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Finding a new Support System


alyh527

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Well, this is my first time in blog world, but I was having a interesting night. A friend decided not to talk to me anymore, and they had been a big support the past week or so as I was starting therapy at a new location. He had a previous brain injury, which he had gone to this facility for. He had great sucess with it, and was telling me I would to. Lets just say I feel like I lost my support system tonight. I know that I have my family and friends, but I feel that at 20 years old, a lot of the people my age don't exactly understand what it is that you go through as a stroke survivor. But I just want to feel normal again. And I know that this is my new normal, but the constant head spinning, must sleep, be laying down, or feel like I am going to get sick feel has to go away at some point right?

 

Sorry if this was more of me complaining then anything else.. I just think thats what I need right now. I thank everyone at SN for being there for me. Love to you all.

 

Alyse, NJ, Survivor as of 3/4/2012

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Alyse: you vent all you want. This is what we are all here for. Bruce and I have a friend whose daughter recently stroked while giving birth to her second child. She, like you, is just looking for someone her own age, going through the same issues. Yes family and friends are important and those we depend on, but it so helps when one can find a peer going through the same thing.

 

Consider maybe that you are as important to him as he is to you and this might just be a wrinkle in the relationship. I hope so. Stay well, continue working and I do so pray that the new Rehab is just as successful for you. Debbie, caregiver to Bruce, stroke 2009

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This is probably NOT you new normal. It hasn't even been a month since your stroke. It takes the brain 6 - 12 months for the swelling that happens after a stroke to go away. Nothing is set in stone for you yet.

 

This is the part of being a stroke survivor that I call "living in a snowglobe." basically, everything got shaken up really hard and your feet have not yet touched the floor. It took a while, for the spinning, fatigue, nausia and all of the initial sensations of being disconnected from the world and reality to go away for me too. I still have some days when I feel the world tilt and I fall to one side, but not as violently, and not as often.

 

As for your friend, there is this interesting little problem that I have discovered most stroke survivors go through, and can for years after their stroke, called "emotional liability." Our emotional reactions are, for no good reason ( or any reason at all) WAY out of proportion. This may well be what happened between you and your friend. Give it a little time, then try reaching out to him. Things may not be as lonely or helpless as it feels right now.

 

Know, also, that you have a whole group of supporters right here who will hrelp talk you through anything and everything you are going through.

 

Best of wishes!!

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I can certainly understand your feelings after all you only know living with normal body functions and being with your family and peers! Now being so young you feel condemned and out of touch! You are still very normal we have many soldiers here with missing limbs and you and me still got ours just they are paralyzed! So try to think of doing all you can with how you are and keep getting better!

Fred!

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