The son and his wife will continue through the summer to come up every other week… But i actually got a lady i have worked with in the past…. clean, smart, consciences, hard working and happy for the job…. dan so far has taken to her. she does speech cards with him, and has a degree in music and so the repitition of it all is fine with her..Piano teacher , so she knows…. she loves a clean house .. and is loving our view.. and i can rest easy ( well as easy as one "dares" around Dan ) .. She know
The job is going good, still the technology struggle, but i am familiar with the criminal aspect of the job and can pretty clearly communicate with the cliental… It is so nice to be "back" sorta… I don't think i realized how much i missed work till now… BUT… guess what , the hospital has decided not to renew the speech therapists contract….. AYFKM… you all know what that means… so i am trying to figure out the best way to advocate for Dan… they don't seem to understand - he is happier finally ab
well i have greatly enjoyed my "return to work"…. But - oh yes their is that but - Dan is not happy, same old tricks -- not eating, not drinking, not taking his meds…. I can tell a seizure will be coming soon…. I got him to take his pills this morning, but tonight who knows…. and it might be the seizure aura is the reason for the mood and not the mood causing the aura…. or maybe no seizure is coming - heck i have no idea !! which cam first the chicken or the egg??? The kids are encouraging me
This will be quick, really, me, be quick ??? my trip to AZ awesome, awesome,awesome…. had some trouble at the airport ( in ND) but God even made that work out… Dan was ill mostly cause i was gone, i got home and he was asleep 20 mins after he knew i was home…. lol……. I met some amazing people on spiritual and personal levels…. Dan seriously got "taken care of" by MRS. North Dakota for a few hours… LOL - she crawled into bed with him and watched price is right… remember we have a dual split bed..
yep as my title indicates - i have the bug and gave it to dan… I thought i had the true blue flu, but apparently -not- . Took Dan over for a "rapid test" at the hospital since his onset would have made hi eligible for tamiflu ( if needed) - but the test is negative. so thats good… The timing of all this is not.. I have started to present to dan the thought of me being gone next week… He seems pretty bummed, as he wants to come with, but i told him it was time for just me and my sister… and the c
ND is flat - and windy , nothing to stop the blow, not even trees for the most part…. so virtually everyday in ND is windy… but this spring has been colder than the norm as well making the things like stain the deck or paint the picnic table ( it is 23 yrs. old my dad made it days before he died so we have preserved it well- and we take good care of things ) so i have accomplished a lot between running back and forth checking on dan - watching the camera and cutting trimming hedges and cleaning
I have a nice yard - but have been working on switching things around moving the flow of the yard so to speak… and that is requiring a lot… and those darn little wood chippy things the previous owner had are nuisance so i have been getting rid of those…… when i am done i will be able to have a garden … i got rid of the swimming pool don't need it - more things to maintain and i found a very happy family to give it to ( the family who bought our farm) so kids will enjoy it… Beth is a little bumme
the ND weather has finally straightened out to the point, i can spend a little time outside… Horray -- feels good to go to bed physically tired… not that i don't with Dan but of course you all know what i mean.. been raking and picking and cleaning and watching lil man Weston… I did try to zap myself -- dan had a really great long extension cord - one of the few things i brought from the farm when we moved … it is long and thick - but the end was burned out - and dan also had a very nice new en
so i have been applying for jobs in our area - and believe me we actually have jobs around here…. problem --- Dan is a deal breaker…. as soon as his condition is known and that there are "emergencies" -- boom - done deal breaker.. even subway ---subway ( for crying out loud) isn't interested …now i have worked at every job i ever had for 8 years, almost 20 years and a pt job for 6 yrs….. yes i could get hired as a caretaker , but i have to save that for my husband … i think at some point somet
we returned to MN as promised to see the baby again with april and weston… and that was wonderful… Dan however was far from "wonderful"… same game different date…. so he won't eat, drink , talk , take meds -- the whole bit , stayed in the motel bed the entire time we were there.. i didn't waste a lot of breath on him and his behavior either… it is what it is.. and with the IV i can at least hydrate him - which i did… so i didn't sit and stress as i used to in the past when this behavior has pre
we made a quick ( well 4.5 hr ) trip to see our newest grandchild... so beautiful... just to hard to try to get pics on here - maybe colleen can pilfer my facebook one and some how get it on stroke net.. she is much more savvy ( hint - hint lol) it was a good drive , at least the weather held out for both drives although it stormed the one fullday we were there. we opt for a hotel room and it had the best handicap bathroom ever... made my job a lot easier... room 121 - got to remember ...... u
That has been Dan and my general consensus - it is far from perfect , but we are doing the best we can... Finally we have had a reprieve from all the bad weather... just in time, i thought we would all have a nervous breakdown. Next year as much as i love my little weston man i am gonna have to spend time in AZ -- he can come be with us for a couple weeks and that might prompt his mom and dad to actually use the home they have down there...
Now for my big news we are grandparents again !! Li
Dan had a "shutdown" day yesterday.. the kind i dread - he wont talk, eat, drink, ignored me the whole day . Very effective at letting me know he wanted nothing and no body... and this morning we got a 0630 seizure.. full fledged grandmal-- lasted what seemed forever. I almost called 911 as it just wouldnt end. the best way to describe the last half ot the seizure was like a baby - "suttering" after crying for a long time.. Another "new" thing i hadnt seen for such a extended time . usually it
so april bought tickets for luke bryan ( country singer) and since everyone is kinda "sickly" around here it was a toss up between beth and i going. I although i wanted to spend time with april and erika it takes a lot out of me to go to a event like that. I do well up till about 11pm then i have got to go to bed... and i am sure it would be at least 1-2 am before we got home from fargo from the concert.... so in the end i convinced beth she should go, not to mention i want the girls to have "s
yep, a full fledged diarrhea bug has hit us ( dan) -- i am so glad for all the extras i have purchased --- wow... loads and loads of laundry. and now his bottom is so sore.. grrrrr... but it is what it is.... he was so embarrassed and kept saying just want to die ... and cried ... and i cried cause he cried.. it is so hard to see his "shame" - but later we just kept reinforcing that SH-T happens. so we just deal with it and move on.. I am thankful he is hooked up to the IV at least dehyderation
Thats my Dan - hard working.... Right now he has rededicated himself to rehab... speech more than anything, but really enjoyed his PT visit... and we are putting in for more PT visits at the hospital with a aid so he can walk on the altra G .... thats what he needs most repetition .. The speech guy that comes to the house is excellent - young, hardworking and Dan literally lights up when he comes... we are appvd for 3 visits a week through March.... and Dan works and works on his iPad apps for s
after dans episode of spasticity and pain the othernite i noticed during bathing today he had a new injury on his toe next to his big toe. so i called for a appt to see a podiatrist . wow they had a opening.. today.... we went and she had time to remove his bigtoe - toenail-------- so unexpected but necessary as his bigtoe toenail was beating up the smaller toe when his toes, feet would spaz. so we did it -now he is "laid up" and hurting - because of course this has set off fullblown central nue
my poor Dan woke last night with the worst type of nueropathic pain centered in his foot/toes of his affected leg..... rubbed it, warmed ( with a heating pad) - in the end it took 15 mg of valium and 10 mg of oxycodone and 600 mg of gabepentin to knock it or him out.... and he was asking for more pain meds ( and he hates pills ) ... boy oh boy - he writhed in pain from 0330 to about 0700 .... i knew we would enter this stage of after affects of stroke - he has always had the nueropathic general
Is it possible we are surviving the stroke ? Our life is no where near the same. Our location has changed, we have lost our "friends" and "family", we have to plan for everything, every event and every "what if" at a event,we deal with IV's and medications daily and weekly and sometimes way, way more than daily, I fail at being a effective mother and Dan at being anytype of father, or grandfather , we have very little enjoyment out of life ( although we do try) , every morning brings the dreaded
I know better than to say - all is good........ that is a karma set up - not really i am not that superstitious although i believe in the "judgement" after our death... enough ( way , way to controversial ) ... still learning about the hyderation issues with dan - it is like the more his body gets the more it wants/needs... his mood is OK - mine is in the dumps I am so sick of this weather.. and would love to just be in AZ but - the grand baby - is here.... yes i have another in MN but they are
sometimes i have no answers.... i am getting dan all washed up for the day. He took his shirt off that he had slept in... i didnt pay attention to - where- he put it... But he was acting kinda "coy" -- come to find out he had shoved his shirt in the toilet and didnt want me to know... he didnt seem to know why he had done it either... some one was posting about impulse control.. i guess i got my example of the day ... well at least he didnt try to flush...........
My tooth is still bugging
so we avoided the negative 50 windchills by leaving , but both of us managed to catch colds..... pretty sure not a "flu" no fever, or body aches.. so probably just a cold... first me then dan... finally convinced him to get out of bed and shower.... and straight back to bed he went ... exhausted - but at least he is sleeping ok, and doesent sound terrible.... we had our flu shots.... and i can function ( barley)-- mostly my tooth i had the crown prep done yesterday and man today does it ache...
I suppose this will be a "woe " is me blog --- not my intention.. more of a centering........ I miss working, the kind of job where you hear the alarm go off and think - "arghhh - do i have to go to work today?" Then you get up shower, and the world is a little better. You drive to work hear a song you like or laugh at a joke on the radio.. your day improves. You make it to work "clock in" and hear about someones shenanigans - since the last time you worked with them.... and just like that you
dan seen the weather coming and decided it was time to leave, so we went to las vegas ( his first trip here) ---- t shirt weather for us here , but even here they say it is COLD.... hey i see the sun i am happy - dan to ..... few issues he had a seizure last night arghhh. like all seizures it presented a little different.. had ems hook him up to make sure not a heart attack - he was having so much pain.... he seized while eating, choked on the food, but came to pretty fast ( in stroke/ seizure
