I'm SOOOOOOOOO glad he is home and improving. Children are very resilient! Loads of blessings for you and your family!

Being home has got to be good for your son's morale! Moving to the music sounds like a good, homemade therapy, too. I'm so happy that you've gotten to this point in the recovery process, even though it can be scary and very hard for us caregivers. Keep in touch.

Jean

Being home has got to be good for your son's morale! Moving to the music sounds like a good, homemade therapy, too. I'm so happy that you've gotten to this point in the recovery process, even though it can be scary and very hard for us caregivers. Keep in touch.

Jean

Zain, I'm so glad your boy is happy and wants to dance. Will he continue with therapy at home? Can you get exercises (physical and cognitive) that you can do with Farhaan at home? There is computer software to help the brain find pathways to carry out tasks that used to be carried out in the injured areas.

We have also found it helpful to have a physical therapist come to the house once a week. An outsider can often get a more positive response than a close family member can, in our experience.

Wishing strength to you and your family,

Trina

Zain,

There's no place like home...... So glad your son is making good progress.

Hi there Trina

Thanks for the response.

The way we care for Farhaan is therapy itself. He has to walk (with much Aid) to the lounge, bath or the car. He has his daily dose of board games and he loves playing with his Portable playstation. I just got some simple games lie space invaders etc for him. He also gets a full body massage daily.

In about a weeks time he wil spend two weeks at this school "Open Air". There he will be assessed for enrolment next year. It is a school that caters for students with similiar condition to Farhaan. As for PT, ST and OT, he will be going to the Entabeni Rehabilitation clinic as an outpatient. His first outpatient visit is this Wednesday.

I found this drug called Neuroaid. I emailed the biopharma company, Moleac, and got some responses. They say that the youngest person to have taken it to their knowledge is 17 years old. They have no data on 8 year olds. They suggest i use 1/3 dose. Details of Neuroaid can be found here >>

http://news.scoopasia.com/index.php/news/n...e_to_paitients/

http://www.medicalnewstoday.com/medicalnews.php?newsid=53535

http://www.pharmamedics.com/read_news.php?id=41212

Does anyone have any information or possibly used this drug?

I am very much interested in the "computer software to help the brain find pathways". Must i speak to the neurologist about it or where can i get the software/hardware?

Thanks

Zain

Hi Zain, happy to hear your son is home.

There are a few computer games.. one is called Brain Games.. it has matching objects and can you spot the difference between 2 pictures.

There is another for the playstation. I also have Puzzle Master from e Games it has a whole bunch of puzzles, you can set it to an easy level with a few pieces and make it more difficult as he progresses.

Gld to hear he is standing and moving to music that is great, and the Rehab and school...

Progress is slow, but it continues.. hang in there (((((( hugs)))))) to you and your family

Zain:

I am happy that Farhaan is back home, though you will realise there will be lot of other challenges that come out, but you deal with them as it pops its head, I just wanted to tell you that in our blog world you might not get very wide audience which you might get with message board, so sometime if you have very particular question try message board also, though I am not very actively involve in message board but I hear lot more people read posts than blogs. though not me

I am so happy that Farhaan is creating his own therapy like dancing and stuff that brings so much joy in life, my 9 yr old created new physical games with me which he calls it as therapy hour, those were highlights of my day in my 1st year.

Asha