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12-1-14


molly2350

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The last two days have been 1 step back and 1 step forward. Buck looked better today but pretty frustrated.. The cathetor was removed due to an infection. Changed towels once an hour or two to keep him clean. Bowel moves are so demeaning to him. He was emotionally down today. I managed 30 reps on each of his arms and hands. He also developed bronchitis and they are checking what strain it is. Got his flu shot when he was admitted and his pneumonia shot today. Weaning him off blood pressure meds. No fever and all vitals are good. First day that he was breathing completely on his own. He starts yawning late in the afternoon and they do assist him at night with the vent. It is imperative that I work with his arms and hands. I do not want him laying paralyzed in a nusing home that is an hour away. I will only be able to visit every other day at the most. The case worker told me not to move yet because most likely they will move him again in another month. This is what happens when you don't have insurance but I am fighting that we can possibly get him placed at Colonial Manor where my Mom spent 6 years. Family owned since 1962 by the same family they treated my Mom very good. They keep everyone clean and busy with many activities. Food is decent. We ate lunch and dinner several times. We'll see. Anyway, so until tomorrow.

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Keep making sure his hand gets opened everyday.    I did that when my husband was in the hospital stage of his stroke.    Unfortunately, once he got to rehab and was getting pt, ot and speech, I stopped, because I THOUGHT they were doing it.   In actuality, all ot was doing was bath.   So he now has a fist.   The best thing was if only I'd realized they weren't doing one darn thing with it themselves, and did it myself.  

 

I am surprised they gave him vaccinations while he had bronchitis, as they always make sure we are well before giving us anything at the doctors office.

 

You are doing good  :)

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Molly, you are doing everything you can to make his life improve.  Take any advice given, Sandy is right, never assume the staff is doing any particular thing, always check it out for yourself.  BUT also look after you.

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I concur with both Sandy and Sue...as you have heard us say, you are his advocate so what you say and do is important. And just keep yourself mindful that you need to be healthy to care for him. Your emotions are going to be going crazy - as if they aren't already - as time progresses. Don't listen to any negative self-talk. You are doing all the good things you know to do and you love your husband. Those two things are the most important things for you to remember, in my opinion.

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All of you help me rise above any negative talk. I also started weekly counseling that an anonymous donor is paying for. An incredibly humbling experience.in addition I have been seeing a very good psychiatrist for the past 6 years that specializes in anxiety and panic disorders. Watching my diet better also. I also belong to the Oklahoma group, "A Perfect Cause", thats main focus is nursing home abuse. We have a meeting tomorrow night as and will be researching options for Buck. I think if anyone had the chance to see what I have seen over the past 18 days they would try to at least change something in their lives to prevent a stroke. Shock value to the general public needs to be included in a national campaign for stroke awareness. I can't believe how many men especially do not have their blood pressure monitored. I keep hearing, "It's a man thing". That needs to change. Thanks everyone for your great advice. Was going to blog tonite but my charger disappeared to my tablet. Will post asap.

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