turn and face the strange....ch.ch.ch.changes
friday is John's last day at work for at least six months, probably until 10/1/06, and quite possibly forever at his current job as a longshoreman. on February 6, he is starting a Phase II Cognitive Rehabilitation Program at Mount Sinai Medical Center in NYC. ( Mount Sinai's TBI Program ), one of the TBIMS Centers in the USA . John is also part of a research study which involves him having neuropsych testing before, at various points, and after his rehab has ended. His program will last at least six months and may last a year. he is going on short-term disability and will go on SSDI if he doesn't go back to work in 6 months. John will have enough documentation be on SSD permanently if he chooses to.
The Traumatic Brain Injury Model System (TBIMS) program was created and funded by the National Institute on Disability and Rehabilitation Research (NIDRR) in 1987 to demonstrate the benefits of a coordinated system of neurotrauma and rehabilitation care and conduct innovative research on all aspects of care for those who sustain traumatic brain injuries. Each Center systematically collects important data about each individual who meets criteria for inclusion in the TBI National Database and sends this information to the TBI National Data Center at KMRREC. The Centers are currently located at 16 sites throughout the United States that provide comprehensive systems of brain injury care to individuals who sustain a traumatic brain injury, from acute care through community re-entry. The mission of the TBIMS is to improve the lives of persons who experience traumatic brain injury, their families and communities by creating and disseminating new knowledge about the course, treatment and outcomes relating to their condition. TBINDC homepage
in the last two weeks, John has underwent a deposition for the accident we were involved in, an intake appointment at Mount Sinai, a testing session at Mount Sinai, and an evaluation by an neurologist for my car insurance. all of these appointments made him realize what the full extent of his disabilities are. this has made hs behavoir regress to the point where i am intermittently ignoring him and using all of my tools to keep me as serene as possible. it hasn't been easy.
i really hope that this program really helps him because i think it would be very difficult for me to continue to live with him if it doesn't. i don't have a problem with him being on disability or SSD but i find his lack of empathy and emotional volatility that he displays troubling. i hope that this is temporary.
sandy
3 Comments
Recommended Comments