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turn and face the strange....ch.ch.ch.changes


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friday is John's last day at work for at least six months, probably until 10/1/06, and quite possibly forever at his current job as a longshoreman. on February 6, he is starting a Phase II Cognitive Rehabilitation Program at Mount Sinai Medical Center in NYC. ( Mount Sinai's TBI Program ), one of the TBIMS Centers in the USA . John is also part of a research study which involves him having neuropsych testing before, at various points, and after his rehab has ended. His program will last at least six months and may last a year. he is going on short-term disability and will go on SSDI if he doesn't go back to work in 6 months. John will have enough documentation be on SSD permanently if he chooses to.

 

The Traumatic Brain Injury Model System (TBIMS) program was created and funded by the National Institute on Disability and Rehabilitation Research (NIDRR) in 1987 to demonstrate the benefits of a coordinated system of neurotrauma and rehabilitation care and conduct innovative research on all aspects of care for those who sustain traumatic brain injuries. Each Center systematically collects important data about each individual who meets criteria for inclusion in the TBI National Database and sends this information to the TBI National Data Center at KMRREC. The Centers are currently located at 16 sites throughout the United States that provide comprehensive systems of brain injury care to individuals who sustain a traumatic brain injury, from acute care through community re-entry. The mission of the TBIMS is to improve the lives of persons who experience traumatic brain injury, their families and communities by creating and disseminating new knowledge about the course, treatment and outcomes relating to their condition. TBINDC homepage

 

in the last two weeks, John has underwent a deposition for the accident we were involved in, an intake appointment at Mount Sinai, a testing session at Mount Sinai, and an evaluation by an neurologist for my car insurance. all of these appointments made him realize what the full extent of his disabilities are. this has made hs behavoir regress to the point where i am intermittently ignoring him and using all of my tools to keep me as serene as possible. it hasn't been easy.

 

i really hope that this program really helps him because i think it would be very difficult for me to continue to live with him if it doesn't. i don't have a problem with him being on disability or SSD but i find his lack of empathy and emotional volatility that he displays troubling. i hope that this is temporary.

 

sandy

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Sister Sandy,

I hope all goes well for John. Again, I'm comparing TBI's and stroke recovery. Could it be that John is finally on his journey to acceptance? I can remember how hard it was to hear how bad my deficits were and with what I had at that point how I would never work, drive or be able to stay alone. I was devastated by that news. But they were wrong except about the driving. At least I wasn't male and had all the male macho BS to live up to or overcome.With his being a Longshoreman, that sounds like a man's man kind of world, I don't think acceptance will come easy or serenely for John or you.

But hey there is always EBay to sooth you! :roflmao:

 

I'm not making light of any of this. I've told you, I don't know how you deal with all you do. But no matter how hard John struggles or resists acceptance or medical retirement, it all will be better in the future.

Have a chocolate Martini :cocktail: I'll join you with a smoke and a mudslide. :oohlala: :cocktail:

Hugs

Pam

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Sister Pam

 

if this is John's journey to acceptance, it sure is an interesting one. Wednesday eve he came home from work and said that he is not going back to work. Thursday eve he said that the job had suddenly gotten more demanding and very difficult (he usually spends 5/6 hours that he actuallly works in the break room reading, sleeping, or watching Jerry Springer, or going to AA meetings in NJ with his longshoremen friends), so he is glad that he's takinbg a 6 month break. today i called him after i had found a receipt for $50 worth of clothing in astore he goes to to get work clothes; he told me that they were for two pairs of gloves. one of them work gloves.

 

"why do you need work gloves? you are only working one more day", said i.

 

"i can use them when i get back", said he.

 

"you told me that you were never going back to work", said i.

 

"i never said that", said he.

 

and so it goes.

 

funny thing about macho, though...

 

if a man speaks his mind, is forceful, etc., he is known as assertive(aka real man)

if a woman speaks her mind, is forceful, etc., she is known as aggressive(aka bitch)

 

let's run away to a Mallomar factory :bouncing_off_wall:

 

sandy :giggle:

 

 

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Sandy,

john has been in the program a few weeks now, and i was wondering how he was making out. i obviously am not familiar with Mount Sinai's program first hand, but if it is modeled after kessler's...we have a whole chunk where we work on interpersonal difficulties and skills that may need to be relearned after a TBI.

hope it is going well him and that he is benefitting ~ it takes some time, but it works.

maria

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