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Highs, and lows of surgeries and trying to do too much


worryisamisuse

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I was happy and in a good place because I moved the shower bench out of the tub and just stand (and lean) now and as others have said can happen, my bladder problems subsided! Both of these things happened a bit over a week ago, and made me extremely happy and like progress was being made. Also I bought a bunch of the stroke bracelets and have given some to my therapists to give out, as well a few stroke survivors plus caregivers. This felt really good, I told the survivors + caregivers what they are going through is really hard and to wear the bracelets proudly. I'm also going to bring some to a new Stoke Support Group (which I really want to purpose helping to put together a resource list for, and I need to be careful this isn't part of spreading myself too thin...)

 

I started an online Patient Advocacy a bit under two weeks ago, which I love the learning, but I can already feel it is a bit much for me and I feel myself making decisions of whether to do rehab exercises (Physical and Speech) or do course reading and homework. I think even without the rehab stuff I would have somewhat of an inferiority complex. The class is through UCLA extension and I'd say the average age of my classmates is +20 my senor. I like getting A's, B's are ok, and I really rarely get C's. I'm trying to get myself more comfortable and ok with getting a C in this. It's my first class post-stroke, doing rehab exercises are as or more important, and C's are ok. Yesterday I got really frustrated and emotional over the stress of a due assignment, then I realized I needed to eat and hadn't slept enough the night before and those two things were not helping. I told my PT this and he said it sounded a typical 20-something dilemma lol I like the idea of having a typical 20-something situation, even if it is a dilemma.

 

Also I have an AVM still and on Monday I saw a new doctor about possible ways to precede. A bit under a year ago 2 embolizations of 4/5 were completed with the end aim to surgically remove a smaller AVM. The third one ended in a hemorrhage. The original statistics I thought that I understood was that there is a 4% chance of a burst aneurysm every year, and that seemed like it was more open to a choice of what to do. Especially when a 5% risk of surgical complication had already happened. Monday he conveyed the 4% risk compounds every year and I basically had to remove it, especially now that it's bled twice. Trying to warm up the idea of surgeries, I think the last time they were using a 2d camera and this hospital has access to a 3d one. Also this doctor has treated 1,200 AVM's. I just don't want to have to relearn everything again. I'm ready to move forward and past this. I was after the first one too.

 

Thanks for reading.

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You and I both are very blessed to have survived the kind of stroke we both had and I'm happy to read you are doing real good these days... It's been 11 years for me since the stroke and I'm still a survivor....

 

Mine was on the right side so my left side is paralyzed...

 

 

keep getting better you are a survivor for sure...

 

Fred...

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Hi

I am 51 and have gone back to school a few times and I know I am too old now and much too tired stressed overloaded and dizzy to even read assignments but this is going to be my third semester since my stroke 8 months ago. It is a nice feeling to do something meaningful and worthwhile and future oriented and hey yes classes make you forget to eat an sleep all the time at any age. For me though it beats sitting on the couch watching all the netflix movies I can in a 24 hr period. it is actually nice to be around people in a real world setting and not in a medical appointment setting. It is a nice thing you are doing and really helpful so if you have any helpful hints please pass on a freebie to us ok LOL. I believe it helps to keep the mind and brain busy thinking as much as possible. I am on so many meds I am amazed I have been able to even pass a class and so if I can....you will. Just do your best and enjoy the journey learning and being out in a class. I just tell myself if I don't do well then I can blame it on the stroke like my cooking disasters LOL  but so far so good my mind is there but I have probs seeing with vestibular stuff and just seeing to read. I have to stop sometimes. In class I get dizzy. I hide it well and so far I just look down at my book. I like to talk obviously so I chat in class and love class discussions.

I am going to be taking ed classes. I have to go with a helper to classes. It is so frustrating because I can't walk around alone or drive and some days I don't know why I bother but then again I like lunch time out and just being there doing what I do it is living. So be encouraged and remember that you are brilliant and wonderful and what you bring is needed and meant to be and someone is going to benefit from you just being you and saying what you do in class.

Best.

Pam

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