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Understanding


mnhorselover

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I am trying very hard to understand everything in my "new" life. It is hard to accept that they still don't know what caused my TIA's, but talking to a friend (the one that did my EEG) this is normal. She said if one thing doesn't jump out, then they go to ruling out one thing at a time. It takes time and eventually they will find it. Until then, more tests and still the dizziness. I know I am very lucky with my very limited effects of my TIA's, but I keep waiting for "the big one" to hit. It's like, if I feel dizzy I'm waiting to seize and go down stroking. Which in turn keeps my blood pressure up. It's a vicious circle. I try talking to my husband, which ends in a fight. When he sees me hurting, all he wants to do is fix it and when he can't he gets angry. I love him, but I need someone to talk to, so thanks for listening! :thumbsu:

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I know what you mean by living with that 'waiting' fear. I think everyone whose already had a stroke them or their loved ones, wonder if and when there will be another one. Although it's always somewhere in the back of my mind, it doesn't rule. The thing is, even without a stroke, people die everyday from car accidents or other sudden unexpected things. Realizing this, we know every day is a gift, and we live that day to the fullest, because even if we live 100 years, THAT day, will never return.

 

I'm glad you are under a doctor's care and trying your best to protect your life, body, and sanity. I know I'm not doing myself any favors by the binge eating I'm doing. As sole caregiver of my greatly affected husband, if I go down, he goes to the nursing home, so my health is what is carrying us both. I'm trying to break these bad habits, but I know there are certain foods I eat that trigger binge eating, and I have to weed them out if I seriously want to feel better and last longer. That done, the rest is onto the obvious not letting a day go by that I don't try to find a joy in it, because that day is all I have for that day!

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I know nothing about Tia's, never had one I know about, didn't know nothing about strokes 8 years ago when mine happened!!! I thought I had Mad Cow disease since I couldn't stand up!!

 

I know you really want to find out and know what's causing them to keep coming on you!! Maybe the docs can or will tell you with a bit more checking your system for causes!!

 

Things like that sure can drive you up a wall but mine was a full blown stroke brain bleed and I passed out my wife found me on the floor when she got home from a dental appointment!! Had she been at work I wouldn't have survived another couple hours the doctors told her!! I suppose God wasn't ready for me yet!!

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what you are going through, I do understand, myself I haded two Tias toldby the doctors i be fine go back to work and then I haded a stroke. It takes time to get over the angry, hurt, fear, and it is hard on your husband. First , take care of yourself,take each day as a blessing , and tell yourself that you have another change at life.

Understand that your husband loves you and it so hard for him to see you going throught this and he can not do anything. My husband, would leave the room when the doctors came in the room, now he sometimes look at me ,and say" what is going on baby" like I know. It has taken me two years to accepted what happen to me, now, I enjoy my family, I go for slow walks and enjoy the life that is going on around me. God Bless.

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Horselover, welcome to the Blog Community where you will live with a whole lot of people who you will come to know by reading their blogs.

 

Yes, a lot of us, caregivers and survivors alike, are afraid. My husband Ray has had seven strokes, TIAs, seizures and fits. I am scared of anything that will add to his impairments and take away the little process thinking he has. I go every day to be with him in his nursing home and enjoy the little bit of togetherness we sqeeze out of our time each day.

 

I wish I could tell you not to be afraid, instead I will tell you to live each day of your life to the full.

 

Sue.

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Guest hostwill

Posted

Being an aircraft engineer requires lots of troubleshooting. Not being able to duplicate the problem is the hardest when it comes to finding out what's wrong. On another note, the Medical world has learned a lot from us survivors, because we survived. Things will get better and some doctors are getting smarter.

-Will

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I go for my balance testing tomorrow! Yippee! I hope they can find out why I'm so dizzy. It is position/motion related, I do know that. Talking to people, I have to stop nodding my head and I need to say "yes" or "I know" or respond somehow with words or I really get dizzy. Then off to the cardiac doctor on Tuesday...more doctors and more tests and hopefully someday more answers!

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