The "P" Word
Yes - I knew it was coming. Yesterday it came with the meeting set to discuss the next steps this Thursday. It has been 4 months with no movement on her right side. Though prepared (thanks to this website and a bit of reality) it still stung. I sat and chewed on the word for a while and then thought "ok, next step of the journey" (Actually I freaked out, cried a bit, had a glass of wine, prayed and then did the "ok" thing). So - here is the good news: She is making good gains in Speech and the therapist will continue to see her. Cognitive abilities are improving. There is hope - we have only just begun. What am I afraid of?: What does this mean for her copay and Medicaid? Will they move her to a different unit with different nurses and techs? How will she handle this? How will I handle this? Training staff - again (wonder if I can get paid for that). Will she ever regain her speech and use of her right side - I keep praying and hoping and believing. I am not good at the one day at a time thing. Actually I am really bad at it. Like Charles Barkley would say - "I am not a role model - I never intended to be. " Jackie - we have gotten this far in life. I know you do not want to be in this situation but we are in it together. One day at a time (I'm trying - and am getting better and have not plateaued - the "P" word - and even if I have I won't stop trying.)
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