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It has been a long time


kkholt

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Yes a long time has gone by since I've been on strokenet. Guilt creeps in that I need to give back to the people and site that was so instrumental in the first months and more after Rob's stroke. I feel the need to give back with the same caring support I received - that was so helpful in our journey forward. Okay I'll try and log in more often .... that said I'll just blog a little about how things are going for us. My job is still going well, I HATE being away from home, but that is life in a small town where employment is not available. The upside is that in about 8 or so months, after our son graduates from high school Rob and I will be able to travel to warmer climates in the winter. Working up north on a 2 and 2 schedule provides me the opportunity to go anywhere the two weeks I am off work. We can go to Costa Rico, Mexico, Arizona --- course I'm naming all the warm places I want to be. The benefits at my job are amazing (100% paid health care) and a fantastic retirement plan. Both are top priorities for me now. Rob is getting around well - not to the level he was prior to his setback about 18 months ago - but well just the same. His arm seems to be doing better than his leg and he just doesn't have the muscle strength in his hamstring that he needs. He makes a good effort to exercise and or walk every day and because of this I believe he does continue to improve. He made the very difficult decision to sell his guide business and this Fall will be the first in over 20 years that he will not be heading to Kodiak. He keeps busy with his many projects and the only concern I have is his memory seems to continue to deteriorate. I sometimes wonder if people who have had strokes are more prone to this deterioration at a pace faster than just the normal memory loss with age. Well we are two peas in a pod, because I am losing my hearing as fast as he is losing his memory. I attribute mine to years of duck and bird hunting with a 12 guage exploding hundreds of shells just inches from my ears with no protection. So my normal response these days is huh? because I didn't hear something and Rob's normal response is huh? because he didn't remember something .... yeah, two peas in a pod we are.

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Karen, welcome back. It is good to see you blogging again. I was wondering how things were going with you and Rob, particularly since his set-back. It is true that evry stroke experieced is brain lost, both physically and mentally and while you get some of it back it is never all of it.

 

Ray has had some more trials and tribulations and if you read my blog you will see we have had our ups and downs. But as long as we are managing day-by-day that is all we can ask of life. And so far so good.

 

Vascular dementia is one of Ray's diagnosis' and that means he has a fading memory, no process skills etc. He is worse than a lot of the others at his support group that have had multiple strokes so it depends on the number, severity and location of the strokes as to whether you get multi-infarct dementia or not. Ray has had diabetes for 18 years also so that is a factor.

 

Anyway come on and help support the newbies as you can. We all appreciated the help we got when we first came on and now can help others out of our own experiences.

 

(((Hugs))) from Sue.

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hey Karen:

 

I was so happy to see your blog. I was wondering about you and Rob for long time, & was thinking about you both in my beautiful Alaska vacation & also since Mccain picked Sarah palin for VP I was thinking about you both. For me I every day discover there is still so much joy in life post stroke too. my son is becoming young adult now, & I am having blast in my second chance of parenting. I was chuckling at your two peas in pod. for us it's same too, I borrow my husband's hands all the time and he borrows my eyesight all the time so feels like we too are two peas in pod

 

welcome back & we appreciate all the support you can give to newbies. I don't know what I would have done in my initial days without support of allpeople here. I think we have all learnt so much from our own journey & can pass on valuable advices to newbies

 

Asha

 

Asha

 

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