• entries
    16
  • comments
    41
  • views
    3,862

Not sure why I started this?


scrapdoo

697 views

I am not exactly sure why I started this. Going to give it a try to see if it helps me with thoughts, feelings and more connection with other members.

 

Brief about me: I am 37 and had a stroke when I was 33. My children were 10, 7, 4 at the time of my stroke. I was and am currently married. We have been married for 15 years and dated 5 years before marriage. We have had our marriage struggles but dealing with the stroke seems to have ended our relationship. I have changed so much! I am on total disability. I try to volunteer when feeling well.

 

My stroke was hemorrhagic on the right side. I also needed brain surgery to repair the cavernous malformation that caused the stroke. I have slight deficits in my left side. The most resulting difficulties I have are: lack of attention span, extremely tired and terrible headaches.

 

I am currently waiting to be 'accepted' into the pain clinic. It is like an application to join an exclusive club or something. I sent in my paperwork the end of December. I called last week and they are waiting on some test results and some records from doctors( I see way too many different ones!). I keep praying to get in and start working on a treatment plan to deal with this headache pain!

 

I started physical therapy 2 weeks ago on my neck. This helped some about a year ago. We are doing this to help ease pain until I am 'accepted' into the pain clinic.

 

I am feeling an increase in my depression lately. The headache pain is just wearing me down. When/How/What will help? I have been taking test hoping to find a cause for my headaches to treat them. I have been trying different pain meds with some help. I have tried yoga, gentle stretching to see if it will help.

 

I am having such huge problems sleeping! This makes it difficult to care for my kids. I am crabby and easily irritated. I snap at the kids. Then I feel guilty! I take long naps and sometimes miss al evening with them! I feel like such a bad mom.

 

My psychiatrist prescribed me Ambien for sleep help. This makes me sleep too long and I have a very hard time getting up to get the breakfast and on the bus to school. I called him today and he called in an order for Sonata to see if that might work better. Please pray it does!

 

Well enough for tonight. I will add another entry soon! Beth

6 Comments


Recommended Comments

Beth, welcome to the blogging community. We get to know a lot about each other here. Survivors and caregivers are alike in that we need to try and sort our lives out and seeing things in writing helps with that. I hope you keep on blogging. Looking back on your blogs after a year or so can help you see things with greater perspective.

 

And the other members of the blogging community are great cheerleaders too!

 

So welcome and I look forward to getting to know you as a friend.

 

Sue.

Link to comment

Beth,

 

Welcome dear to the wonderful world of blogging. Hope you continue with it. It is enlightening (really) to look back on older entries to reread and see a progression in our recovery.

 

I do hope and pray you get accepted into the pain clinic soon and are able to get some relief.

 

Have you tried to "nap" in the afternoon before the kids get home from school? I have discovered an afternoon "break in the action" helps me to be more of a Mom when my kiddo returns from school. I've discovered, if I push all day long, I'm grumpy, irritable, and resemble a snapping turtle or should I say snapping penguin (as I so resemble one when I walk). I've discovered it's best to give in and rest versus pushing ever onward.

Link to comment

I am so sorry to hear about your situation - I stroked at 34 but thankfully have no children as I don't know how I would have been able to deal with all of that in addition to recovery. If you are a reader - I really enjoyed Stephen King's latest book - Duma Key about a man with brain injury. It isn't the same as stroking, but I found enough similarities that it gave me ideas on how to handle the rage monster inside.

 

You have more distance from your stroke than I do (I am only 2 years out), but I found anger to be (for lack of a better term) an easier emotion to access than any other. It is hard work, but have you thought about any way to address the anger?

 

You say that you are still married but your relationship has ended - is your husband still living in your home? Does he help with the kids? Does he try to understand your situation?

 

I wish you peace. :wink:

Link to comment

hi Beth:

 

welcome to wonderful world of blogging. Ican relate so much with your situation. I too stroked at 34 and now 38. I have 10 year old son, he was 7 at the time of my stroke. being full time mom is work in itself. I try to do what I can with my limited mobility. I have been married for 16 years, and stroke made our marriage stronger. I wish and pray you get accepted into pain clinic. I know pain is no fun. I for sometimes dealing with pain in my good knee which sometimes takes fun out of living. For me blogging on this site was immensely helpful I could appreciate all my small happy moments with my son and get loads of support when I am down from others.

 

Asha

 

Link to comment

Justsurviving, My husband still lives at home. It is definitely more like roommates than a marriage. He has his room and I share with my daighter. It has been like this over a year. Before that it was almost like our bed had a partition keeping each of us on our own side! We struggle talking about things, especially money. We have many bills, especially remaining from my stroke. We set-up payment plans when we received our first bill. This payment plan is also good with any new charges added for my frequent MRI's.He works 2 shift so he doesn't see the kids during the week. The weekend can be very stressful. My kids actually don't like weekends because he is around! They don't feel good about him and how he treats them. He can be grumpier than me. He let's them have it! I don't blame them for being upset. I get the same way when he try to treat me the same.He doesn't try to understand my situation. He has preferred to 'dorget' it every happened. Any happening similar or reminding hime of my stroke, he does not participates. I had an ambulance come to my home to try to get my kids not be afraid of my calling an ambulance for help. He sat in the house during the time. He also thinks I am lazy and choose to nap and not get things done around the house! He even said that again this morning! Things like this really reinforce time to end the marriage. Unfortunatley I have my health insurance that covers a lot of my appts. Medicare would not pay all of my specialist bills. I cannot afford this on my own. I also cannot figure out a way to make basic food, clothing, shelter without his income. When do you end a relationship because trying to make ends meet is much better mentally to end it?Donna, I do try to nap early before my kids get home. Unfortunatelt, my lack of sleep at night causes longer naps during the late afternoon evening.I should try even earlier to nap. I miss the after-school talks about how the day went and snack time! Thanks for responding.

Link to comment

Beth,

 

Dear lady, you need to care for you and your children. Have you spoke to an attorney? If I were you, I would. The there are many things that could be a part of the divorce decree such as medical insurance, spousal support, etc. Especially if his relationship with the children is not healthy for them.

 

As to his comments to you - how very rude of him. Do you have anyone who can talk some sense into him?

 

(((hugs))) to you and the kids.

Link to comment
Guest
Add a comment...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.