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Overcoming Thalamus Pain


cycad1

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Writing this down is very difficult to do. Hopefully I can "blog" it. I'm hoping that this will do several things - give hope to others, allow me to see how far I've come, and banish some demons.

 

Today I am free from many things that tortured me. The worst was "thalamus pain", a "phantom pain" that I felt on the left side of my face. Nothing can describe that. My little brain was convinced that a red-hot iron had been left on my face. One thing that helped a bit was looking into a mirror to try to convince my brain that nothing was wrong. I learned this while watching a documentary about amputees with phantom pain. It took several years for the pain to subside, but it did. Right now I feel a vague numbness in that area of my face, but not pain. I can live with that.

 

 

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Welcome to the blogging community Brad. We are all here to vent, brag and upload some of our experiences to help others. In doing so of course we do come to terms with ourselves and the new normal in our lives.

 

I've been blogging along for over a year and really benefit sometimes in seeing the ups and downs Ray has had and how we have handled the changes in our lives. I have him home after eight weeks in hospital and am rejoicing in that.

 

I think those "invisible defecits" such as your facial numbness must be as hard to handle sometimes as a leg that doesn't work but probably gets you less sympathy.

 

Big welcome anyway and hope to learn more about you from your blogs.

 

Sue.

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hey Brad:

 

big welcome to blogworld, you actuall pleasantly sneaked up on me, most of the people stumble in publishing their blog, so I find out first about them, it will be fun to know you through your blogs, I know for me blogging has helped me immensely, I find it very therupetic, and now I am addicted to it. writing down makes you realise howfar you have come in your post stroke journey. hope to know more from ur blogs like when was your stroke and how old r u.

 

Asha

 

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Welcome Brad! :welcome: :welcome: What a fascinating way to deal w/ your thalamus pain! I applaud your perseverance; it will serve you well. :Clap-Hands: :Clap-Hands: Take Care. LK
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THANK U FOR THAT SUGGESTION - i HAVE THE SAME THING, I'LL TRY YOUR METHOD - MAYBE DURING THOSE TIMES THE FIRE WILL EXTINGUISH. :big_grin:

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I had a thalamic stroke. It affected me the opposite of the way it affected you. Instead of feeling hot, I felt intense cold. Doctors perscribed Neurontin (Gabapentin) and we have been adjusting dosages, but we finally seem to be on the right track. The cold is not quite so severe as it was.

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Thak you Brad for your post. It shows what we can all do to over come things. I don't have any pain but I'm sure many of you do. May God bless you and keep you in hes prayes.

Thank you Brad for writing your Blog.

 

Bruce Schwentker :bouncing_off_wall:

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