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Living with Fatigue


sgriffin

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I went to Niagara Falls for the Easter weekend and I might add it was quite relaxing :cloud9: ...I had a great time but soon realized that I still suffer from a great deal of fatigue. It's Thursday and have been home since Monday and still feel crappy. I thought I was much further in my recovery phase but I guess not. The headaches are back with full force and the fatigue is a monster. All the walking that we did made me realize that I can't do the things I use to. The weakness is not as bad as it was immediately post stroke but my right leg gets tired before I am even out of breath. I am angry :Tantrum: because I want to be well. Not having any visible deficits makes being a stroke survivor difficult. Since I can't see what I need to better makes it harder to stick to any form of recovery regimen. I seem to forget that I had a stroke and I can't do the things I use to. That sounds crazy I know. I wake in the morning and feel like it's going to be a great day, I do all the things I can but by the end of the day my body tells me how stupid I was that I pushed so hard.

 

All in all being away from home even for a weekend can be quite relaxing the Falls are beautiful. I am glad I went. In June which is 2 months away we are going to Las Vegas, I am not a big gambler but love going to Vegas. The walking, shopping, and heat are my favorite, but in reality they are my enemies (not the shopping). The walking will wipe me out and the heat will probably swell my ankles like the Michelin(sp) Man :bouncing_off_wall: . I have thought about re-scheduling because I don't feel like I can even recuperate from a weekend in Niagara Falls.

 

Having a stroke has left me with the ability to travel more and work less, a life long dream, but at what cost :uhm: .

 

sgriffin

 

 

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I totally agree. Its like you feel pretty good but then you try to do something like you used(before stroke) to then you're reminded that the stroke limits you esp with fatigue. I know how you feel. We just wanna feel as close to normal as we can...to us it would be a bit like touching heaven....After almost 4 years, feeling normal has totally slipped out of my mind, sometimes I feel pretty good but who knows if it comes close to how I used to feel. We can only keep trying to reach for it.. :cheer:

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