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Great another wonderful diagnosis


FrederickRico

1,425 views

Good morning

 

first let me apoligize because it seems like all i do is whine, but here it goes again. had appointments with the neurosurgeon and neurologist yesterday. Neurosurgeon has discovered a Chiari Malformation in my skull which is impacting the flow of the spinal fluid and "compressing" my brain. she feels it is the cause of the worsening of my deficiencies and wants to get it taken care of right away which involves surgery to releive the pressure. This would probably alleviate the headaches, loss of memory, some of the cognitive issues and balnace issues. The neuerologist on the other hand I am going to fire. He has constantly since the day of my stroke made me feel like I was some kind of shirker trying to get on disability. Yeah, right, give up a 129K a year job to sit at home and watch soap operas. he has for the last time made me feel like this is just something in my head and has now perscribed me depakote. Depaklote which has major interaction issues with the other medications that I take. Does he not have access to the internet? He told me yesterday that the continuing issues have more to do with bipolar depression. Horse hockey, i have been tested for that and was found not to be. What does this guy want, just for me to keep taking more and more drugs and become an emotional zombie in order for his flawed diagnosis to be un addressed? I am angry, I am scared, I am depressed but I know damn well I am not crazy at the very least not crazy enough to keep my trust in someone whom I need to trust for my health and safety that I dont trust any longer.

 

 

sigh

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Hey. I'm sorry to hear of this complication but I have great confidence that once this is taken care of you will feel much better. I'm glad you're getting a new neurologist.

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Rico, I'd have a hard time accepting the diagosis of a doc I didn't trust, and an even harder time leting that doc operate on me. On the other hand, scarey as it is, in a way, you're lucky if the doc is right, because I have all of those symptoms from my stroke, and sometimes, I wish there were a surgery to make them just go away. Get a 2nd, definitely, get a second opinion.Becky

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Thanks for the support when I whine. I guess i should clarify that the what was found is making the deficiences worse and while they may lessen, they wont disappear. I am still coming to grips with who I am now and letting go of who I was. I have to be very careful cuz my wife is at her limits right now with everything going on and with issues with her two teenaged daughters. So I will spend a lot of time in my man cave this weekend and give her as much space as I can.

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ok you trust the nuerosurgeon who found the formation. so keep him. but if you don;t have confidence in the nuerologist ditch him.... you gotta have trust. ask your surgeon for a referral. nancyl

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Well thank goodness you finally got a dr who may be able to help you. If there is one thing I have learned throughout my life it is to trust your instincts. If you don't trust your dr is giving you good/correct information then by all means, find another one. Nancy is right, your neurosurgeon can give you a referral for a new neurologist.

 

It is sweet of you not to want to burden your wife with your "issues" right now. And I know how stressful teenaged issues can be, as I have two teenaged sons. You just stay in your "man cave and talk to your friends on this website this weekend. That is what we are here for. Even though I am sure your wife would want you to talk to her no matter what else she has going on, I am sure you are at the very top of her priority list.

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