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T-Ball Tryouts / April 2009

Today we took Tootie to the tryouts. With the assistance of her grandfather, Tootie hit the ball between the pitcher and 1st base. We then assisted Tootie in walking the bases. We will receive our uniforms and play our first game on 18 April :Clap-Hands:   P.S. We had to take Tootie to the ER again. The school called Thursday (2nd) and informed us that Tootie had been sleeping most of the morning. When Tootie

Elondie

Elondie

Fishing

Today we took Tootie to the 21st Annual Fishing Event for Really Special People sponsored by The Heart of Texas Region MHMR Center and area businesses.

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Elondie

Catching Up

Tootie went back to school yesterday. After school, I picked up Tootie

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Elondie

Merry Christmas

At this time of giving, receiving and sharing memories, I have so many blessings to count. My hope is that each of you has a blessed time of sharing Christ

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Elondie

Emergency Room

I had to take Tootie to the ER on 11.18 (Tuesday). The school nurse called my daughter and told her she thought Tootie might be having a TIA. The teacher initially called to say Tootie had a huge bowel movement at breakfast. The teacher thought Tootie may have had diarrhea. My daughter explained she had given Tootie a sublingual Fleets the previous night. Tootie has a lot of problems with constipation and we have tried everything; apparently this works.   Anyway, then the school called an

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Elondie

5 Years Post-Stroke

This month Tootie is 5 years post-stroke. I was going to share what we went through but it is too painful. I do reflect on what happened but don

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Elondie

Neurologist

We took Tootie to the neurologist last week (10.16). The neurologist upped Tootie's Topamax from 2 25mg tablets a day to 1 25 mg tablet in the am and 2 25 mg tablets in the pm. Tootie is now experiencing new seizures in addition to her Infantile Spasms. We keep hoping she will outgrow the spasms but so far, she has not. The neurologist also put Tootie on 1 ml of Prozac. I am truly ambivalent about that decision    

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Elondie

Heart of Texas Fair and Rodeo

Tootie was invited to attend the HOT Special Ranch Rodeo on 10.08.08 (Wednesday)   All the children received a t-shirt, a medallion, and a hat   The children rode a horse and a stagecoach :happydance:   You can see Tootie

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Elondie

Cheerleading

Tootie is going to join the Upward Special Needs Cheerleading Program at one of our local churches. The program won't start until January but we need to complete the application and turn it in as soon as possible :Jumpy:   The church also offers a basketball program but my daughter and Tootie's dad want Tootie to be a cheerleader :cheer:

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Elondie

Gymnastics

My Tootie is goint to start gymnastics this month :kicking:   I have no idea how well she will do but, we are going to give it a try.  

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Elondie

Stroke Center

On Tuesday, I visited the Stroke Alert Day booth at one of our local hospitals.   It was at this booth I discovered the hospital is preparing to open a Stroke Center :happydance:   I called the Stroke Coordinator today!   The center will have 8 beds dedicated to stroke patients; this is great news for Central Texans :Clap-Hands:   Since the hospital doesn

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Elondie

Tootie said I wub you!!!

As I was holding Tootie, I was telling her; I love you. I usually tell her 3 or 4 times. She looked into my eyes and said I wub you :wub2:   I turned around to ask the others in the room if they heard what she said? They said yes, that

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Elondie

Speech

Today we met with a rep from Technology Access Inc.   We looked at the Say-it! SAM and were considering getting a Say-it! SAM Tablet   However, the rep stated she felt Tootie might benefit more from a Tango Communication Device :Clever:   We are hoping to meet with a rep from that company sometime this month.   I really appreciated the rep

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Elondie

Teeball

This morning Tootie tried out for Challenger Teeball :Clap-Hands:   With assistance, Tootie was able to hit the ball a few times :clap:   Of course, you know after practice, I went to Target and bought her a foam teeball set so she can practice at home

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Elondie

Physical Therapy

Yesterday was the second time Tootie used the IM (Interactive Metronome) in PT.   Tootie actually clapped her hands 3 times by herself :Clap-Hands:   Tootie is also getting much better at riding her AmTryke :bicycle:   Go Tootie :cheer:

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Elondie

Occupational Therapy

I am so proud of my Tootie :big_grin:   Tootie's OT had a pink piggy bank with large colored coins. Tootie

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Elondie

Hippotherapy

Tootie finally started riding again this past Tuesday (March 4th) :Clap-Hands:   She always gets so excited when she sees the horses and most of the time begins to make the sign (ASL) for horse :happydance:   Tootie must tap the saddle and say

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Elondie

Ballet

Well, my Tootie Bug starts her Special Needs Ballet Class tomorrow :happydance:   I'm hoping she does well because she loves music :harp: :violin:   Plus, I can't wait to see her in her leotard and tights :cheer:

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Elondie