teal's Blog

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life alone


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it was weir being in my own place and alone, without the hotel help there in case i fell..., it still felt unsettled, though, workmen were still in and out, the bathroom bars had been put up;but id discovered that there wasn't room to position the chair properly for transfer to the toilet, so i needed to have the sink/counter/cabinets removed and replaced with something smaller - luckily i had the bedside commode i could use in the meantime and that i was able to empty it myself - the thermostat had been removed;but not yet replaced, so no heat - i think the biggest problem those first few days was that my unpacked boxes filled the dining area and office, so i didn't know where anything was - it was too quiet when the workmen left, cause i had no idea which box my tv or vcrs or cd player were in ? (i was still in shock that they put them in a box....) i also couldn't find my clothes, so i was still limited to the few outfits id had in rehab;but i was managing... at least i had my laptop !!! one bit of excitement was when the smoke detector they'd put up malfunctioned and went off at 3 am with not a drop of smoke in sight... luckily it stopped after 20 minutes and got replaced a few hours later when the repairmen showed up - i'm thinking if someone could invent a smoke detector whos sensor is up where its supposed to be;but the battery compartment can be placed in reach of wheelchairs,short people and those not wanting to climb to reach it, would be a great invention.... my friend came and put one of those cool long cord dimmer switches on each of my "why are the switches way at the top" tall floor lamps - eventually the repairmen and a friend found a box of clothes for me, and my tv, although not the remote - so little by little things got set up - i had a flat plate put over the drainage ditch next to the street, so that i could get the manual chair out easier, tied a small dog leash to the door handle so i could shut the door - tried to deal with each obstacle as it cropped up - and there were a few - i couldn't use my oven because it is wall mounted, i could stand to reach the controls; but lifting things in or out is another matter;but i've got the burners, microwave, toaster oven and foreman grill, so i manage pretty well - the built in kitchen table is just the perfect wheelchair height - i got a pair of those water shoes, so that i didn't have to transfer to the shower bench barefooted - i was a bit scared the first few times i used it, so would practice when a friend was over - another invention opportunity - a way too keep the floor dry while using a hand shower one handed, on a transfer bench = the shower curtain/transfer bench combo doesn't quite work, and bath mats don't work with wheelchairs, either - until i find something better, i just use a lot of extra towels to mop the floor, oh well.... my power chair was delivered;but i quickly decided it would be an outdoor chair and the manual an indoor one... the lift was great, except that someone other than me appeared to like it, too, one day, when i was about to go out, i couldn't because the lift was down and i was up - luckily i was travelling by paratransit so they could get the lift back up - it needs a "come here" switch so you can move it without being on it... i solved future problems by calling the company and getting a key so i can lock it up or down, wherever i am - other than still being sleepless due to the itching etc, things started to settle into what would be passing for normal now that my world had been jumbled and there was no more normal - but i had a few more challenges to come, ok, more than a few;but you get the idea smile.gif

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Teal,

You go girl! I love your can-do attitude. I think you are inspiring with all you accomplished being on your own. Keep blogging and telling your story. I am enjoying reading it.

Pam

 

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teal:

 

you just keep me in awe, we human are quite great people I m just in awe of you that you are able to do everything by yourself alone , as Pam said, keep blogging, you are truely inspiration for me (sissie) who wonders all time what if my hubby leaves me how will I handle things.

 

Asha

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youre both making me blush - thank you, thank you - and dont worry asha, 1) he wont leave 2) youd manage fine - we all do what we have to do, besides, youve got your son as a cheering section smile.gif

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