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cats and ebay are better than men


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i was woken up at approximately 4:445 am by my cellphone going off against my chest. my plan had worked-the five minutes to go on ebay alarm on my cellphone for that coach pink grapefruit coin purse that i coveted and that was no longer manufactured by coach (introduced last month, limited run, sold out, and apple and lemon just wouldn't do)went off as planned, allowing me to bid one last time on my cellphone (i have an internet connection and an ebay program on my pink razr cellphone,) and then go downstairs to follow the last two minutes of the auction on my computer. after two minutes, the results were in...for a ridiculous price that i won't even admit, that was more than if i ordered it from coach when it was still available, i am now the proud owner of a pink grapefruit slice coin purse.

 

i paid for my coin purse, and for the items that i had bought on ebay for the"fight for the cure" Komen fund that were less expensive elsewhere-a pink toaster (two slice, wide enough to do bagels, six settings, removable crumb tray,)pink pizza cutter, pink vegetable peeler, and pink ice cream scoop. My friend Marita, and Anthony from John's attorney's office will be pleased, since they both have breast cancer. They will join my baby pink espresso machine, my fuschia water kettle, my fuschia knife block, my fuschia scale (i started a diet,) and various other kitchen objects in various shades of pink.

 

i'm sitting here in the basement with two of my four cats, who alternately swat each other and walk away. Marmaduke has been very p****d off since Gabi became very, very bouncy and is bouncing off walls playing with everything in general and the other cats and me in particular. Gabi was much quieter before he had an acute bout of interstitial cystitis and had his food changed. He probably wasn't feeling all that well for years but didn't complain like Marmaduke, who complains about everything, loudly. Gabi is much younger, bigger, and stronger than the other cats (he's 6, Marmaduke, the next youngest, is 9) and has a happy, buoyant, personality, so he bounces through life. Marmaduke is part Siamese (and looks it,) and is a one-person (me) cat who is prone to extreme fits of jealousy. They do sleep together, though, so their fighting can't be that serious.

 

on monday i went to a new rheumatologist who told me that i had lupus as well as antiphospholipid antibody syndrome (the last one told me that i didn't,) stopped my Celebrex, and sent me for lab tests, xrays, and a gyn exam and bone density test with a new gyn. yesterday she examined me, started me on low dose prednisone, told me i was having a flare, and showed me that i had a positive ANA. i liked her a lot better than my last three rheumatologists. she is very accessible and resposive.

 

my lupus flare was exacerbated by John's deciding that because they're both tiny white tablets, my Topamax was actually his Mirapex and switched/mixed up the two medications in my Topamax bottle, which led me to take a medication for the last several months that causes sleepiness, muscle inflammation and pain, and water retention, which i really needed. now i know why i thought that lipitor was causing painful side effects after so many years, ultimately stopped taking it, and then wondered why the severe muscle pains in my legs didn't subside (my new doc said that my lipid panel is perfect, and i don't need statins or any other cholesterol meds.)

 

when i went to the doc yesterday, John came with me. she explained to him why i can't sit go to the beach until the late afternoon because i am sun sensitive and the sun triggers my lupus. i have been telling John this since i knew him but he never quite believed me, just like he never quite believed me that i couldn't work 5 days/wk out of the house any more.

 

so i got a lock box for my meds. i also told John that even though he didn't try to poison me on purpose, if he doesn't go to meetings daily, get a sponsor, and change his narcissistic attitude as of yesterday, i would do whatever i would have to do to put him on a park bench in Prospect Park with his belongings in big black garbage bags. i'm also really hurt, upset, and p****d off that John did not take the time to do any sort of research on the internet to see that sun sensitivity and fatigue with autoimmune diesases and strokes are real issues. he preferred remaining ignorant, which i believe is what many people prefer to do (certainly my mom is like that.)

 

i grew up with a narcissist (mommie dearest,) i was married to a narcissist (my ex,) and i'm not going to spend my life with another one. i'd rather be a cat lady, happily shopping on ebay.

 

sandy

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Sandy, you're a "pinknik". Now everytime I see something pink, I'll think of you - especially kitchen gadgets.

 

So how many times have you used your pink coach grapefruit slice coin purse. OK it didn't arrive yet. See, that "wonderful price" is meant to only let you have enough change to fit into it. :big_grin:

 

Phyllis

 

PS. Written in pink in your honor Highlight to be able to read.

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Sandy,

 

Even when people know the syptoms and limitations caused by certain diseases and illnesses, they don't always believe what they read or have been told. You call it ignorance but it can also be a form of denial, a way to avoid having to deal with things they don't want to deal with openingly. I call it immaturity but we all go through that stage of denial in the beginning. Some people just chose to stick around there a lot longer than they should.

 

Jean

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Congrats on the pink grapefruit coin purse.. and toaster... I too will be thinking of you when I see pink "things"

 

your kitties sound like my dogs.. Dad and son grumble at each other..then you turn around and they are lying next to each other.

 

Really hope John gets tuned into understanding .... that you have limitations too. Like Jean i think sometimes it is denial.. or they do NOT want to think of you with limitations. If they dont't admit it, then it is not so.

 

Bonnie

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You sure have some stuff going on, Sandy. What are the implications of lupus and antiphospholipid antibody syndrome? Do you have anyone who can take on some of the practical stuff around the house so you can get some rest?

 

T

 

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Trina

 

lupus is the general broad disease syndrome which includes antiphospholipid antibody syndrome as kind of a "sub" disease. it can include other less defined "sub" diseases, like heart and kidney problems, which fortunately i don't have. the joint pains and swelling, muscle pains, sun sensitivity, and extreme fatigue are very annoying, and make it difficult for me to work, but are not life-threatening like the antiphospholipid ab syndrome and the other syndromes.

 

John is starting to take his head out of his butt and not be so much in denial. he has never really seen me really sick before, so this is a bit of an eye-opener for him. he actually bought a layman's book on lupus two days before i asked him about it, and is doing a lot a lot more around the house. he also doesn't get that annoyed when i wake him up at 1 am to sit with me when i do paperwork, my new philosophy being, "i don't do this alone anymore, we're doing this together, even if you just sit here." i am refusing to do any more calculations for his attorney on his lawsuit, faxed a letter to his attorney informing him of that fact and why, and pointed John to the two large file folders in the file cabinet and wished him luck.

 

i am not visiting of calling my parents as much. my dad has been standing up to my mom on my behalf and has told my mom she has always been verbally abusive to me and that he will outlive her because he wants to leave me an inheritance and he knows she won't leave me anything. he is and was awake and talking a lot more than than he was willing to reveal for a long time. my mom is really afraid of these changes and has toned down her act. my dad wanted to go to a nursing home for a while, but after she started yelling and screaming that i would have to take her to court to achieve that even though he is competent and it is his wish, over her dead body, etc, etc, he thought about it and decided that waiting it out and willing her to die is more cost-effective. i am convinced that i will get a dark novel out of this one.

 

sandy

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Sounds like you could get more than a dark novel. But it's making you a stronger person.

I could do with some of your chutzpah!

 

It must be tough for both you and John. Both TBI and stroke leave you wth fatigue, and then with lupus on top of that? More than one (or two) person's share.

 

T

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