• entries
    5
  • comments
    17
  • views
    1,767

how long has it been?


smiley_baby

639 views

i dont even know how long it has been since my dad had his stroke but it wouldve had to have been close to five months. its hard. im supposed to be getting on with my life but all i can do is think about my dad. he hasnt woken up yet. well he does, he opens his eyes and is 'awake' but he is still in the coma. its hard not to lose hope and sometimes...i know this sounds horrible...but maybe its better if he stays asleep because im so scared of what hes going to be like when he wakes up. i want to remember my dad as my dad...not as someone i have to care for. its really hard on my grandparents. they havent left his bedside. they are there day in, day out. my brother and i only visit my dad once a week. but its really hard. mum works full time... my brother and i have school. i feel so guilty. i feel guilty about not really 'talking' to my dad either. my grandma practically forces me and i feel like an idiot. i feel like im talking to myself. i just dont feel comfortable why cant people understand that? if he can supposedly hear me, wont he know that im there anyway? who really cares... i feel so angry when im there. not at dad. at myself. and everyone else. i cant talk about how im feeling. not to anyone. sigh. i guess no one around me really understands. what *beep* me off the most is my mum.. tries to be nice to me... shes 'changing' yeh right. shes till the same old selfish attention seeking person she always was. i dont want her to try to understand whats going on. she doesnt. i want him to wake up so badly... not for me, i can deal with it, but for my grandparents, my brother, rose... my grandma keeps saying he will be awake for christmas, its breaking my heart. im at school right now, i should be working...haha. i feel guilty that im not there more often. i feel guilty that i cant talk to him. i feel guilty that i just plain cant talk. i just feel stupid talkin to people about 'feelings'. im not really that kind of person. maybe because im forced to suppress them in my own house. i cant say anything to my mum. she doesnt know where her priorites are. shes too busy chasing after a stupid man... she hasnt cooked for like 3 months... wait she cooked last wednesday. first time in ages. and not since then. not a scrap of food. i guess im growing up so fast. my dad would be proud. i won a scholarship to my school. i cut my hair... he would hate it though, always telliing me just to leave my hair. i went to derby day and got dressed up, so did martyy we looked gorgeous... its my brother's 13th birthday tomorrow. all the things he's missing out on... you just have to hold onto hope................ but i dont know if i have any left. because i dont know whats going to happen. and im tired of not knowing. i just want a difinitive answer. yes or not... awake or asleep... something. to know. let me grieve. stop all this not knowing.

4 Comments


Recommended Comments

.

 

Hi Smiley Baby,

 

I'm glad you remembered us here at Strokenet and came back to let some of these feelings out. Do you have a school counselor or a social worker at the hospital where your dad is at that you could talk to? Either one would be able to connect you up with someone who could help you sort all this stuff out. You need a safe, non-judgmental person to help you with the guilt and anger---both emotions, by the way, are normal under the extraordinary circumstances that you family are in. It might seem stupid to talk out your feelings but everyone needs to from time to time. If you can't bring yourself to find a professional to help you, journaling your feelings can be a big help too.

 

My mom was in a coma for a very short time and when the emergency people first were trying to get her to answer their questions, she of course didn't reply. But the part that I'll never forget is that when she finally did wake up her first words were answers to the questions that were asked of her way back when she first lost consciousness. It made a believer out of me that people can hear you when you're talking to someone who appears not to response like your dad. It's the sound of your voice that is important, not what you say, so you might try reading to him if that would be easier than talking about your day, etc. Pick something upbeat like the Chicken Soup books of short stories.

 

Congratulations on the scholarship!!!

 

Jean

Link to comment

Tess, the closest I can get to telling you what your presence and the sound of your voice means to your Dad is the example of a friend of mine who was put into a coma when she had viral meningitis. When she came out of the coma her family asked her what she remembered. She said: the sound of the sea (possibly the machinery around her) the feeling of sunlight on her skin( they wrapped her in warmed blankets if she got cold) and the sound of the voices of the people she loved around her.

 

I know it is hard to speak to someone who does not answer, but maybe you could think of it like the "news" you used to do in class when you were in infants school. You could compose the news of the week under a few headings and tell them to your Dad a few sentences at a time. Each time you finish an item of news, squeeze his hand,he may surprise you and squeeze back one day.

 

As Jean said, it may surprise you when he comes out of the coma how much he remembers. In the meantime remember to support your grandparents who are going through such a frightening experience themselves. Give them the warmth of your love and your hugs.

 

Hugs for you from Sue. :friends:

Link to comment

hi smiley, i am so sorry about your dad, you and your brother are alful young to have to go through something like this, i was 48 when my clot caused a stroke and my son was17 and yes it is hard but it is very important to keep talking to your dad,even if you tell him a joke, your whole family has been turned upside down. keep up your hope and try and find someone to talk to. it will help, i will keep you and your family in my prayers. Good luck in your dads recovery, things will look brighter soon, i hope kimmie

Link to comment

hi smiley baby:

 

welcome to our blog world, first and foremost I am very proud of you for your accomplishments, you are great kid, and I strongly feel you should talk to your dad even while he is in coma, what you got to loose, if he heard you then he will atleast know that somebody out there loves him and care for him to rurn around, maybe he is hanging there just for his kids, so tell him how much you love and miss him, and I feel sorry for your mum, but I think you can take leadership role at home for your brother and for ur dad. you are capable of it. and since I have never met you before I am just wondering how old r u, also take Jean's advice, talk to social worker in the hospital about your dad's conditions.

love

Asha

 

 

 

Link to comment
Guest
Add a comment...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.