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Do not try this at home...


DeanS

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So..., i wake each day with wondering if my mind and body will continue to function and improve or at least maintain. So far so good, my head is getting more and more clear (most days), my body is also improving, and i honestly think the fog (drug induced) of the last year has lifted. This is causing me to reconsider life, as i find myself in the position of having thought i had lost everything including the will to live, only to discover that all is not lost. The notion that i may be somewhat unique and phenomenally fortunate in this regard is not lost on me... because it could have been fatal. But, fully conscious of the potential consequences, i am choosing to live with mind and body, with a feel for life and living rather than live as a ghost of who i was, even if it means dying younger or sooner than i otherwise might. If i were hearing my story as though it were someone else's i would, i think, express alarm and concern. So i live on....

 

It has been about a month now since i started my experiment with medications and i have no regrets. My worst day since i quit has been leaps and bounds better than my best days in the all of the last year. I think, feel, articulate, and move almost as well as i did before the strokes. And i have to pinch myself to be sure it isn't all just a dream. I had two appointments this last week. One with a psychiatrist and one with a cardiologist. Each was enlightening. The psych doc took my history and asked what my biggest concerns were and i told her that it was primarily my sometimes chaotic thinking that i was most concerned about now (which was different from what had brought me to her in the first place). I made her aware of the three strokes i had, the utter desolation and deterioration that i had suffered over the last year and the seemingly miraculous turn around since i stopped taking meds. I had seriously considered cancelling the appointment because i felt i had recovered so much that it would be a waste of her time and mine. Well it was a waste of time. Knowing my history and about the strokes, she prescribed Trazadone to help me with my sometimes chaotic thinking. I told her that i was very hesitant to take any medication considering my ever improving condition and that i would take the script but that i needed to research the med first and that i might not fill it depending on what i found. As it turns out trazadone is not recommended for anyone with cardiac, ischemic, or stroke issues and should be administered only under close medical supervision or in hospital for people who have a history with such issues. Needless to say, i didn't fill the script.

 

The visit to the cardiologist was no less interesting. Long story short, he asked why he should should treat my case when he didn't feel comfortable that i would follow his directions regarding meds. Through reasonable discussion, we agreed that i would follow his advice and start taking a statin for at least 2 weeks to see how it affected me. In return he would order the diagnostics that he felt necessary in attempt to discover the reason and source for my strokes. While i took the script from him and assured him that i would give it a try i feel very, very reluctant to do so. And now i have been classified as a non-compliant patient which doesn't bode well for anyone. Yet, thinking about it, maybe it lets him off the hook. I swore to myself that i would never again take a statin.

 

I am very grateful that i may have dodged the proverbial bullet and it has caused, or perhaps allowed is a better word, a re-evaluation of my life before strokes versus how i would like to live now..., and that is where i am today,

 

To be continued...

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Have you asked for a blood work with ALL the Factors be taken ?? No one have clue why I having Strokes until a very rare set of test done and find out my blood VERY Bad. "Factor" tests. Hope this help.

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Hi Dean welcome back to life! One sure sign of life is that you are fighting. questioning.defying, asserting, evaluating, and feeling again. I think both appointments were a successful use of time and that you discovered so much.

 

I have found my pharmacist very helpful in helping me know about the drugs I am taking. I am on a handful but I only take the ones necessary for pain and to keep my blood pressure lowered. I take a statin because I have artery stuff going on.  I know that my mind is fogged up but there is a tolerable level for me with a balance of staying alive and still living.  I know the agony of finding and dealing with this balance.  I have refused any mind altering drugs all of my life. I won't take any psychotropic drug for physical pain. that has been my mantra until now with the nerve pain I have been dealing with I went on gabapentin. it helped the pain so much that I have stayed on it. I hope some day to get off of it because it is a mind fog. I won't take anything else that messes with moods though. The blood pressure meds are enough eh.

I have not a relevant thing to say about any of this except that I too wander around hoping that it  isn't brain damage and that drugs are the reason.  It sounds like for you this is true so you are fortunate.

 

But stay alive Dean and find the balance between a mind you can live with and a body that keeps on living.

I am going to throw out one piece of two cents worth though which puts me out on a limb and this is it: a carpenter wants to fix everything with a hammer. a psychiatrist is medical model and wants to fix it with pills. you get the drill...a psychologist ..well they are coming from many approaches worth googling and perhaps there is one with a more natural approach that suits your needs.  Just ask what their philosophy and perspective is first to make sure it is a good fit.  I like the more spiritual stuff myself kinda woowoo mixed with science though. talking is very healing.

 

I am glad you had that conversation with cardiologist. awesome job. He will show you what you need and why and you will get to make choices.

 

You didn't lose a year I don't think. That was healing time in there too. You are in the right place right now where you need to be. I am so happy that you are looking ahead to the future now. I believe in George Eliot's words that it is never too late to be what you might have been. I have it on a bookmark my kids gave to me when I went back to school years ago. I am so old to them you know LOL.

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Hi Lisa,

I  swear i've given pints by now. I think i have all my ducks in a row.... but i'll mention it to my neuro next time i see him. Thanks for the tip! and welcome to the board!!

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Hi Sassy,

 

You are correct..., i did learn something from both. My next appointment is to a fortune teller (just to make sure i've covered all of the bases!!!   :)  I know woowoo and i know science and you know what...? We just don't know what we know (i love that one... one of your politicians wasn't it?). 

 

The last year was pretty much a write off for me but...  ultimately, it did lead me to this point and that is good. I actually don't think that science and mysticism are necessarily in opposition to each other.  i really like the 1st law of thermodynamics as it might relate to the energy of consciousness. Google it. You have a ball! 

 

Your point regarding Elliot is particularly significant to me as it reminded me of something i told my grandmother when i was 3. She asked me what i wanted to be when i grew up and i told her i wanted tp be a fireman. She exclaimed that the last time she asked me that i said 'doctor'. I replied, without hesitation and quite sincerely, that i would be a doctor in my next life.  Hmmm....     

 

Anyway, i am thinking about what i want to do with my life (now that i feel i have one again) rather than what i must do.  And this is good too. I don't want to grow up (know what i mean?)

 

 

By the way...  i really was sincere when i said "don't try this at home". I got lucky

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