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When your soul dies


Pearls

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My husband and i had just returned from an extraordinary river cruise in Europe two days before. I was ready to go back to work and get back in the swing of things but i had caught a cold on the way back home which was quickly turning into bronchitis. Coughing, coughing, coughing. My husband was outside doing chores in the yard. Should i call the doctor or should i just suck it up. Coughing, coughing, coughing. I was coughing so hard i was choking. I went into the bathroom because that is what you do when you are sick. I coughed so extreme that i thought i was going to have a stroke if i didn't stop. I don't know where that thought came from. And then it felt like my whole head exploded. That lasted a very short time and i became very sleepy. . I looked at the toilet and decided that i could lay down there and go to sleep. It seemed like it would be awkward and not too comfortable but when you are super sleepy it made sense. The next thing i know my husband is there telling me to smile and to raise both my arms. I thought i did both fine. Oooooops. I was wrong. Next he told me to put my arms around his neck and dragged me out of the bathroom. For some reason i couldn't get my left arm to work. But no big deal. I was calm and didn't really care. He was holding me on his lap and I was resting comfortably. He said he was calling 911 because he thought i had a stroke. And i thought he was crazy. I felt fine, sleepy but fine. When he started talking to 911 i became upset with all his foolishness and told him to hang up immediately. Then i really got upset when he gave them our address and directions to ourhouseand started screaming, " Don't tell them where we live or they'll come out to our house." Can you spell Denial with a capital "D". You may have to be a woman to understand this next part but it felt like my pants were pulled down and the last thing i wanted was a group of young good looking EMTs and fireman to show up in my bedroom with my pants pulled down. I kept yelling at my husband to pull up my pants and he kept ignoring me.Finally i felt hands on my hips tugging at my clothes. By this time i was truly annoyed and started slapping at the hands. Then a deep male voice which did not belong to my husband whispered in my ear, "Mam, i'm just trying to pull your britches up." I cooed sweetly,"Thank you." I don't recall ever seeing the EMTs, or the ambulance ride to the hospital. I don't remember the hospital until i was on the heliport being transferred to a Life Flite helicopter. I do remember opening my eyes to read the logo on the helicopter so i would know who i was travelling with. I'm not sure i knew why i was being medivaced to a different hospital but knew i must be in serious trouble. I felt peaceful and calm. My only concern was whether or not i was going to ride inside the chopper or in an airlift basket on the outside. If i was going to be on the outside i wanted to ask for extra blankets since it would most likely be windy and cold. I asked if the helicopter provided wine service for the passengers ( i work for a winery ). The nurse and pilot seemed amused. I thought it was a reasonable question. I wonder if i was on drugs at that point. I had a strong sense of peace and well being. As we lifted off i remeber thiinking about near death experiences and the famous light at the end of the tunnel beckoning you to the otherside . I decided that if i ended up in that scenario it would be best to make up my mind if i was going to follow the light or not rather than at the last moment making a rash decision. I was curious what was on the otherside and what heaven looked like. But on the down side, i might be choosing death and not come back. It was important that i choose wisely and cosider all the pros and cons. It was a dilemma that i might be faced with because i knew i was in grave danger. I made my choice but the light never appeared and so i am alive.

I don't recall landing in Portland at the hospital or the ER or Ct Scan, MRI, Angiogram, or anything. The next thing i know i am talking to a Neurologist and he is asking me why i am not very friendly. Duh? I don't know where i am or what is going on and he wants me to be chatty? A week follows in the hospital where i remember some but not all. At some point i learn that i had a sizeable brain hemhorrage in my right motor cortex and that i am paralyzed on my entire left side. I dont know who told me or how I reacted.

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Wow, interesting story Pearls.  Thanks for sharing.  Everyone's journey into the stroke world is different.  I'm glad you are here and blogging your story.  

 

I wish you the best in your recovery and thankful that you received the medical attention and care when you had your stroke.  Let us know how you are doing and come back to this great board so we can share and learn experiences from this dreaded disease.

 

Julie, caregiver to spouse, stroked 2/10

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Thanks for showing us caregivers how it looks from the other side.  Ever since the stroke, my husband has been so mellow about everything...and for that I am grateful.

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Pearls,

 

I am Cathy, wife and caregiver for my husband, John. He also had a hemorrahgic stroke on the right side of his brain. His was in April, 2013. I am always amazed by the fact that no matter how many times hear stroke survivors tell their stories, it terrifies me. I cannot image what it must be like. I am also amazed everytime I read the forums and blogs on this site and say to myself " the people on this site are the only ones that truly understand what we've been through and what lies ahead for us". I read it everyday. You will be welcomed with open arms and understanding hearts!

 

Wishing You Well!

 

Cathy

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Welcome to the Blog Community Pearls, as you have found out already there are a lot of caring people here.  It is interesting as a caregiver to hear a Stroke survivors story from the inside out.  My Ray had many strokes and TIAs and then seizures towards the end of his life (he died two years ago) and although I witnessed it all it is hard to know what it felt like to him as he himself could not express that.

 

I wish you well in your recovery and I look forward to reading more about you here.

 

Sue.

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Pearls: Bruce remembers asking me to help him to the bathroom and my sister, Mary Beth, helping him down the stairs. He remembers his ride in the ambulance and telling the ER PA he could hold his arms up and steady and was ready to go home. Bruce major stroked in CT scan. Up to then, he was just tossing clots. I knew that, Paramedic knew that. ER PA just thought he knew better.

 

Thank you for the insight. As most have said, there are so many gaps in talking to our survivors. Debbie

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Pearls I totally understand about the pants because I had a stoke right after getting out of the shower and the paramedics came and I had put on some clothes but I had no make up and my hair was not even combed. And I did care but did not care and wondered why in the world did I care. I liked it that you chose to live and I think you are needed here by those that love you and those that meet you.  The part about helicopters sounds terrifying with or without wine. Your entrance to the hospital was much more grand than mine and it sounds like they did an amazing job taking care of you. It is unsettling to not remember pieces but as long as you had a comforted sense of calm and slept through the storm then it is good then. I remember when the fog cleared nad I had my anxiety attack in the hospital and they asked if I had panic attacks before and I said hey I never had a stroke before and lost my life before so no I guess not but I am panicking now.  Why do they ask you to be friendly at at time like this? Oh HI, howsitgoing? Just want to compliment your hospital chef and have you seen many patients today or were you stuck in traffic on your way here? OMG so many things you want to say need to be filtered. And in the beginning there is a fog of disbelief that takes a while to roll away.

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I think the doctors are only chatty the same way police officers are when they pull you over.  They are testing you, they don't really care about all the chit chat really. Just seeing how you react.

 

We didn't have any helicopters involved, but the sound of an ambulance siren used to make me cry...and since our hospital is nearby, it was a daily occurance.  It took a year or two but that quirk did finally stop.  Ray doesn't remember any of that fortunately.

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Great story Peal, we all have one to tell. Please that you chose " to live", that what I did and it is tough after having the stroke, but I count my blessings every day.  I can not remember everything what happen when i had my stroke, as I had a few TIA 's before the stroke.  I know after the stroke I was scared about falling and stairs as I fellen on then !  Never mind life goes on.Take care Peal, do keep on posting

 

Yvonne

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