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ALMOST RECOVERED AND BACK IN HOSPITAL AGAIN!


FAIRLAKELADY1

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I haven't blogged in awhile; Mike has done sooooo great! :D We had figured out that his antidepressant needed to be doubled and after about 4 days of the new dosage it was like he awoke from a dream; his speech got better, his short term memory got better and his comprehension got better; We have been "basking in the sunshine of normalcy" for a few weeks! IT FELT SO GOOD.

Thursday he called me at work and said something was wrong with his hand; after rushing home to him we went by ambulance back to the hospital hoping this was just a minor glitch to get over. But here we are again having to fight with the doctors, keep up with the changing of medicines and worry about who REALLY knows what they are talking about! One doctor had me in tears yesterday because he made me so mad. He was of the attitude that he didn't need to hear me say anything he had read the chart he knew all about his past history. He interpreted it wrong and basically told me we were back to square one as we were in January! (i argued about the information he gave and what happened in January but he informed me that THE COMPUTER said so.) After rolling his eyes at me as if I were a total idiot I shut my mouth and waited for him to leave. :rolleyes: As the door closed mike said "come here" you are mad. You are darn tooting I am mad! When a total stranger tries to tell me I don't know anything about the medical condition of my husband it definitely makes me mad! My every moment since January has been to make sure he was okay, had his medicines, made speech therapy appts, made dozens of doctors appointments and yet I don't know what happened in January! Please, I can recite anything they need to know about Mike don't talk to me like I am an embecile!

 

He has not lived the nightmare we have lived therefore he has no right to treat us as we were treated!

 

To make things worse, FINALLY Mike's Neuro Doc came in and through tears I told him how happy I was to see him that the doctor this a.m. had upset me tremendously! Guess what?! The mean doctor is Mikes' Neuro Doctor's partner!

 

Long story short, I told him what he said and that I disagreed with the information he gave me because it was not what I understood from Dr. Beuchner in January and he said "me either". So then he said let me just check on something! Apparently he went and spoke with the "mean doctor" because he came back and tried to explain what the guy was meaning to say. Mean Doctor had to remove the size 12 shoe from his mouth!

 

BOY SOMETIMES I HATE DOCTORS!!! :yadayada:

 

Lot of decisions are going to have to be made. We are at the point that unless we think Mike is dying we are not going to agree to another surgery. The one in January was supposed to be a piece of cake and fix the problem. only an 8% chance that things would go wrong! GUESS WHAT!!! Things went wrong.

 

I have watched Mike work too hard to get back to where he is now to have him put back in the same condition. Mike's comment yesterday was if God is ready for me to die then so be it but I don't want to die because of an idiot mistake!!! I TOTALLY AGREE!

 

The doctor that did the surgery in January that has said Mike does not need anything invasive for at least a year to give his brain time to heal is on vacation. Hopefully, by Monday he will be back and can get in this picture. I don't believe he will agree with some of the talk about surgery.

 

Mike and I are so complete with each other. We try to think if there is anything we haven't said that we would wish we had if something happens and he has to leave me. But we are silent. All we feel is love and contentment that we found each other. But December is going to be our 15th wedding anniversary and I have been planning a Huge Party. An open house/xmas/anniversary party to renew our vows. We are going to have it at our new home on the lake and actually have it catered! (instead of me doing all the work like I usually do!ha) I refuse to let these doctors take this away from us! We are tired of promises to fix things and ready to buck the system if we have to.

 

Mike has a 25% occlusion according to a july 1 MRI. Doc says if it is up to 50% THEN ALL DOCTORS WILL HAVE TO PUT THEIR HEADS TOGETHER AND DECIDE WHAT TO DO. My family & Mike and myself feel it may have to be a whole lot higher than 50% for us to agree to another surgery and risk putting him back like he was or worse.

 

I am trying to hold it together but somethings I feel like losing it and just throwing things around including some of the doctors!

 

Keep us in your prayers,,,,,,,,,,,

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You and Mike are definitely in my thoughts and prayers. Mike is being held in God's gentle arms and I pray to our Ultimate Physician to guide the doctors to make the right decisions for Mike.

 

(((hugs))) and God Bless you both.

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I am contending with doctors as Ray is still in hospital. After three weeks of tests, they found nothing new, no new answers when I think there should be answers to why he is blacking out and falling down. But what would I know, I am just Ray's wife and 24/7 caregiver! All caregivers are in the same catergory, there to do the work but not included in the loop by the doctors. It makes me mad too.

 

My class this wek on my course is how to make the best use of support so I need to concentrate hard and learn some as I really do need to learn how to make the most of services, those provided by doctors included. Maybe it is all those hot blooded Irish rebels in my family tree showing up in me eh?

 

(((Hugs))) from Sue.

 

 

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