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William's journey

Entries in this blog

Maybe I should just quit work....

I just had the worst day at work. Awful cannot even describe it. I got to work at 4Pm. The pharmacist ahead of me was backed up. The que was 11 pages and he was still trying to verify 2Pm stuff. The order from the day before had not been done. The new order from today had not been touched.   Lot of complaints and unhappy customers. I could not catch up.   That was work.   But, the morning was nice. I took William to the pool. He is doing so well. We had lunch and then he had a

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ruthpill

What a long day....

Today, I got up at 4AM. William and I are so used to getting up early for the pool. Even when I cannot make it to the pool. Our regular pool is closed, so when I have the morning shift, I cannot make it to the pool. But, we are up anyways. We chose to listen to the news.   I manage to snooze a little. I am up at 6AM. I get up and showered and ready for work.   I drive to work and stop by the donut shop to pick up some kalouches and donuts for the kids at work.   I get to work early

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ruthpill

More bicycle pedaling because the pool is closed.

The Ymca that we usually use is closed for remodeling. They are putting a new roof on the indoor pool. this is supposed to take anywhere from 3 to 4 months.   In the meantime, I can use a different Y, but the drive makes it impossible for me to use the pool on a daily basis. Perhaps twice a week depending on the weather.   I got William up at 6A but we had lightening on the way over. That means that the pool is closed. So, I turned around and drove home.   I will call and see if the p

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ruthpill

Dinner out at a German restaurant....

William had looked forward to eating out with a group from church on Friday. Friday finally comes and we drive to the restaurant.   We get there early...We wait in the bar area and William has a beer. I have a glass of water. I am not an alcoholic drinker. Just never learned to develop a taste for that type of thing.   Our tables are finally ready. Willliam has to step up one step to get to the area we are to sit. He makes it up and we get the seat closest to the entranceway.   For

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ruthpill

kooza...cirque de soleil

It was fabulous. William thoroughly enjoyed himself. He anticipated the evening to come so much that he spent the day resting after his morning pool therapy. He was really excited. I got home at 2:30 PM and William wants to get ready to go. The program doesn't start until 8P. I told Wm that I needed a rest so that I would be up for the end. I did get a nice nap in. I got to the tent early. It is always fun to get there early. good parking and the crowd to get you excited.   Handicap

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ruthpill

Hundreds of Run-a-muck kids and william in the pool...

I got off work at 2Pm and decided that I was going to go to the pool. I step into the house and tell William that I am going to the pool. He says, I'll go with you. I am shocked. I thought that he would stay home and just let me go. Well, I take him and Lo and behold the kids are all over the pool.   Lots of kids. They are in the summer kids program at the YMCA. William has to endure them for 20 minutes. They have to get out at 3PM. They are shouting and jumping and splashing as

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ruthpill

Reminiscing..... How things were.....

I was thinking of the past today. I am up early and have the time to myself.   Before stroke....life was so different. It has affected William and myself. William can only walk with assistance and needs to have a caregivere with him all the time. I have taken on the job of full time caretaker. I now have two full time jobs. Who would have dreamed that I would every do that. I did that before when I was young. I worked and and was a single mom. This is just like that time thirty yea

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ruthpill

Beating the rain!!!!! that is my excuse.

My excuse for getting William to the pool by 5:30A has been that we need to miss the afternoon tropical rains that have been coming down the last two days.   Summer is a hard time to get the swimming done. We need to get to the pool early to miss the kids swim lessons and other activities that start in the pool during the summer.   but today, we had lots of lap lanes taken up by an early group of some sort. that pushed the regular lap swimmers over to our area. The waves that they make..

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ruthpill

Healthy eating......and water yoga

I was visiting with a friend and was turned on to eating healthier. He go me to watch the video on Bill Clinton and the doctor who is advocating vegetarianism.   I have always been interested in becoming a vegetarian. but, have never went the whole way.   I have instead decided to eat healthier. Increasing the amount of fruit and vegetables in our meals. William does love his meat.   You will certainly lose weight. William eats less when he doesn't like stuff. This is one way to lose

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ruthpill

There's dust on the floor!!!!

Can you believe that dust on the floor bothers William. Yesterday I noticed some powder on the floor and he wanted me to clean it up. I didn't feel like it. This morning he see's it again and says "There is powder everywhere". Please clean it up. The powder is from him. I powder him after his shower and it gets on the floor. William obsesses about stuff like that.   I am not the best house keeper. But, I do keep the floors clean. that is why he notices any thing on the floor. As

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ruthpill

Insisting on continued therapy....Explaining that it will never end.

I had to have it out with William yesterday morning. He refused to go to the pool. I told him that if he did not work with me then I would not be working with him.   I proceeded to toss his swim trunks and swim top into the trash can. I explained that if he was not going to do therapy then we could get rid of his stuff. He was not pleased. He said that he still wanted to do therapy and did not want his stuff thrown away.   I had to walk to the garbage can and pick his stuff out. He wa

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ruthpill

Why exercise? Why ask that question?

Swimming is such a funny thing with William. Well, walking in the water.   William still goes to the water with me 5 to 6 times of the week. Even after 2 years...he still does not suggest this outing on his own. He just agrees to go with me.....because he knows that I will have a fit if he does not acquiecse..   Yet, every time after we are finished...he does agree that he feels better. He knows that this is helping him .   Exercise wears him out....I know that he is getting a little b

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ruthpill

Rigorous Routines. They work?!

I asked William if a regular routine is a good thing. He said "yes". He likes to know that each morning is the same.   We get up and get ready for the pool. No surprises there.   William usually gets up and says where are we going. I just have to reply. We are going to the pool. Sort of boring...but the routine works.   William does get a reprieve when I need to work the morning shift. this is usually only a couple of days of the week.   The handicapped bathroom at the YMCA is br

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ruthpill

TGIF.....once we loved those letters....Friday....

TGIF...would be true except this is my weekend to work. our schedule. 6A....at the YMCA to get our water workout. Wm did not give me a bad time...because i told him that we has Sat and sun off. since I am working.... I get my laps in and Wm counts. Shower....I had to really wash him off. He always complains that i am rubbing his skin off. I am just exfoliating his outer body. I try to stimulate the left side by vigourous rubbing. Maybe too much.   Next, coffee in the lobby.   On o

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ruthpill

Scams....via e-mail

I was reading my e-mail yesterday and read one sent from a friend of mine. It said that she had gotten mugged in Wales and was stranded without any money. She was at a public library using the internet and needed somebody to wire her cash via Western Union.   i felt so bad for her. She was not able to get in touch with her family and said that the motel would not let her leave until the bill was taken care of and that she was nervously waiting for somebody to reply.   Anyway, i don't che

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ruthpill

bathroom woes......

Wm and I have been out twice running errands and we have had bathroom problems.   Monday, I told William that he had to come with me while I had the truck inspected.. That time of year again. Next, I went and had the tires checked and filled with air. I am lack in doing that job. They were low. I should do that every 3 months. Next , i decided that a trip to the store would be good. Wm wanted some cookies.   I get back to the car and Wm announces that he needs to go to the bathroom.

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ruthpill

Confusion......

Today was Monday and William was confused. He did not want me to go to work. Once, i got to work he wanted me to come back home. He finally asked the caregiver to give him a sleeping pill so that he could sleep.   He woke up and was fine again.   I have been thinking of Debbie's dilema...the safety issue. what can you do about a catastrophic fire?? Fires can engulf a room in 3-5 mintues. Able bodied folk are caught in fires and unable to make it out. They are just too fast. My probl

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ruthpill

Long day ...Friday noon to midnight... we made it.

I was reminiscing after reading Lenny's blog. I had written a blog but somehow it is missing.   Yes, i can remember the time when William could not sit at the edge of the bed without support. i can remember when he could not support his own head. Scary times.   Fast forward to 3 years post stroke. Wm is able to hold himself upright without help. We do not use the wheelchair in the house. He is able to walk with assistance. (This means that I move his weak leg. The therapist makes hi

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ruthpill

The pool today or the Superbowl tomorrow without pool...Let's go....

Well, William had no hesitation. The choice was the pool today, Saturday and no pool tomorrow so that he can watch the superbowl. I told him that if no pool today then definitely pool on Sunday. Well, what a response. "Let's go to the pool now." I don't often get tha repsonse.   William cognition is definitely getting better. He is able to decide what he does and does not want to do. He wants to watch the superbowl...no questions asked.   Out neighbor is the hospital. We found out

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ruthpill

Chat is working again. thank you

I am so glad that chat is up and working again. thank you, Steve for all of your hard work.   William is going to PT with his cargiver on Tues and thurs mornings. He is doing the nustep machine. this machine has his arms pushing and pulling and his legs pushing in and out also. His left hand and left foot are strapped onto the machine. Wm said that is gave his arm a really good work out. William had his AFO adjusted. He has the type that can have the dorsiflextion changed with a change

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ruthpill

A sick caregiver...Christmas Eve & Christmas

I got off work at 6P on Christmas eve. My plan was to rush and pick William up and attend the Christmas Eve service at church. But, Oh, Boy, was I sick. I just didn't have any energy left to try to go to church. It was damp and cold out, William was not dressed. Everything told me to just stay home and recuperate.   William was understanding. He was dissapointed he had been dreaming of attending this particular service all month. I have been so fortunate..Not so much as a sniffle for

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ruthpill

White Christmas...the musical

We started the Christmas season with a musical. White Christmas. It was fun and William really enjoyed it. He knew if from the movie with Bing Cosby. But, the part with the soldiers in uniform was missing. William wanted to see that part. We had Snow in the Hobby center. They had a similation of snow at the end of the musical.   William is afraid of heights. We are in the top area and of course in an area where wheel chairs can be positioned. But, William wants to be behind my chair.

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ruthpill

2-1/2 years of water therapy

Wm had his stroke almost 3 years go. He was in the hospital for 2 months. He came home in a wheelchair. We had OT, PT, and speech and acupuncture.   I started the water therapy 5 months post stroke. Wm was not able to get into the pool without the use of the chair lift. He still used the chairlift today. He is not able to walk down the steps. I have found a pool that has a ramp like walkway. He is able to walk into that pool.   I bought him a water shirt at H2O wear. This is a shi

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ruthpill

Our Angel Lynn,....

William and I were so blessed. My friend , Lynn, brought Thanksgiving day dinner to the house for us. I had planned on taking William out to Luby's after I got off work. Lynn said that she loved to cook and wanted to bring dinner over. We had a fabulous time.   It is good friends like Lynn that make us so Thankful for our friends. After a day at work it was so nice to come home and have dinner.   Ruth

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ruthpill

Oral surgery finally...and King Tut

We finally had the tooth extracted. The oral surgeon had an opening on Tuesday. this was perfect. Two days earlier than expected.   The Doctor was pleased by the changes in his blood pressure. I got it to normal levels. William was afraid but he went thru it with flying colors. He just had local anesthetic. We were in and out in less than 45 minutes.   William didn't bleed that badly.   Wed. I had a scare while we were in the pool. William kept saying that something was wrong. W

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ruthpill