pie. We love to decorate the house for fall and Halloween. We love just about everything about fall. Whats not to like. And even better is the fact that this year Mike is not in a hospital, he's back home to enjoy all of it with m

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caringfor5

Some days I just want to give up

I know the title sounds harsh but I feel that way some days. Like today for instance. I was feeling pretty grumpy because I stayed up with Mike watching a movie until around 1:30 in the morning and the kids ended up getting me up at 7:00. So When I got Mike up I probably wasn't the nicest I could be. Basically when I'm feeling like this is when the little things get on my nerves. Like why can he not sit in the chair straight today but normally does. So I'm trying to wash his hair at the k

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One more thing taken care of

Mike and I went to the Social Security office today. We needed to take care of getting his representative payee changed to me. His Mom had had it put in her name without Mike's approval and didn't tell either one of us until after the fact. Anyway, we went down there and it was really quick and they were very helpful. I was afraid that they would look at me like I was doing something wrong. I guess I always worry about that because I'm not his wife and under normal circumstances the Mother

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caringfor5

Eventful Weekend

Mikes birthday was Friday and we really didn't do anything that day to celebrate other than I did give him his gift but we were planning his celebration for Saturday. He had therapy that morning and the rest of the day we just hung out here and a few people called to wish him a happy birthday.   About 3:00 or so in the afternoon, I'm on the computer and my cousin who used to live here with us for a short time, instant messages me and wants to know what I'm doing. I tell her nothing and sh

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Busy Week

So we have had a pretty busy week so far. Mike had therapy on Tuesday, I had numerous things to get done on Wednesday, and he had a neurologist appointment today and he'll have therapy again tomorrow.   The neurologist appointment went well. We discussed the continued spasticity in both of Mikes arms and two of his fingers on his left hand. It was decided that we would go to another physical medicine doctor for an evaluation for botox injections to see if we can do that coupled with more

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caringfor5

Bar-B-Q's and family get together's

Happy Labor Day!!!!   We're just sitting at home today, but yesterday we went to my parents house for lunch. It was so nice out and Mike really enjoyed it, except he was a little ready to go home before my sister who was transporting his chair for us was ready, so he got a little grumpy then. It would be so nice to have our own transportation. He rides in our car but his wheelchair doesn't fold down so we have to have someone else take the chair, but it's still so nice to get out of the ho

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Reducing meds...a little worried

So today Mike had a dr.s appointment with his primary care physician. We didn't really have anything new to report but I did talk extensively about the fact that Mike has very severe motion sickness or what we think is motion sickness. We're not sure if that is all that it is because he gets sick at therapy sometimes and its those times that really worry me because he gets this far off glazed over look in his eyes says his head feels hot and then sure enough he gets sick all over the place. S

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caringfor5

Tired, Tired, Tired......

Tired.....that describes everything. I am just constantly tired. I never seem to get the sleep I need but yet I wake up without a alarm everyday around 6:30 a.m. whether I need to or not. Today was a therapy day. I was up at the usual....6:30 but today unlike some days I actually needed to be up at that time because I have to have myself and Mike ready by 8:00 am for therapy that isn't scheduled until 9:00 am and is just 5 to 10 minutes away from our house. Why do we have to be ready so ear

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caringfor5

Good news for a change

So today Mike and I finally got some good news. As I'm sure everyone on this site who has ever read one of my posts on the message board would know, we have had troubles with his Mom and have had to seek legal advice for a few things. Well today we found out that his mom has voluntarily dismissed her petition for guardianship that we were fighting her over. Yeah, Yeah, Yeah!!!!!. This is a huge thing for us. Finally I am his POA which we had put in place a couple of weeks ago and now we don

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caringfor5