Hi All I haven't blogged for ages, thought it was time for a quick update.
I've been self funded for all my care and therapy since my stroke but with the shutdowns here in early 2020 I was forced into the realisation that I am not as independent as I thought I was. So I finally applied for government assistance with health, self care and therapy costs through our NDIS (National Disability Insurance Scheme). It's been a roller coaster over the last 14 months getting all the information together and the medical assessments done and then fighting with the bureaucrats who control the system about what supports I need and what they will fund (or more accurately what they won't fund.) and then trying to organise new care workers during a pandemic (which thankfully here is largely not an issue).
Anyway yesterday I had my first Saturday cooking and market assistance day. We had fun, cooked zucchini slice, went to the fresh food market, planted a new cactus into a little pot (my office plants did not survive the over 12 months with no one in the office) I was back in the office for the first time since Feb 2020 last Thursday, but that's another story.
Skye my new home help, comes twice a week, Tuesdays she comes and cleans the apartment and helps me with the tidying up chores that the "normal" cleaners just don't do, then on the weekend we do the "fun" stuff and get me setup with food for the rest of the week (I'll cook the curry myself this afternoon, we bought the bits for it but Skye had to leave for her other job and I was running out of steam.)
I also now have hydrotherapy in my apartment complex pool every 2 weeks through the scheme, and they give me a rebate for some of the costs of my personal trainers, and specialist physiotherapy treatments.
My Support coordinator is also looking into getting me to some disability snorkelling sessions if we can organise it before the water gets too cold.
So I'm in a pretty good place (mentally and physically) at the moment although the ongoing fatigue sucks pretty bad some days.