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Lighter side of some side effects


justsurviving

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As I was walking to my office from the center entrance where Bob dropped me off, I remembered a few of the side effects that I thought were funny even while I was experiencing them.

 

I always thought that the swing of the arms that matches the opposite leg while walking was natural & automatic. Post stroke, I realized that my left arm just hung pretty much straight down while my right arm swung in time with my left leg while walking. I thought it looked exceedingly silly, so I set out to fix it. I put a light weight (1 lb) in my left hand and walked around the block while purposefully swinging my left arm. I realized today that it now swings naturally on its own accord :)

 

Similarly, when I first started out walking on my own, I was heavily dependent on my right side since my left side was so weak. When walking up/down stairs, I gravitated toward the right side railing (which is handy enough in our society since that is the appropriate side to travel). When trying to incorporate using my left side for strengthening, I tried to use my left hand for railings. The problem with that is that I had to consciously grab the railing then think about each step with great purpose. As I moved forward, I forgot to release my left hand (again, 'normals' don't have to think about these things!). I looked pretty darn funny trying to move forward with my hand still gripping the railing. I almost ran into many a wall from this issue. Even funnier is that I had to stop moving to free up my thinking to release my hand and grip forward. I'm pretty sure I looked almost robotic "grip, step, step, release grip, regrip, step, step" over and over again. It takes A LOT of brain power to recover like that. I don't have to think about every single step any longer which is a huge relief.

 

Moving like I am losing the race with a snail made for some amusing activity that I would have loved to have seen from someone else's perspective. When I first went back to work, I was still using a quad cane (four footed cane) with, of course, my right hand since my left was mostly useless strength- & grace-wise. To get into the building at work closest to where my office was located, you had to hold up your badge, wait for the door to click, walk forward & open the door. *This* is how my attempts went:

 

Walk up to the badge station, let go of the cane, get my badge out of my purse, waive the badge in front of the badge box, stuff the badge back into my purse as I hear the door click, grab my cane, waddle forward, let go of the cane, reach for the door as the door clicked locked again. I did this easily half a dozen times unsuccessfully until either someone else walked up to help me or I called someone inside to help me in.

 

I would have loved to have seen that security footage of this fiasco. I couldn't get my left hand to hold onto the badge because it had no grip & it had no strength whatsoever so I couldn't depend on it for the cane. If it wasn't so pathetic to see, I would have expected to see people giggling uncontrollably at the ridiculous plight of me going back and forth desperately trying to beat the door click. It felt like a Saturday Night Live skit. :roflmao:

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A friend of mine puts her ID between her teeth and shakes her head under the laser scanner, that must look a sight too but it works!

In every situation there is eventualy a solution.

 

I am glad you are blogging again, there are lots of insights in your blogs for caregivers to be aware of. It is much appreciated.

 

(((Hugs))) from Sue.

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LOL Sherri! :Good-Post:

 

That must have been so frustrating but it's so great that you can look back at those experiences and laugh about them now!! How far you've come!

 

You really make me appreciate all the little "normal" things I take for granted too - I had NO idea the difficulties you encountered with everyday experiences that we don't even think about!

 

Again, I advocate the book idea - I could see you on Oprah now talking about all of this! :bookread:

 

Oh - and BTW, :happybday: this Sunday!!

 

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Friend - it is so difficult to try to explain how much brain power it takes to recover. It felt like I was constantly making excuses so I just stopped saying anything. It took up so much brain power that I would forget things (once, Bob called to say he was at work to pick me up & I just stood up, grabbed my cane & walked out of my office. A coworker later called to let me know that my office door was open, lights on, computer on, and my purse on my desk!) It has only been within the past year that I don't have to consistently THINK about taking each step & watching so closely where I am walking & trying to time it so that my foot will step correctly. It was exhausting. I still have to do that with stairs but it is getting better.

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hey Sherry:

 

I should try implementing your swinging left arm with weight approach, atleast now it stays to the side of my body & not near my boob.

 

you have come quite far in your recovery.

 

Asha

 

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Sherri,

 

It's amazing how we learn to adapt as part of our recovery. My left hand is still might weak HOWEVER there are times the booger will grab a hold of something and refuses to let go no matter how much I will it too. It's like my left hand has the mindset of a toddler not wanting to share - screaming "MINE" as well as the stubborness and shouting "NO" when I want it to hold something LOL

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It's like you're telling my own story. I went through the same thing with the left arm swing! And the grip issue; I was leaving the lunch room and had to sit my plate on the floor so I could release my grip on the door knob!

 

Wesley H.

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