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Those first 5 days


gailc

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Those first 5 days in the hospital are mostly a blur to me. There were lots of tests and evaluations being done, Ed did a lot of sleeping and I started a mental list of what the situation entailed. (Ok, so someone with MS who experiences cognitive deficits should not rely on

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Gail,

 

These words of yours could have come straight out of my mouth about my husband, Don: "This is the guy who has a story for any occasion or subject, remembers everyone he

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Gail,

 

Before I read Jean's response (or saw that she had responded!), I was thinking " that sounds like my husband Patrick, and Jean's husband too". My husband was always eager to entertain the crowd with his wit or tell a beloved story. He also was a DJ on a radio station- his passion.

 

It does seem unbelievably cruel that this would happen to people whose personality shines through their words. I of course don't wish I had the stroke, but it sure would've been a much less significant loss to the world if I'd been the one with the communication deficit.

Kristen

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Jean,

 

You're right - it does boggle the mind (rather an apropos phrase in the circumstances).

 

Seemingly so unfair for those who live to talk to be overcome with aphasia/apraxia.

 

Drat.

 

Gail

 

 

 

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Kristen,

 

Oh, a DJ....what a loss. I can relate to your words about if the victim had been you rather than Patrick. I spoke with a girlfriend about that just recently. I am not a big talker. I don't have a need to hear my voice frequently. Of course, if I couldn't communicate at all I would be upset, but me not talking wouldn't be the shock to people that Ed not talking is.

 

Thanks for your reply.

 

Gail

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Gail, as a general rule, The doctors and therapy people usually stay clear of percentages in numbers anyway, of what a stroke survivor will get back in terms of usage ability of their affected side. So if the statement was made, they really don't know. They can't intereped a MRI that closely, so it's only a guess on their parts.

 

In my mind, it sorta goes with the fact, if they can't find a definate cause of a stroke, how can they decide how much is coming back at any given time. Obvously, they can look at a MRI and see the damaged area is a little or a lot. How much will regenerate, how any new veins will start up, all takes time to develope where it can be seen by another MRI taken at that time.

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I agree, Fred. I think it also depends on the survivor - their own physiology, motivation and innate ability to recover. I predict that as much usage as possible will be regained by Ed. He will not give up or quit trying.

He's already insisting on helping with some minor chores around the house -- taking out the garbage, vacuuming, putting down the cat and dog feeding dishes, wiping off the table after meals, etc. The more he does and the more he uses that right hand and arm and then the more he will be able to do.

 

 

Gail

 

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